How do I start this? What do I say? A few years after I was diagnosed with young-onset Parkinson’s disease, I went to my movement disorder specialist for my routine, three-month checkup. We chatted for a while and then he brought up the subject of work. How…
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“Life is beautiful.” “The best is yet to come.” Two small plaques inscribed with these words of wisdom stared back at me as I sat in a cubicle waiting for the technician to come and get me. I was booked to have a mammogram and an ultrasound.
I watched “Harry Potter” last week for the first time. Many of the characters shared wisdom with those around them. My favorite piece of wisdom in “The Chamber of Secrets” was shared by Albus Dumbledore: “It is not our abilities that show what we truly are — it is…
We have all heard of them, and many of us, in one way or another, have encountered them. Some of us (hopefully, with regret) have been one. Who am I talking about? Bullies They intimidate us and physically hurt us. They embarrass us, taunting us with…
Living with a chronic illness can create stress, anxiety, and more. This is not only true for those with an illness, but also their caregivers — perhaps even more so. It is often up to caregivers to care for themselves, along with their loved ones who can…
The other day, my husband told me he felt alone. Then he said he felt distanced. How could that be? We are together almost every day, 24/7. But being together and being together are very different, especially when it comes to having Parkinson’s disease. This disease has many…
I read somewhere that Parkinson’s disease robs people of who they were, who they have been, and the person others have known. It affects marriages, too. I read this on the tailcoat of writing about Parkinson’s and the role it can play in the intimacy of marriage. It’s…
Sooner or later, nearly all of us make a trip to the hospital for one reason or another. Just because you are placed in the hands of a capable physician doesn’t necessarily mean you will get the best care, especially if you have Parkinson’s disease. Following are some…
This morning I read a Facebook post from a person who is in the early stages of being diagnosed with Parkinson’s disease. He listed some of his symptoms and said he was awaiting lab results. He asked whether it’s common for symptoms to differ from day to day…
I felt different. With Parkinson’s disease, that can mean many different things. I may be behind on my anti-depressant and can’t decide whether to laugh or cry. Or I’m behind on my Sinemet (carbidopa-levodopa) and feel shakier than usual. There’s no sense in listing all the ways and…
It is quiet behind our house this time of year. Not many people are using the pathway that stretches from one town to another. It is cold outside and it pierces my flesh, leaving me shivering as Ip stand and wait. In the silence, I can hear my…
When handed a diagnosis of Parkinson’s disease (PD), we accept it with a handful of pessimism. After all, when you’ve just been told you have a new life path and it’s Parkinson’s disease — when you were quite happy with the old one — it’s difficult to…
The next letter in a series on the ABCs of Parkinson’s is “N.” This is because the disease is not just about shaking. When the topic of Parkinson’s disease comes up, it’s often met with a misunderstanding of what it really is. People immediately think of someone…
I received an email from someone concerned that they may be in the beginning stages of Parkinson’s disease (PD). I have met others who have PD, but not someone in the throes of wondering if their symptoms indeed result from Parkinson’s disease. I can’t stop thinking about them…
If you asked me which symptom of Parkinson’s disease (PD) is the most annoying, I may reply, “My soft voice.” I have always had a soft voice. Perhaps I have always had Parkinson’s disease! I have had a diagnosis of the disease a much shorter amount of time…
A reader recently posed the following question: “Why are there never any comments on dementia in regards to Parkinson’s disease? It is very real, and 40 percent of Parkinson’s patients deal with it.” So, I began looking into it. My answer could have been, “Because I don’t want…
Someone once said, “Life is hard.” Someone else said, “Life is hard, and then you die.” Another said, “Life is hard, but God is good.” That’s what I’m holding on to — the belief that although life is indeed hard, God is so very good. You awake…
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