Embrace the Shake – Samantha Felder

When a person is diagnosed with Parkinson’s disease at a young age, many thoughts swirl through their head. Once the dust starts to settle, they’ll likely start thinking about their career. Will they be able to continue working? If so, how long? What will happen when they can’t? Will they…

Dear Parkinson’s disease (PD), Wow, I can’t believe that we’ve been together for nearly 10 years. Our relationship has been a roller-coaster ride, that’s for sure. We’ve had our ups and downs — well, mostly downs when you’re around. It’s time for me to take a stand and tell you…

Imagine moving to a brand-new town, thousands of miles away from anyone you know. How would you feel after a few days? Weeks? Months? The feeling of isolation that might gnaw at your heart is similar to what many of us with Parkinson’s disease experience, especially when diagnosed at a…

I would like to welcome back my dad, Craig Barbian. Since our discussion in a two-part series last June was so well received, I thought it would be a neat follow-up to have him share more of his perspective by writing today’s column. Take it away, Dad!…

Anxiety is the secret poison of Parkinson’s disease. While it is not a symptom many people associate with the condition, many of us still suffer from it. What is anxiety? Anxiety involves feelings of worry, nervousness, and unease, typically when the outcome of an event is uncertain. We all feel…

As a 31-year-old, I spend a lot of time on my phone, whether that means talking to my friends, researching something for work, or playing a mindless game. I think about the difference I could make by spending more time improving my mind and working on my health instead of…

Last in a series. Read part one. I am so honored to have my dad, Craig Barbian, join me again today to continue our discussion from last week about my journey with Parkinson’s disease (PD). Excerpts follow. SF: What is the biggest challenge of having a child with a…

First in a two-part series. With Father’s Day coming up this weekend, I decided to get my father’s thoughts on Parkinson’s disease. I would like to introduce my best friend, biggest cheerleader, and voice of reason: my dad, Craig Barbian. Technically retired and in his 60s, he works part time…

Dear new Parkinson’s patient (aka Parkie), Welcome to your new lifelong community. It’s sort of like you are marrying the disease. “Do you, new Parkinson’s patient, take this disease to be your (maybe not one and only) condition?” “Sadly, I do, until death do us part.” When you’re newly…

“O Romeo, Romeo, wherefore art thou Romeo?” I’m sure many of you recognize that quote from Shakespeare. If you don’t, no big deal, just blame it on the Parkinson’s. But how in the world does theatrical performance have anything to do with Parkinson’s? How will Shakespeare help me in my…

Q: “What instructions do they not need to put on Parkinson’s medications?” A: “Shake well before use.” Q: “How do you greet a person with Parkinson’s?” A: “What’s shakin’?” Corny, I know, but you probably cracked at least a small…

“Parkinson’s? What is that? I can’t get that, I’m too young.” When I was growing up, my parents often told me I was born in the wrong decade. I had more hair than my petite frame could handle, and it often turned into a complete frizz ball. Like my friends,…