I recently started seeing a new neurologist after the doctor I’ve had since my Parkinson’s diagnosis moved out of state. This has been a big deal for me; I even devoted a column to how much I’ll miss her. I loved my doc. She saw me through 12-plus…
The Unshakable Optimist — Mollie Lombardi
In 2013, at the age of 36, Mollie Lombardi was diagnosed with Parkinson’s disease (PD). Six years later, she underwent brain surgery to implant a deep brain stimulation device that now helps manage her symptoms. She writes about the challenges of young-onset PD, including working full time, travel, and navigating the joys of being a wife, daughter, auntie, sister, and friend. Her column, “The Unshakable Optimist,” is about not letting the tremors of life get you down and the benefits of a positive attitude when battling a chronic illness every day.
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This year, I’m celebrating Parkinson’s Awareness Month by saying, “F— Parkinson’s!” If you watch the Apple TV show “Shrinking,” you’ll get exactly what I mean. The show features a group of multigenerational friends, three of whom work together at a psychiatrist’s office. (Get it? “Shrinking?”) Harrison Ford plays…
Having a chronic illness is exhausting in so many ways. I’ve described Parkinson’s disease as being exhausted physically on a cellular level. It’s not like being tired after running a foot race or sleeping poorly the night before. On a molecular level, it’s like my cells and neurons are…
In the 12-plus years since I was diagnosed with Parkinson’s disease, I’ve become increasingly aware of how difficult the world is to navigate physically. When I started having gait and balance issues, I realized how many uneven flooring surfaces there were, all of which had become newly noticed…
When you are diagnosed with a chronic and complex disease like Parkinson’s, it can be like learning a new language. Words like “gait” (the body’s posture while walking), “dyskinesia” (uncontrolled, involuntary movements affecting the arms, legs, head, or whole body), “micrographia” (tiny handwriting), and other strange-sounding…
Songs can be a powerful trigger for memories. I can’t hear Kermit the Frog singing “Rainbow Connection” without thinking of my family and my childhood spent playing Muppets records. I hear “In Your Eyes” by Peter Gabriel, and instantly, the image of John Cusack holding a…
Developing a chronic, degenerative condition like Parkinson’s disease is a raw deal. It’s also horrible when it comes at the age of 36, as it did for me. You’re entering the prime of life and career, and BLAM! Hello, early-onset Parkinson’s disease. It’s totally unfair to young spouses…
The fear of falling is a common phobia, particularly among people over 65. Between 20%-85% of seniors have anxiety about falling, and up to half of them say the fear restricts them from their daily activities. Aging and Parkinson’s disease are risk factors for falling. And of course,…
I have always been a voracious reader. I was in love with books even before I could read them, and always wanted the grown-ups to read to me. The Mr. Men and Little Miss books were an early favorite. With titles like “Little Miss Somersault” and “Mr. Nosey,”…
Well, it was bound to happen at some point, but my neurologist is moving away, and my primary care doctor is retiring. It feels like two members of my family are leaving me, and I cried with both of them when I heard. Even though I spend only a few…
The end of the holiday season and the beginning of a new year are always a time for reflection. As the first month of the year rushes past us, I wanted to pause and highlight some unexpected gifts from this holiday season. I’m fortunate to have wonderful friends and…
I know I say it all the time, but Parkinson’s disease is just weird. It can affect you in strange ways you never imagined, like when you’re out in a crowd. When I was diagnosed, the only Parkinson’s disease symptoms I knew of were the visible ones.
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