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Family gatherings at home are often supercharged with emotion, tension, and anxiety, but I’m grateful for the time spent together. Attending these get-togethers gives us an opportunity to remember what’s most important and deepen our connections with one another.
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Every year in April, Parkinson’s Awareness Month comes and goes, and I find myself wondering if anything has changed. Did the temporary boost of attention spark change in the medical community? Did fundraising efforts make a difference in…
My experience with Parkinson’s disease was limited until my dad was diagnosed with it in 2013. A man in our church had it, and I used to notice his unsteady hand. Eventually, he stopped going to church. I remember…
When my dad, Jim, was diagnosed with Parkinson’s disease in 2013, he fought the idea of pursuing Parkinson’s-specific exercise classes and seeking out others in the Parkinson’s community. Nobody wants to admit they’re getting weaker or are in…
Over the years, I’ve found myself attracted to writing stories about the underdog. I love learning about people who come up against seemingly insurmountable odds, only to overcome them through sheer grit, ingenuity, and determination. In 2015, my…
“Mary Beth, I’ll be starting a new Parkinson’s exercise class this week,” my dad told me early one morning. Before COVID-19 hit, Dad was religiously taking Rock Steady Boxing (RSB) classes at a local facility. But the…
My little sister recently packed her bags and drove to Oregon, making my parents first-time empty nesters at their home in Michigan. The last of the flock has flown the coop, eager to explore everything that life has in…
“How’s your 2022 so far?” I text my dad a few days into January. “Not so good,” his message lights up my phone. “I think I have COVID.” At first, I think he’s joking. He’s always finding ways to…
My dad and I sat quietly in the living room one early evening. The daily hustle and bustle had died down, and we were enjoying the peace of simply existing in each other’s presence. When I’m home, I…
It’s a crisp January morning when my best friend and I ask each other about our superpowers. He tells me he’s as fast as lightning, which is funny because he’s a semi-pro ultra runner. I think he must…
Most of us have heard about the power of gratitude. According to research, expressing a sense of gratitude can contribute to stronger relationships and heightened levels of happiness. And those who regularly express it are more likely to…
“Mary Beth, you should write a piece about night terrors.” My dad’s text lit up my phone one morning. “Why do you feel that way? Is that something you’re struggling with?” I responded. My dad went on to explain…
Christmas is just around the corner, and I’ve started thinking about gift ideas for people with Parkinson’s, particularly my dad, who is pretty practical. He usually prefers tools to knickknacks or sentimental items. He tells me to get him…
As a moderator for the Parkinson’s News Today Forums, I recently posed a question that’s received several surprising responses. I asked our forum members about their greatest challenge as a caregiver for someone with Parkinson’s disease (PD).
I’m always on the hunt for different ways to find relief and even joy from what seems to be constant loss. Since my father’s Parkinson’s diagnosis, I have turned to reading books about the disease to see how…
Many Parkinson’s caregivers report seeing changes to their loved ones as the disease progresses. Some people experience more irritability. Others might see apathy. Maybe it’s just that there’s been a subtle adaptation to how they experience the world.
Visit the Parkinson’s News Today forums to connect with others in the Parkinson’s community.
Visit the Parkinson’s News Today forums to connect with others in the Parkinson’s community.
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