Shaking Things Up
— Mary Beth Skylis

The sun peeks over the horizon, and before long Dad is up and at it. It’s a boxing day, and he wants to time his medications to optimize control over his Parkinson’s symptoms. The other part of his…

Parkinson’s disease introduces challenges into your daily life. Tasks that were once second nature become more complicated when you’re managing symptoms like tremors and dyskinesia. Fortunately, product designers are coming up with simple, adaptive solutions that can make…

Deep brain stimulation (DBS) can affect both cognitive and motor symptoms in Parkinson’s patients who undergo the surgery. The procedure gives hope to those who are substantially inhibited by tremors and dyskinesia — people like my dad.

At the top of a Colorado mountain, I realize that my phone has just a single bar of service. I drop to the dusty ground, frantic to contact my dad. He’s going into surgery for deep brain stimulation…

More than 10 million people are living with Parkinson’s disease around the world. While this number seems shocking, it also means that we have a lot of people fighting for change, relief, a cure, or a solution to…

I’ve always been a bookworm. From a young age, I’d collect stacks of dusty literature at the library and vanish in between the pages. Stories helped me learn about the complexities in life. I was often attracted to odysseys,…

Dad’s dyskinesia is worsening at a startling pace. When he doesn’t take his medications, he’s nearly immobile. And when he does, dyskinesia wreaks havoc on him. At a loss for options, we’ve been searching for alternative solutions to…

A proud, black piano stands in my parents’ living room. It’s the foundation of our home. From behind the sleek mahogany panels, fury, sadness, and happiness express themselves without judgment. My operatic brother sings his troubles away. My mom,…

“Freezing” is when an individual suddenly feels like they’re glued to the ground. Parkinson’s disease patients often experience freezing during the late stages of the disease. It can occur while the person is in motion or after they’ve…

I don’t remember when I started measuring my life in increments of time. But I feel the seconds slipping through my fingers. I think about using quantum mechanics to split myself in two so that I can be…

My dad is a soft-spoken soul. He observes the madness of our lives while quietly rocking in his plushy black chair. His philosophy has always been passive: Worrying doesn’t help you navigate tribulation, and aggression is destructive. So when…

When I was in high school, I followed the written journey of a classmate who was diagnosed with leukemia. Miles Levin struggled to comprehend a senseless battle through the exploration of words. He wore the armor of someone who…