I don’t think feeling like a burden is that uncommon when we’re struggling. I’ve felt this way before. Even though I needed help, I didn’t want anyone to have to adjust their lives to help me. Asking for help makes me feel like I’m taxing to those I love. And…
Shaking Things Up
— Mary Beth Skylis
Mary Beth Skylis (she/her) lives in Colorado, where she works as a full-time freelance writer. As a columnist for Backpacker Magazine and Women’s Health, she spends most of her time learning about the latest developments in the outdoor and health industries. When her dad was diagnosed with Parkinson’s disease in 2013, she began conducting research and looking for ways to share her journey. Joining Bionews was the result. Now she works as a forum moderator and continues to share monthly musings about life with Parkinson’s disease.
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A younger version of my dad lived for spontaneity. In his late teens and early 20s, he hitchhiked around the country in the spirit of adventure. One of his most significant early journeys took him from his home state of Michigan to Alaska, where he found work in a local…
The Parkinson’s diagnosis came as a shock, even for me — and I wasn’t the one receiving it. My dad received the news of his diagnosis nearly 10 years ago. Like most of my family, I remained in denial, assuming that doctors had gotten it wrong, based on my…
Family gatherings at home are often supercharged with emotion, tension, and anxiety, but I’m grateful for the time spent together. Attending these get-togethers gives us an opportunity to remember what’s most important and deepen our connections with one another. When I walked in the door of my parents’ house on…
Every year in April, Parkinson’s Awareness Month comes and goes, and I find myself wondering if anything has changed. Did the temporary boost of attention spark change in the medical community? Did fundraising efforts make a difference in our pursuit to end this disease? How might we maintain our…
My experience with Parkinson’s disease was limited until my dad was diagnosed with it in 2013. A man in our church had it, and I used to notice his unsteady hand. Eventually, he stopped going to church. I remember feeling incredibly sad about how a disease could make people retreat…
When my dad, Jim, was diagnosed with Parkinson’s disease in 2013, he fought the idea of pursuing Parkinson’s-specific exercise classes and seeking out others in the Parkinson’s community. Nobody wants to admit they’re getting weaker or are in trouble, and I think that initially, he was afraid to categorize…
Over the years, I’ve found myself attracted to writing stories about the underdog. I love learning about people who come up against seemingly insurmountable odds, only to overcome them through sheer grit, ingenuity, and determination. In 2015, my first published article was about a woman who fell 45 feet…
“Mary Beth, I’ll be starting a new Parkinson’s exercise class this week,” my dad told me early one morning. Before COVID-19 hit, Dad was religiously taking Rock Steady Boxing (RSB) classes at a local facility. But the pandemic forced that particular location to close permanently, leaving my dad…
My little sister recently packed her bags and drove to Oregon, making my parents first-time empty nesters at their home in Michigan. The last of the flock has flown the coop, eager to explore everything that life has in store for her. When our family of eight gathers, there is…
“How’s your 2022 so far?” I text my dad a few days into January. “Not so good,” his message lights up my phone. “I think I have COVID.” At first, I think he’s joking. He’s always finding ways to look on the bright side of life, and sometimes doing so…
My dad and I sat quietly in the living room one early evening. The daily hustle and bustle had died down, and we were enjoying the peace of simply existing in each other’s presence. When I’m home, I like to mull over existential questions. I want to know what…
It’s a crisp January morning when my best friend and I ask each other about our superpowers. He tells me he’s as fast as lightning, which is funny because he’s a semi-pro ultra runner. I think he must be in the top 10% of speedy athletes. I slide my…
Most of us have heard about the power of gratitude. According to research, expressing a sense of gratitude can contribute to stronger relationships and heightened levels of happiness. And those who regularly express it are more likely to be optimistic about life than those who don’t. While many of…
“Mary Beth, you should write a piece about night terrors.” My dad’s text lit up my phone one morning. “Why do you feel that way? Is that something you’re struggling with?” I responded. My dad went on to explain that he’d had a few incidents where he woke up in…
Christmas is just around the corner, and I’ve started thinking about gift ideas for people with Parkinson’s, particularly my dad, who is pretty practical. He usually prefers tools to knickknacks or sentimental items. He tells me to get him socks and Channellocks, which I’m happy to do. But I also…
As a moderator for the Parkinson’s News Today Forums, I recently posed a question that’s received several surprising responses. I asked our forum members about their greatest challenge as a caregiver for someone with Parkinson’s disease (PD). I had imagined they might cite medication management, doctor appointments,…
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