There are days when it feels like we are surrounded by darkness. We live with so many unanswered questions about this illness that it can frustrate us. We often are surprised by so many twists and turns. Sometimes we forget that we must endure and do battle with the…
Last week, I attended my boxing class. Temperatures were in the high 80s, and we knew we’d be sweating profusely by the end of the session. As we prepared for class, one member who wore shorts commented to another wearing pants, “You’re going to be hot with those pants…
Restless legs syndrome (RLS) is common in Parkinson’s disease (PD). So, too, is restlessness. However, the two symptoms are not the same. When you experience both, and add discomfort to the equation, you have a very uncomfortable person dealing with PD. I can relate so well. I have walked…
My youngest grandson is 4. He loves to do whatever we’re doing, whether it’s cooking with Grandpa, changing the oil in his dad’s truck, or planting seeds in the garden with me, Grammy. When he comes into the house, he almost immediately climbs onto the bar stool, ready to…
I was reading through some forums for Parkinson’s disease recently and came across one that was talking about stress. I am a fairly calm, even-keeled person who handles stress pretty well. I thought so anyhow. The woman who brought up the topic of stress said she had felt like her…
I have been reading a book by disability advocate Joni Eareckson Tada. One part in particular had me mulling over it for days. In her book, Joni tells a story about a time when her team went to Uganda to deliver wheelchairs to those in need. A man named…
Two words are often confused with each other in the English language: empathy and apathy. Not only are their meanings different, but they are also quite at opposition with each other. Both terms, however, can relate to Parkinson’s disease. Empathy deals with being able to understand the thoughts…
I will never again underestimate the strength of a McDonald’s paper cup — or my Rock Steady Boxing class. The other day, I took my grandson to his favorite playground: McDonald’s. A friend was meeting us there with her grandson. By the time she arrived, the place was…
I had breakfast with some friends today. One I hadn’t seen for six months and another for 10 years. Both of them are forever kind of friends, the sort who overlook your flaws. Flaws like Parkinson’s disease (PD). It is rare for me to have tremors with all of…
I lie in bed at night, my left hand under my head. In this position, I can hear the ticking of my watch. Each beat reminds me that another moment no longer exists. I am one second farther from yesterday and one second closer to tomorrow. About two years ago,…
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