[Beth T Browne]

I take that medication, 5m, nightly to help me sleep. I also take 1/2 in the morning for my anxiety. I have had no problems.

[Beth T Browne]

I am presently dealing with such issues.  The doctor did recommend Botox but I declined.  It doesn’t last a long time.  I wanted the new pill they now have for this problem that I tried that was great.  However, it costs 247.+ for 30 days.  I said I could not afford that.  She asked if I could afford $100 for 30 days, and I said no.  I am 86 with a number of serious health issues and too many prescriptions.  She gave me two other options.  One involved an implant procedure and I said no.   Therapy which I had in San Diego approximately 10 yrs ago, or maybe 15.  You go in once a week and they do percutaneous Tibial Nerve Stimulation(PTNS) for 30 min.  That was not painful and I had no side effects.  So, I will try it again.

[Beth T Browne]

I have Alexa. She reminds me to turn the sound back on in my iPhone every morning. She also reminds me to take my pills. She reminds me of appointments.
Love her.

[Beth T Browne]

This past week has been interesting.  I continue to have high blood pressure even with a BP patch.  Then I see my Parkinson doctor and she explained I was having high anxiety.  My breathing was not normal, and I was a mess.

I am going in to my heart doctor’s tomorrow to see what is going on.  I had to start the anxiety medicine with tiny pieces, as I have issues w/a lot of drugs.  Not sure if I am better as my breathing is still not quite right but some better.

[Beth T Browne]

I conquered constipation when my daughter got me on Juice Plus. It is veggies and fruit,which I needed anyway,as I don’t eat well due to Los of taste.

She went to a training class with Dr. Sears, a retired, well known doctor who invented Juice Plus a while back. They work well and keep me daily.

If you want more info, let me know and I will send you info how to get in touch for more info. Our entire family, my son and his wife, grandson, etc. and friends take them. Aside from helping with constipation, you are getting veggie and fruit you may need. They come in pill or gummie from.

[Beth T Browne]

I conquered constipation when my daughter got me on Juice Plus. It is veggies and fruit,which I needed anyway,as I don’t eat well due to Los of taste.

She went to a training class with Dr. Sears, a retired, well known doctor who invented Juice Plus a while back. They work well and keep me daily.

If you want more info, let me know and I will send you info how to get in touch for more info. Our entire family, my son and his wife, grandson, etc. and friends take them. Aside from helping with constipation, you are getting veggie and fruit you may need. They come in pill or gummie from.

[Beth T Browne]

I had constipation problems,but do not now. I am on Juice Plus gummies (but they have pills). I take 2 of the fruit and 2 of the vegetables daily. They were initially made by a doctor and are not sold in stores. I have been on them for three yrs and I am so grateful they have helped.

[Beth T Browne]

Hi. I had a mild heart attack end of July. Was only in the hospital 2 days. My heart doctor said my leaky heart valve was not the cause, but my primary, who was a heart doctor in Germany at one time, thought it was. I under went a procedure with the heart doctor so he could check some thing. Then a short time later, I was accepted at Cedar Sinai to be tested to see if I qualified for a new valve. It would be with a valve not yet approved by the FDA, but a lot of testing has been done. They decided I didn’t need it. I had two false alarm heart attacks before I went for this. I was wondering if PD had anything to do with that. I occasionally have had a chest pain but it didn’t last long. PD affects so many things. I thought I had a UTI a year ago. All the symptoms, but test showed negative.

[Beth T Browne]

I wish my son and daughter understand. They are both very good to me in many way. My son lives in WA and my daughter about 20 minutes away.

This year, I have seen my son once when he was here to attend a special show in La Jolla. He did spend time with me most of the time and we even went to the show with him.

What I am experiencing from him is that he doesn’t appear to acknowledge at any time, I have Parkinson. He doesn’t ask any question either by email, which I hear from him daily, or by phone, or when in person. It strikes me that he thinks I am the same person with no disabilities. I am aware he does not handle sickness with anyone well. He doesn’t like talking about it, or communicating about it. I try to be understanding about this, and I pass doctor info through emails. If the report is good, he acknowledges it, but if isn’t good, I get “I am sorry.” He doesn’t want to hear details.

My daughter, teaches part time. She never calls to say hi mom, how are you today. But lately I had a painful UTI, and told only her via email. She responded with I am sorry, and the next day with how are you. She was with me when I was diagnosed 4 yrs ago, and never said a word when we left or even later. I never got a hug. I am wondering what I did in raising them that seems to be so difficult for them to acknowledge me and my issues. They are successful adults, 63 and 64. Healthy, I might add. I think for my son that he just not deal with sickness well, but my daughter, I don’t think that is the problem. Even my adult grandchildren never call to say sorry to hear about your Parkison’s. Am I being too sensitive? Perhaps, but nevertheless it hurts.

[Beth T Browne]

Me again. Still struggling with sleep. I have seen three Movement doctors and none have helped with sleep. They don’t want to give you anything.

For me, with bad allergies and lung issues, I desperately need sleep. So frustrating. \

I have tried so many things I see on Facebook to no avail. Money wasted.

[Beth T Browne]

Sleep and the tremors in my arthritic hands that are bent out of shape making cooking and other things very difficult. Also, sometimes, fatigue.

[Beth T Browne]

Hi Daniel. Your wife is lucky to have you. I have been alone a very long time, so I am pretty good at managing, even with Parkinson, so far.

I have an Apple Watch which I got about 2 yrs ago. It does detect falls, and is much better for me then those things around you neck you pay for forever. It also tells me when my pulse is over 100, as I have a leaky heart valve. I love my watch.

I have high blood pressure so fainting has not been a problem for me but once three years ago. I was standing at home over my Ipad and laid down quickly. I did not know I had Parkinson at that time. My heart doctor thought it was my heart, but we now believe it was PD. Back then both my heart doctor and my PD doctor said to eat a little more salt to keep the pressure up. I have not had to do that since my blood pressure is generally all over the board. I do take meds for it, and he doesn’t want to increase them for fear I will pass out. That is all I have to share at this time. I do hope your wife can find a solution that works for her.

[Beth T Browne]

I go a lot in the morning, but it is a little better in the afternoon.  I attribute it to the fact I have Stage 3 kidney disease and must drink at least 3 bottles of water a day, plus coffee, tea, ginger ale.  I got Stage 3 kidney disease because I was not drinking enough water.  I am petite and weigh 93 lbs.  Never liked water, so did not drink a lot.  Apparently as I have aged, I need more.  I get blood draws for the doctor usually twice a year, as I have been doing well in that area.  So, maybe because I have to drink so much is why I go so much. Ha, ha.

I have pretty much cured my constipation issue.  I started taking the Juice Plus veggies and fruits about 3 yrs ago.  Since I don’t eat like I use too, I was not getting enough of these items.  It has worked wonders for me.  I also include a prune with these.

[Beth T Browne]

I have had Parkinson for 4 years. I have tremors and sleep issues the most. Balance is not real bad. I have lost my sense of taste, and it has caused me to not eat much. I am petite, and I only weigh 93 pounds. I lost 5 pounds when on the Leva/Dopa for two weeks. So nauseous I could not eat.

I also have a leaky heart valve. I have daily problems with blood pressure even thought I am on medication. I also have a partial collapsed lung, and a Bronchiectasis mass on another from constant sickness in my 80’s and part of 90’s.

I was told a month ago I need a shoulder replacement. I have bone rubbing bone on my left arm. But, I am just going to have the cortisone shots. Too old for to go through that and more pain. My osteoarthritis has cause my fingers to go different directions and pain at times in neck and back.

I live alone. My daughter is about 20 min away, but she is busy with teaching, husband, and sometimes helping her daughter is diabetes 1 and has something going on with one arm no doctor has been able to diagnose. She lives with her fiancé but sometimes has her mom go with her to new doctors. If I need my daughter, she will come. I still grocery shop, drive to the doctor’s, and light house cleaning. I have someone come once a month to do the heavy stuff, and my son and daughter pay for that for me.

[Beth T Browne]

I was taking Melatonin, 3mg every day for years and it did nothing to help sleep.

My tremors do not bother me when sleeping. Just during the day. This week I started taking my Magnesium Glycinate120mg 30 min before sleep. I take it and Melatonin IR/X immediate and extended Release same time. I have sleep long when I do this. I take Pure brand of mag, as I was told it was the best. But it is expensive. If it works, I don’t mind paying.

[Beth T Browne]

I live in Orange County California.  They provide a service to take you to doctors in the area.  It is called Age Well.  It only cost $3 one way.  So a round trip would be. $6.  I have taken it twice, and love it.  I still drive, but a couple of doctors are far from me, and I try to avoid freeways.

[Beth T Browne]

Starting a year after my breast cancer, I signed up at 24 Hour Fitness. Went three days a week, working out 1-1/2 hours with weights and treadmill. Did not miss much during the 20 years I went. I stopped the gym at 74 due to bad osteoarthritis, and then just walked.

Since my PD diagnosis I have used the treadmill in our workout place, but not faithfully. When management at my 55+ apartment started exercise classes, I joined right away. That was last Oct. I can’t take the LevaDopa stuff, so I was hoping I could get some Dopamine in my brain working out.

It has been almost 3 yrs now, and I have not progressed very much. However, in April I got Bronchiectasis and was sick most of April, not being able to exercise. Much better this May, but still not 100%. Then I was diagnosed with needing a shoulder replacement due to Osteoarthritis and I could not raise my left arm with hearing bone on bone, so I have not gone back for almost 2 months now. I am feeling tired often, bored, not motivated since I am not exercising. Allergies where I live have caused my lungs to get very sick. But I am happy here and not moving. It is quiet and peaceful.

Two doctors have said my 20 yrs of working out is still with me today and that is why I am so agile. I can dance, and move without pain, so I am fortunate.

If you don’t do anything for yourself, start exercising if you are not doing so now. It is far better then any medicine, I believe.

[Beth T Browne]

Shawn. Just read your story. Amazing. I am 87 this month. Diagnosed in June of 2020. I have tremors in right hand that come and go. I live alone. Sleep and not caring about eating have been a big problem. I do not take any of the drugs recommended for Parkinson. My walk is not what it use to be, but I do not use a cane, etc. I have lost short term memory. Most people do not know I have Parkinson, but I know. I take Juice Plus that works for any constipation.

I have been taking Dopa Mucuna since 2020. Two tablets daily, 920 mg. Is this similar to the Mucuna you take? I have been taking 500mg of B1. I read on one of the sites two guys taking this and they sore it helped a lot. I have not read or heard about B3. How much of that do you take? I have no idea with those other items you are taking. Are they pills?

Does Dr. Oler take insurance or just cash?

I appreciate your response, and I am so thrilled for you and thank you so much for posting this information.

Beth T Browne

[Beth T Browne]

Is Rytary high in cost where you are or what insurance you have?  Even with one of the discount cards it is still in the $300’s.  It is the only thing that doesn’t cause nausea.  I lost 5 pounds and I only weighted 98.  Now 93 and can’t gain.  So I have not been taking anything, and my doctor said if I feel better without meds, she is fine w/that.

[Beth T Browne]

Anita, does it just help tremors? Do you have any other PD symptoms like sleep, balance? Thanks. Beth

[Beth T Browne]

Are there movement doctors also? With Parkinson, you should be seeing a movement doctor but he can be a neurologist also.

[Beth T Browne]

Katherine.  I am confused as to what SL B-12, is.

I get B12 in with other B vitamins, and that amount is only 300mg.

So you take two different forms of B12 that you get OTC?

Does this help your tremors?

Thank you.

Beth

 

 

[Beth T Browne]

Most cities of any good size usually have a government transportation service for the elderly.  Mine is call Age Well.  Perhaps if you made contact with one of the services that help us elderly, they can tell you.  My daughter found Age Well on line.  $3 one way going and $3 to get back home is very inexpensive.  They only take you to doctors with in certain areas.  However, Orange County is pretty good size.  So, it covers all my doctors.

[Beth T Browne]

I still can drive.  I live alone, so am not looking forward to not be able to drive.  My car may give out before me.