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Alan M

Home Members Alan M
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Profile picture of Alan M

@pakehamack

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  • Profile picture of Alan M

    Alan M replied to the topic Music and fine motor skills in the forum Parkinson's Disease alternative treatments 1 week, 1 day ago

    Hi hi Wobblygirl,

    Like you, I’m tying to learn an new instrument (badly) — the Scottish small pipes.  I’ve got no one to hide behind.  It’s an instrument that sounds good alongside a fiddle, or guitar, mandolin, or button accordion.  But I live in an area of NZ where traditional musicians are scarce.

    My instrument is bellows-driven — and si…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic What are your favorite TV shows or movies? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 weeks, 1 day ago

    Hey Mary Beth:

    Only tele I will watch is Al Jazeera News and ABC News — and “Two-&-a-Half-Men”.

    We tend to watch NetFlix and Neon more… series like:  OutLander, The Vikings, Vikings Valhalla, The Great, Shameless, GoT, Jamestown, The Matrix Trilogy, The Handmaid’s Tales, Sex Education, and the Start Trek series.

    Don’t recall watching too…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 3 weeks, 1 day ago

    Sorry for the delay in responding, Mary Beth.  I play the Scottish smallpipes — requiring both hands to play the melody (on a chanter that resembles a recorder kids play in school), but it also requires a vigorous right elbow/arm to drive the bellows to keep the three drones alive.

    I see a metaphor between playing this instrument and staying th…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 3 weeks, 1 day ago

    That’s brilliant John.  I never imagined these benefits playing keyboard!  Neurologically speaking, I guess using both hemispheres of our brain while playing has some definite cognitive benefits.  And then there’s the whipped cream atop — the Dp produced while listening to ourselves succeed in playing.  No downside.

    I play the Scottish sma…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Are you able to sleep through the night? in the forum Parkinson's Disease Symptoms 4 weeks ago

    Hey  Kim:  I suffer similar sleeping disruptions.  My G/P prescribed Circaden (Melatonin, 2 mg/d) but even this doesn’t let me get a good rest.  Have you tried anything else?

    I’ve struggled with sleep aponea since 2008.  CPAP use has become part of my life since then.  It helps but not enough.

  • Profile picture of Alan M

    Alan M replied to the topic Has Parkinson's changed the way you experience the world? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month ago

    Mary Beth, truth is, I’m on the Autistic Spectrum (ASpie).  We’re always told by NT’s that PwA were never known to be empathic.  Maybe I (along with many other Spectrumites) are exceptions to the rule — what do you reckon?

    Alan

  • Profile picture of Alan M

    Alan M replied to the topic What kind of a role does music play in your life? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month ago

    <p style=”text-align: center;”>A life without music is an error.</p>
    <p style=”text-align: center;”>Friedrich Nietzsche</p>
    Music is the only modality that allows the soul to soar.

    I cannot imagine my life without music in it.  Most definitely, playing music (on the Scottish smallpipes), listening to all flavors of Celtic music, and singing…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Were you exposed to toxins during your life? in the forum Living ​With​ ​Parkinson's Disease 1 month, 3 weeks ago

    Hi Mary Beth:

    I worked in a roo skin factory in Narangba, Australia for one year — handling stains, thinners, and treated (tanned) roo skins for overseas markets.  They make gloves, hats, purses, wallets, etc. out of this product.   Carcinogenic, possibly.  Maybe even related to my PD.

  • Profile picture of Alan M

    Alan M replied to the topic Are you interested in sharing your story? in the forum Living ​With​ ​Parkinson's Disease 1 month, 3 weeks ago

    Hi Ally:

    We humans are funny creatures — in  that we are storied peeps.  Our entire lives can often be viewed as a story.

    I feel honoured that anyone would want to read my “story of PD”; truthfully I feel almost obliged to do this, as a therapist who has been recently diagnosed with PD.

    Simply advise how we join your que and I’ll cooperate, O…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Are you able to sleep through the night? in the forum Parkinson's Disease Symptoms 1 month, 3 weeks ago

    I’m 110% convinced my poor sleep health has to do with my 16 year battle wit sleep aponea and more so lately with a sleep condition called REM-SBD directly linked to my PD.  My hand tremors also contribute to early morning disturbances that wakes me up as well.  I tried taking Circadin (melatonin) long release tabs every night but found their e…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Reflecting back on the last two years in the forum Living ​With​ ​Parkinson's Disease 2 months, 2 weeks ago

    I bloody hope the end is nigh!  With the Climate Crisis and Putin’s War looming, COVID has become a minor irritant lately.  Anyone else feel like this?

  • Profile picture of Alan M

    Alan M replied to the topic Has Parkinson's changed the way you experience the world? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 2 weeks ago

    Hi Mary Beth:  Your dad sounds  like an extraordinary bloke!  I wish I were more like him.  What I have noticed is:

    • I cry at the drop of a hat.  The ABC News cast showed this wee one in the Ukraine being led by the hand amidst all the current turmoil of impending war.  Her tears absolutely crushed my heart.  I wept for her.  Years ago this wo…

    [Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Temporary Weakness After Exercise in the forum Parkinson's Disease and exercise 3 months ago

    As a matter of fact, I have this same experience, Bruce.  I purchased a treadmill last September and started in earnest.  But after a couple of months of treading, I noticed a similar response, that I termed “weak in the knees”.   Both my knees were operated on (due to my earlier career ‘bush bashing’) so I attributed this noticeable weakening to…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Thigh pains. in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 3 months, 3 weeks ago

    Sounds amazing, Leslie!  Wish we had a Stretch Zone practice here in NP.  I’m strictly using Paracetamol to fight my thigh pain.

  • Profile picture of Alan M

    Alan M replied to the topic Thigh pains. in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 3 months, 3 weeks ago

    No truer words have been spoken, Bari!  Having a supportive partner involved in one’s progression and treatment is a Godsend.  Especially if MT/RT help isn’t that readily available.

  • Profile picture of Alan M

    Alan M replied to the topic How do you minimize the stress in your life? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 1 week ago

    I can really relate to many of your stressors, Garrett.  I’ve been a therapist for the past 15 years… which took me into tutoring at a local college and many sessions of Psyc Ed.  I can’t do these things as well anymore.  But I have  little choice, really.  I’m glad to see you have options — like retiring.  I’m  66 and have three teenage…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Has a pet dog, cat (fill in the blank) helped you in dealing with PD? in the forum Living ​With​ ​Parkinson's Disease 4 months, 1 week ago

    I luv the story about Budgie.  Sounds like a kewl pet, Jean!  When he thumps his hind leg is Budgie sort of like a “mood barometer” for you?  Is he telling you he’s upset because you’re upset?  Any thoughts?

  • Profile picture of Alan M

    Alan M replied to the topic How do you manage freezing episodes? in the forum Parkinson's Disease Symptoms 4 months, 1 week ago

    Can I pose a question to all?  For those one out of three PD peeps that developed freezing, how long after diagnosis (or self discovery) did this issue begin for you?

  • Profile picture of Alan M

    Alan M replied to the topic How do you manage freezing episodes? in the forum Parkinson's Disease Symptoms 4 months, 1 week ago

    RJ, your vids were choice!  Thanks for these excellent watches!

  • Profile picture of Alan M

    Alan M replied to the topic How were the holidays? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 2 weeks ago

    It was so damn good, any better and I couldn’t stand it!  Did very little except eat (too much), sleep (more than usual), and spent the rest of the dayz with my loved ones.  Stupendous!

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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