Parkinson's News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Alan M

Home Members Alan M
show less show more
Profile picture of Alan M

@pakehamack

  • Activity
  • Profile
  • Friends 6
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Alan M

    Alan M replied to the topic How did you meet your best friend? in the forum Living ​With​ ​Parkinson's Disease 1 month, 1 week ago

    Went to H/S with me best mate… we graduated in 1973.  He and I have known each other for a half century this year – and I consider myself to be one of the luckiest blokes on the planet to know him.  We nearly lost him to cancer in the late 1990’s, but he pulled through and continued to bless the lives of everyone who knows him.

  • Profile picture of Alan M

    Alan M replied to the topic How Often Do You See Your Neurologist? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 1 week ago

    My neurologist lives in Auckland, 5 hours away from NP.  He avails himself every 6-9 mos. on average.  I receive a letter from him summarizing the hui within 2-3 weeks after our appointment.

  • Profile picture of Alan M

    Alan M replied to the topic What PD symptom impacts your quality of life most? in the forum Parkinson's Disease Symptoms 1 month, 3 weeks ago

    You sound like you’ve licked the worst symptoms, Manuel!  Well done, matey!  I think ou will never regret listening to your clever GP.

  • Profile picture of Alan M

    Alan M replied to the topic What PD symptom impacts your quality of life most? in the forum Parkinson's Disease Symptoms 1 month, 3 weeks ago

    I can totally relate, Jo.  I had to stop working (retire) to deal with my RBD-related symptomology.  It seems to affect much of my abilities to “do life”.  I wish I could get on top of it, but most things I’ve tried (magnesium, melatonin, Sinemet timing, Vit. B 1) haven’t helped me much.

    But I shan’t give in.  I’ll beat this somehow…

  • Profile picture of Alan M

    Alan M replied to the topic What PD symptom impacts your quality of life most? in the forum Parkinson's Disease Symptoms 1 month, 3 weeks ago

    I wish I had but one primary symptom to elude to…  I guess mine fall under a cluster of related symptomology(s) of cognitive impact.  Mostly RBD-related, memory falters (why did I come into this room?), failing spatial perception, loss of tactile abilities (i.e. dropsies) and tracking effective human communication (i.e. my partner speaks to me i…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Do you have any goals or resolutions for 2023? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 3 weeks ago

    My goals:
    1. Get over/around/under/past some “brick walls” with my family tree (genealogy).
    2. Learn to play a few tunes on me SSP’s (Scottish small pipes).
    3. Increase my amount I exercise each week.
    4. Try to get on top of this wretched REM-SBD

  • Profile picture of Alan M

    Alan M replied to the topic Do you struggle with sleep disturbances? in the forum Parkinson's Disease Symptoms 1 month, 4 weeks ago

    Hey Barbara F… thanks for your informative forum post.  My RBD journey has prompted acting out behaviors like thrashing my limbs about, resembling a carp on a hot sidewalk, shouting out, punching, kicking, and rolling violently out of my bed.

    I’ve been lucky not to injure myself, but my spouse has run for the hills at bedtime.

    You mention the…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Are you working with any alternative health care practitioners? in the forum Parkinson's Disease alternative treatments 2 months ago

    Can anyone recommend some pertinent literature that would allow a DOPE (amine addict, LOL) like me to catch up on what appears to be a recent pharmacotherapeutic treatment for PwP?  I live in NZ and my neurologist offers little info to his patients, unless yo are able to question directly.  Thanks Ally.

  • Profile picture of Alan M

    Alan M replied to the topic Are you working with any alternative health care practitioners? in the forum Parkinson's Disease alternative treatments 2 months ago

    Hey Sharon… thanks for sharing your experiences with us.  How did you decide to start visiting this particular practitioner?  Did they mention whether their treatment involved the BIG programme to you?  I very curious about the “cross over” exercises they suggest.  Left foot, right hand, then switch.  Eye movement exercises.  Does your treat…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Sex and intimacy with Parkinsons? in the forum Living ​With​ ​Parkinson's Disease 2 months, 3 weeks ago

    To Toni and JB,

    Allow me first to express my gratitude for your bravery and openness in broaching this sensitive topic!  Most peeps avoid it like the plague.  As a former therapist, I found clients shy away from sexuality as a theme, unless you happen to be a practicing sex therapist.

    I’m 67 years young and am still very sexually active.  Ho…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Happy New Year! in the forum Living ​With​ ​Parkinson's Disease 2 months, 3 weeks ago

    Happy Hogmanay, Ally.  If you share your birthdate with us, we’ll be sure to wish you many happy returns, OK?

    I know this is a bit late for Xmas greetings, but I got a FitBit for a gift.  I tried it out on both my dominant and non-dom wrist.  It does not record my sleeping patterns (which is one of the main reasons why I put the gadget on me Sa…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic How can we make improvements to the forums? in the forum Using our forums 3 months ago

    To Ally and Mary Beth:

    I want to encourage you both in the ways you’ve chosen to get responses and involvement by your readership.  As a group facilitator for many years, I found the best way to solicit feedback is to “prime the pump” with great “noticings” you both may have had (and continue to have).

    Mary Beth, your dad’s experiences have…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Driving with PD (DWPD) in the forum Living ​With​ ​Parkinson's Disease 3 months, 3 weeks ago

    Kia Ora Sherman & Tony:

    My 20 year old son made me more aware of my driving limitations lately.  I totally agree with the feelings you’ve both expressed, and the changes necessary to make in order to protect others (even the public at large).  Like Ross, for me driving at night or when I’m extremely fatigued is tapu.  This seems more of an is…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic How do you manage fatigue? in the forum Parkinson's Disease Symptoms 5 months ago

    Wow Richard!  Reading your latest post is like taking a page out of my daily diary!

    Like you, I struggle with fatigue and apathy.  I seem to need a mid-day rest every day now and sometimes I might nap twice in one day — depending on how I cope (or not cope) with what’s going on around me.

    The apathy robs me of desire to perform exercises or p…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic What do you think is at the root of your Parkinson's diagnosis? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 1 week ago

    T’is true Ally.  Some have noticed this allergic connection as early as 2018.  See https://parkinsonsnewstoday.com/news/migraines-ocd-seasonal-allergies-may-be-risk-factors-for-parkinsons-large-study-suggests/

    It also occurred to  me that maybe, in a similar way, PD is somehow linked to inflammatory response as a result of exposure to harmful pa…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic What do you think is at the root of your Parkinson's diagnosis? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 1 week ago

    Like Ken intimated earlier, I believe PD is triggered by both genetic and epigenetic causal factors.

    GENETIC CONTRIBUTORS

    On my maternal side, two of my mother’s sisters succumbed to PD.  One is still with us.  Nothing on my father’s side, except a prevalence of alcoholism and Alzheimer’s.

    I can’t help but wonder if dementia-like diseases a…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic How do you manage your Parkinson's at work? in the forum Living ​With​ ​Parkinson's Disease 7 months, 3 weeks ago

    Ally,
    Like Judy’s hubby, I’m in my late 60’s and have made the difficult decision to “hang up my spurs” this December.
    I went from working 5 days per week to three days/wk — and I’m hoping I can keep busy enough to allow me to retire fully doing all the things I enjoy (not that I never enjoyed being a therapist).

    I hope I can spend the rest of…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Do you have any pets? in the forum Living ​With​ ​Parkinson's Disease 7 months, 3 weeks ago

    Hey Ally:

    My three sons have three cats — in order of age —- Lucy (13), Nermal (11) and Mittens (6)
    Their parents feed them daily, let then sleep on their bed, take them to the Vet when necessary, and ensure they are safe and well cared for.

    Wish I were a cat in our family.

  • Profile picture of Alan M

    Alan M replied to the topic Excessive Daytime Sleepiness? in the forum Living ​With​ ​Parkinson's Disease 8 months, 2 weeks ago

    DREM is the bane of my existence at the moment.  I seem to need to take an afternoon siesta daily as a result.  One hour’s rest does me.  But I’m ready for bed by 9:30 – 10:00 pm and can’t seem to wake up until 9:00 am.  The Neurologist prescribed me Clonazepam to be taken just before bedtime.  I heard that due to its highly addictive char…[Read more]

  • Profile picture of Alan M

    Alan M replied to the topic Have you lost motivation since the diagnosis? in the forum Parkinson's Disease Symptoms 8 months, 4 weeks ago

    In  Scotland, my hied says “go Central, old man” (to the Central Highlands, from Speyside to the north, to Dundee, Perth and the south end of Lock Lomond to the south).

    I’d love to tour all of New Zealand.  Monies and time will dictate how much of it I can truly travel to.  A train journey from north tip of the N Island (at Cape Reinga) to the so…[Read more]

  • Load More
Profile Photo RDB

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Do you consider yourself to be athletic? by Ally
  • Do you think there’s a correlation between gut health and Parkinson’s disease? by Mary Beth Skylis
  • Super Bowl or Oscars? by Ally
  • Do you do anything to “retrain” your brain? by Mary Beth Skylis
  • How do you feel about Telehealth appointments? by Mary Beth Skylis

Recent Replies

  • How do you feel about Telehealth appointments?
  • Do you consider yourself to be athletic?
  • Do you consider yourself to be athletic?
  • Are you still wearing a mask?
  • Do you think there’s a correlation between gut health and Parkinson’s disease?

Members

Newest | Active | Popular
  • Profile picture of Scottie Hexter
    Scottie Hexter
    Active 6 hours, 22 minutes ago
  • Profile picture of Patricia B Wargo
    Patricia B Wargo
    Active 11 hours, 51 minutes ago
  • Profile picture of Krukar
    Krukar
    Active 13 hours, 29 minutes ago
  • Profile picture of Deborah
    Deborah
    Active 17 hours, 50 minutes ago
  • Profile picture of Jeffery Hill
    Jeffery Hill
    Active 20 hours, 58 minutes ago

Forums

  • 30 Days of Parkinson’s
  • Coronavirus (COVID-19) and Parkinson’s
  • A​ ​Forum​ ​for​ ​Parkinson’s Disease ​Caregivers​
  • Flash Briefings and Podcasts
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Living ​With​ ​Parkinson’s Disease
  • Parkinson’s Disease Symptoms
  • Parkinson’s Disease alternative treatments
  • Parkinson’s Research News
  • Parkinson’s Disease Medications
  • Parkinson’s Disease and exercise
  • Parkinson’s Disease Awareness and Advocacy
  • Using our forums
  • Most popular topics
  • Topics with no replies

Parkinson’s News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Disable Notifications
  • Advertising Policy

Disclaimer:

Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen