Alan M

Fredrich Nietzsche is quoted as saying, “Without music, life would be a mistake“.

I concur when it comes to living with PD as well. Without music (to listen to, to play on me SSP’s, etc.) my life would no doubt seem less tenable. I used to sing in two male choirs before my health started to flag. Now my vice modulation suffers, and I struggle…[Read more]

My post is appealing to the armchair Neurologists in our midst.

I’m aware that REM sleep helps us to “reconstitute” our emotional experiences while we sleep. It constitutes from 18% to 33% of an average 8-hour rest, the bulk being experienced in the latter 4 hours. It is related directly to the Amygdala, which maintain direct connections to the…[Read more]

Thanks for your informative response, Dex.  I’m a neophyte on tis journey.  There’s so much to learn / consider.  Sorry to here you struggle with REM-SBD.  It sucks.  It has literally changed my marriage.

I believe I’ve had prodromal PD since 2015.  But I wasn’t formally diagnosed until March 2021.  I noticed my work stressors made life untenable at times.  More from a cognitive aspect than from tremors.

I wish I could retire.  But that’s not plausible.  I think if, like you intimate Jeffrey, were I to throw myself more into physical exer…[Read more]

Hey Fran… can I ask you something?

Dr. Hadlock is quoted as saying, ” Most western-medicine research has consistently ignored the brain scan data showing elevated dopamine levels in certain areas of the brain in people with Parkinson’s, possibly because it conflicts with the long-disproved 1960s theory of “dead dopamine cells” and with the P…[Read more]

REM-RBD and cognitive decline (S/T memory loss) — the latter makes my work even trickier.

In Aotearoa — otherwise known as New Zealand. North Island, Taranaki Region, in the gorgeous city of New Plymouth.

I have a friend in Canada who claims she might have ‘contracted’  PD via chronic Lyme Disease.  I had never even heard  of this before she mentioned it to me…

Kia Ora, Rob:

My neurologist called what I have REM-SBD sleep disorder, rapid eye movement.  I only wish I could reduce the intensity and activity in my dream life.  I’ve treated sleep apnea using a CPAP machine for the past 15 years.  Maybe that’s when prodromal PD started for me?

I had two aunts on my mother’s side diagnosed with PD.  Is gen…[Read more]

My neurologist suggested I might be struggling with REM Sleep disorder.  I act out when sleeping.  I don’t have RLS but I’ve used a CPAP machine for the past 15 years for my sleep aponea.  I guess maybe that might be when my PD was in it’s earliest stages.

I am knackered by 9:00pm every night.  But if I awake to go to the loo in the middle of the…[Read more]

I hope the News Forum allows me to post this time.  I tried to post a reply on Mary Beth’s “Stress” query but the URL said it could not post it at this time???

I hope you don’t mind me sharing a story about music and my journey with PD.  And I trust my droning on & on doesn’t bore you too much.  I fancy mesell a crazed Scotsman.  I’ve always lo…[Read more]

Mary Beth — you always ask the most insightful questions!!  Indeed… I have notice my stress levels elevating.  I’ve often asked myself if I just notice them more — or if it indeed a true elevation?

My stressors mainly relate to work.  I have children at home still – so I have no choice but to work.  I’ve told myself I need to pull back on the…[Read more]

Denise, everything I’ve read about PD says “stress is toxic to PwP.”  To counter it, many ascribe to the notion “Exercise, exercise, exercise!” (akin to combating depression)  I just got a treadmill recently.  I should use it more.  In a former life I was a forester, so bung knees and lower back prevent me from overdoing things phy…[Read more]

Oui!  2mg per tablet, one hour before bed.  Began this course 8 days ago… but seemed to help me immediately.  One ting I have noticed is if I miss a night, the REM Sleep disorder comes back with a vengeance!

I’m with Marlyne… shoulder tightness and neck pain in the mornings and at night before bed.  I assumed it is constant but during the day I’m busy and maybe notice it less.  I can address it through Thai massage… and used a Chiro for a while but they are too expensive long-term.  I’m not brave enough to try Botox.

This stiffness seems to br…[Read more]

Debbie — thanks for the confirmation and the vote of confidence using Melatonin. Sweet dreams!