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    • #16567
      Melba W. Benson
      Participant

      I struggle with chronic constipation.  Amitiza did not work.  The best my doctor has recommended so far is Linzess 290 plus Miralax once a day.  Even this isn’t working.  Does anyone have any better ideas?  Thank you.

    • #16571
      Beata
      Participant

      Hi All! I find that, at least so far, constipation is only a problem when my diet slips. I eat primarily greens and protein, in the form of fish or nuts or beans, and fruit etc, and rarely pastas or bread or other carbs. No dairy, as it really affects my digestion and thought processes. I find it gums me up, physically and mentally.
      Also, lots of water is so important.
      I do a tummy self massage every morning before getting out of bed. Deep pressure, moving from right lower quadrant up, across above the umbilicus, then down, ie following the path of the large intestine. Deep massage stimulates peristalsis, or movement, of the colon and speeds elimination.
      Hope this helps!

      • #25336
        Karla Burkhart
        Participant

        I find that plenty of water daily is vital as is lots of exercise. My biggest weapon against constipation is something called “My Miracle Detox. It is either a tea you mix up and drink one dose daily or it is capsules that you take one per day. It contains simple herbs–malva leaves, holy thistle and blessed thistle, marshmallow root and leaves, persimmon leaves, ginger and chamomile. There is nothing that causes trouble and seems too good to be true but skipping a day makes my life miserable. I get by mail–My Miracle Tea, LLC, P.O. Box 341, Draper, Utah, 84020. Phone is 571-643-9295. My husband even uses it.

      • #25416
        Liz
        Participant

        My neurologist suggested power pudding: blend 1 1/2 cups prunes, 3/4  prune juice, 1 cup unsweetened applesauce, and  1/2 cup all bran cereal.  Texture and looks are pretty rough but doesn’t taste bad. I blend until smooth and eat 1/4 cup ever morning with a banana.  I also incorporate pineapple, melons or apples daily into my diet. Still  need stool softener and extra fiber!

    • #16578
      Melba W. Benson
      Participant

      Beata, Thank you so much for your response. Your eating habits and hydration habits sound very similar to mine. Also, I do physical therapy and walk on the treadmill every day. Thank you for the information about the tummy massage. That should work great!

    • #16588
      Anonymous
      Inactive

      Beata  thanks for sharing.  Melba, Luckily I do not have constipation issues with pd although I did have that problem years ago when I was on pain killers.  Hydration was key, prunes helped and herbal tea specifically formulated for constipation (I forgot the name).  The best remedy was when I decided to deal with the pain rather than the constipation by stopping the pain killer lol

    • #16618
      Melba W. Benson
      Participant

      Jean, I found your comment about pain medication interesting. For 12 years I had to take pain medication during the time I had 2 neck surgeries, 3 back surgeries, and both knees replaced. Once those were taken care of, I was able to taper off the pain medication faster than my doctor or I had expected. Now I take no pain medication, but I have more difficulty with constipation than when I did.

    • #16625
      Anonymous
      Inactive

      hi melba, you certainly have had more than your fair share of health issues….i hope you can find a good solution for the constipation issue.  that is bizarre that you had less constipation problems while on pain killers than you do now..

    • #16630
      Dan
      Participant

      I consume 2 table spoons Metamucil in 8 oz water each morning. Occasional banana.  Double the orange flavored Metamucil if needed, 1x morning, 1x evening.

      ~ 90% effective so far. –

      • #25232
        Patricia McCormick
        Participant

        I take Citrucel instead of Metamucil, because it causes less gas. I also take stool softeners and that takes care of it for me.

    • #16647
      Melba W. Benson
      Participant

      Dan, thank you for your suggestion. I eat one banana every day. I’m so glad you have found something that works for you.

    • #16658
      Toni Shapiro
      Participant

      Hi, I tried many things but I didn’t like the fact that I had to constantly use medication. I started taking Magnesium Citrate, high absorption 150 mg 3 times a day and it has helped me immensely.

    • #16660
      Melba W. Benson
      Participant

      Toni, thank you so very much for your suggestion about Magnesium Citrate high absorption 150 mg 3 times a day. Currently I am taking about half that dosage, so I plan to double it. To you, Jean, and every on the forum, a very blessed Thanksgiving. Since I have joined, everyone has been so helpful to me.

    • #16663
      Anonymous
      Inactive

      melba and toni  thanks for sharing and a happy thanksgiving to you as well.

    • #16668
      Andrew L.
      Participant

      for me- 2 table spoons of organic psyllium cornhusks in my morning smoothie, which also contains mixed organic berries and mixed organic greens and the equiv of 3 glasses of water . Several hard boiled eggs with breakfast (mainly eat the whites, the dogs get the yokes.) Snack on nuts. Stay hydrated. Veggies (sometimes heavy veggies) again with lunch and dinner. Lots of liquids all day including 5 cups of green tea per day and organic tea at night. Seems to work for me. Happy turkey day to all! (not such a happy day if you are a turkey).

    • #16669
      Anonymous
      Inactive

      Andrew. I think u r on the right track.  Hydration is key…

    • #16682
      Michael R. Scott
      Participant

      Jean,

      I’ve found that a gulp of the Equip Milk of Magnesia(Walmart brand is about 50% of the price of the Branded product and just the same contents) with lots of water throughout the day. I also take two fiber capsules each morning and have reduced my Alcohol Consumption (as that tends to dry me out…. After a morning cup of coffee or two, I head to the bathroom with my I-phone or the morning paper for some “relaxation time”. That routine has solved my constipation problems….. For Now…..

      Mike

    • #16691
      Margaret Nuttall
      Participant

      To keep myself “regular” in that department, I have porridge made with two tbsp of quinoa flakes, 1/2 tbsp of ground linseed, sprinkled with cinnamon.  With my recent visit to a nutritionist, she added slippery elm to this “porridge” as one of its benefits is to “improve the symptoms of constipation”.  I mix this brew with coconut milk and cook in microwave for 1-2 minutes.  Then I add sugar-free maple syrup as a sweetener (according to your taste-buds).   Anyone else use a similar brew?

    • #16702
      Carol Rothfeld
      Participant

      I found that after about 3 days of Miralax I had diarrhea. I now take two capsules of Fibre each day and it seems to work. Just don’t expect a BM every day.

    • #16711
      Anonymous
      Inactive

      babara, carol, i am for anything that is not a prescription drug 🙂   barbara, that sounds like an interesting brew you have concocted.  how does it taste?

    • #16722
      Jo S.
      Participant

      The only thing that has worked for me is Miralax. I now take a daily “maintenance” dose of 2 teaspoons in a tall glass of water first thing in the morning (before I eat or drink anything else and before I take my meds). I also take magnesium citrate at night shortly before bedtime. Too much magnesium citrate (or too much Miralax) will cause diarrhea, so if you try these, you’ll need to monitor your dose of each. I’ve tried almost everything — from Senekot to psyllium husks to prunes and prune juice to high-fiber products and diets, etc. — and my current routine is the only one that doesn’t make me bloated and gassy and that actually works.

    • #16767
      Betty D
      Participant

      I include sour cherries in my diet.  They are widely available dried and as juice. In addition to helping with constipation, they are a good source of antioxidants and have various other health impacts.  And they taste good too.  Sweet cherries won’t do.  They must be the sour variety.

    • #16768
      Anonymous
      Inactive

      betty, thnx for your suggestion. i believe all the dark fruits (strawberries, blueberries, rasberries, cherries, etc)

      have great antioxidant properties.

       

      it is interesting why the cherries must be sour to be effective for you.

    • #25193
      Ola C. Zamora
      Participant

      Hello, a year ago, I assumed my frequent constipation was just a symptom of greasy food. I charted my diet to a doctor’s advice and avoided dairy products because they negatively affected my digestion and cognitive function. Also, I gradually increased the level of water retention and noticed some improvement, though not complete recovery. I used Colace Plus for quick relief, which worked wonders for me. Hope these methods work wonders for you too.

    • #25233
      C Morts
      Participant

      Oddly enough after many attempts to deal with my constipation I found that Curcumin supplements have worked for me. Go figure. But after taking them daily and continuing to eat plenty of cooked vegetables I have found that constipation is no longer an issue.

    • #25237
      Ally
      Keymaster

      I swear by Inulin, which is a type of prebiotic dietary fibre. I buy it in powdered form at my local pharmacy, over-the-counter. It dissolves in liquid and is completely tasteless, so you can add it to anything, including food.

    • #25238
      Ally
      Keymaster

      I swear by Inulin, which is a type of prebiotic dietary fibre. I buy it in powdered form at my local pharmacy, over-the-counter. It dissolves in liquid and is completely tasteless, so you can add it to anything, including food.

    • #25246
      Sasha
      Participant

      One teaspoon of Psyllium whole husks in a glass of water every morning is the most benign way to regularity and it also has other health benefits.

    • #25255
      Elspeth Watt
      Participant

      my husband uses many of the above mentioned remedies – stool softeners 3 times a day, magnesium & a brew for breakfast of apples cooked with prunes with bran added – this is very nice and used reguarily works very well. He also always has on hand kiwicrush – which is a frozen sachet of kiwifruit with added pineapple, lemon and spirulina – may not be available out of New Zealand? it is especially formulated for bowel issues. But he still has issues if his diet varies – family get togethers/christmas etc – and then uses a pump system he has which pumps water into the bowel – works quickly and very effectively. He used to go and have it done by a bowel therapist Dr/physio, but now has his own – bought from somewhere like AliExpress! & it is very simple to use. He also uses the Symbyx laser on his bowel 3 times a week – this definitely helps the bowel to be more normal.

    • #25256
      Susan Watkins
      Participant

      I work with a Nutritionist and she recommended bitters. Slice a lemon in quarters and in about 4 ounces of water either warm or cold drink before or after meals. It increases saliva production which increases the breakdown of your food and easier to digest and pass. Also hydration and exercise is clutch, along with physical therapy and stretching.

    • #25265
      Peter Graham
      Participant

      I think diet is the solution – it is for me – less meat more veggies (colours) but importantly – the right fibre (water soluble). I find starting the day with a nice muesli (with plenty of dried fruits.nuts) PLUS a teaspoon of Psyllium Husk (water soluble fibre) topped with 4 prunes and a good organic (no sugar) yogurt. Try using natural kombucha instead of milk (good gut health). This keeps me daily – if I vary then I miss a day.Good luck.

    • #25280
      Irene
      Participant

      At bedtime I take either one Magnesium Citrate 500mg or one tablet of Cleanse More made by Renew Life.  I alternate them each evening.

    • #25312
      Beth T Browne
      Participant

      I had constipation problems,but do not now. I am on Juice Plus gummies (but they have pills). I take 2 of the fruit and 2 of the vegetables daily. They were initially made by a doctor and are not sold in stores. I have been on them for three yrs and I am so grateful they have helped.

    • #25358
      Kim
      Participant

      I have been struggling with it for years even before my PD diagnosis. It’s the reason I had an early colonoscopy (normal). I have tried miralax too but still felt the uncomfortable bloating. I now take motegrity which greatly helps my bloated feeling but I still suffer from the lack of an urge “to go.”  I find the only relief is some kind of stimulant laxative (once a week or so). I am lucky to have great doctors and I have a GI doctor who specializes in neurological GI disorders. I think we are all different and have to find what works for us. Also, what works initially won’t, unfortunately, work forever I have found. Good luck!

    • #25362
      Diane Tunis
      Participant

      Every other day Miralex in sugar free Gatorade….lots of fruits, berries, raisins, veggies, nuts. No alcohol. Seems to work for the most part. Always some new daily challenge when you have PD !!!!

       

    • #25380
      Gerald McCarty
      Participant

      I recently (~4 months ago) added ground flax seed (~1 Tbsp) to my overnight oats and constipation disappeared.  I’ve actually been able to cut back to using it every other day.

      Good luck,

      Jerry

    • #25388
      Beth T Browne
      Participant

      I conquered constipation when my daughter got me on Juice Plus. It is veggies and fruit,which I needed anyway,as I don’t eat well due to Los of taste.

      She went to a training class with Dr. Sears, a retired, well known doctor who invented Juice Plus a while back. They work well and keep me daily.

      If you want more info, let me know and I will send you info how to get in touch for more info. Our entire family, my son and his wife, grandson, etc. and friends take them. Aside from helping with constipation, you are getting veggie and fruit you may need. They come in pill or gummie from.

    • #25389
      Beth T Browne
      Participant

      I conquered constipation when my daughter got me on Juice Plus. It is veggies and fruit,which I needed anyway,as I don’t eat well due to Los of taste.

      She went to a training class with Dr. Sears, a retired, well known doctor who invented Juice Plus a while back. They work well and keep me daily.

      If you want more info, let me know and I will send you info how to get in touch for more info. Our entire family, my son and his wife, grandson, etc. and friends take them. Aside from helping with constipation, you are getting veggie and fruit you may need. They come in pill or gummie from.

    • #25413
      Laurie
      Participant

      My neurologist gave me this recipe that is totally natural and works like a charm:

      prune juice, applesauce, bran or flax seed

      mix in equal amounts or to your taste – you can play with the amounts

      take twice a day

      After a lifetime of constipation this is the only remedy that’s worked!

    • #25418
      Robert
      Participant

      I suffered with constipation for many years before I was diagnosed with PD. Now I take two pouches of Macrogol (as Laxido) every morning and one pouch every other night together with two 7.5MG tablets of CenLax (calcium sennosides) every night. This has helped a little but what has really helped has been a lunch of mixed fruit every day and salad dressed with Extra Virgin Olive Oil and Balsamic Vinegar at night. I have also tried to up my fluid intake which I find surprisingly difficult.

    • #25446
      Dave
      Participant

      I’ve had issues with chronic constipation for at least the last 15-20 years. Once I was diagnosed with PD, it got even worse.

      My GI doc has prescribed both Trulance and Motegrity for me. These were effective for about a week. I have to supplement with stool softeners 4 times a day as well as metamucil/and or my MDS’s recipe of 1 cup bran, 1 cup applesauce and 1 cup of prune juice. 1/2 cup in the morning and 1/2 cup at dinner. It helps but it takes a lot of pushing.

    • #25453
      ita
      Participant

      How do I  deal with constipation ?   First hydrate, be aware of fluids, diet , what foods are binding, which foods help  in keeping me moving.  Manual massage of my lower abdomen. On occasion glycerin  suppositories &  exercise

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