Beata

I was exposed to DDT several summers as a child. My parents and our neighbors in Michigan would contract with a spray plane to spray DDT to control the mosquitos. We thought it was great fun to run behind the spray plane and play around in the DDT mist.

Exercise exercise and more, you guessed it, exercise!

Hi All! I started taking CBD about a year ago.  I went to a dispensary in my area (San Diego) on the urging of a family member and asked what they recommended for sleep disturbance, because that was what was bothering me the most. They suggested a combo of CBD and CBN, 5 mg. I tried a number of different brands until I found one that worked. I am…[Read more]

Hello All, you are so inspiring and brave.
I was diagnosed five years ago and feel good. I take Sinemet and Azilect and my symptoms seem to be currently controlled. I exercise daily, am learning Spanish, try to do new things to keep my brain off balance, have begun painting, and take handfuls of supplements. I have two questions. Firstly, I do…[Read more]

In the scheme of things this counts for, well, nothing, but it makes other people giggle. Myoddest symptom? When I get a pedicure, the pedicurist scrubs the bottoms of my feet with a lava stone. And it KILLS me. My feet are so sensitive that I cannot tolerate it any more. The ladies working in the salon all get a great giggle out of it when I moan…[Read more]

Sure! I’ve been diagnosed for five years and am doing well. I exercise, eat well, keep my mind active, and try to do all the things that are recommended for Parkinson’s. So far so good.

Hi There.  I have a very delicate stomach and was therefore amazed to find that Sinemet, a combo of Carbidopa and Levodopa,  not only addressed my Parkinson’s symptoms but also did not upset my stomach. I believe that Levodopa is the component that buffers the formula and prevents nausea.
As for sleep, I have found that I do well with 15mg tim…[Read more]

Hi All.

It is so good to hear from all of you. I get strength and encouragement from reading your thoughts.
I have had crazy dreams since young adulthood, didn’t know about a link to PD until I developed more symptoms and was diagnosed 3 years ago. (I am 67). For me exercise is crucial, affecting sleep and elimination and mood. If I don’t get…[Read more]

I remember when I was 12 or so, my parents and neighbors hired a light plane to spray the neighborhood with DDT to kill the mosquitos. The plane flew low and we chased the plume of white mist, playing and laughing. I remember my skin was moist from the mist.

I try to exercise daily, 5 days a week for at least 30 minutes. Usually more. I go to boxing classes, go to the gym, walk, etc. I find I go through periods of quite a lot of joint and muscle pain, and exercise seems to help as long as I don’t push too hard. If I over exert I feel horrible, flu-ish. COQ10 has made a major difference as have p…[Read more]

I have had. nightmares about being chased for decades, even though I e only been diagnosed about four years. I have unfortunately slugged my husband and have thrown myself out of bed. Thank goodness my neurologist recommended melatonin. It seems to take care of the problem. And additionally helps with sleep.

I have been attending a Rock Steady Boxing class since shortly after my diagnosis 3 years ago. It is very enjoyable and is one heck of a great workout. I always feel much better afterwards. It is inspiring to see how others handle their challlenges. I learn so much.

Hi All! I find that, at least so far, constipation is only a problem when my diet slips. I eat primarily greens and protein, in the form of fish or nuts or beans, and fruit etc, and rarely pastas or bread or other carbs. No dairy, as it really affects my digestion and thought processes. I find it gums me up, physically and mentally.
Also, lots of…[Read more]