Carol Rothfeld

I am also taking a sub cutaneous injection called Apokyn. It enhances the effectiveness of the Sinemet.

I am also taking an injectable medication called Apokyn. It is subcutaneous and easy to administer. It boosts the effectiveness of the Sinemet and can be taken up to 5 times per day. My off time is in the morning to early afternoon. It helps with tremors, etc.

I have been using Medical Marijuana for sometime. I was using the sublingual drops at night to help me sleep. I didn’t find it effective. Smokeable  Medical Marijuana has recently been approved in Florida. It is much more affective. I haven’t smoked anything in more than 30 years. However I smoke about two puffs of the pre rolled  and it is e…[Read more]

Yes, I tried it INBRIJA.  It is inhaled and not through the nose. I had a problem inhaling the powder and stopped. I am now using Apokyn which is injected subcutaneously, much like a diabetic injects insulin. I also take Tigan, an anti-nausea medication about two hours before the Apokyn. It has made a world of difference in the off times I…[Read more]

I have neuropathy. It started years ago in my right foot. I now have it not only in both feet but in each leg going up to behind my knees. My pain management doctor says that Gabapentin or Lyrica may help. They haven’t helped me. It is a persistent tingling and numbness. I haven’t had the feeling like an “electric shock” for quite a while. I just…[Read more]

I find that planning for the changes in my life has caused me to not care about things that used to be important to me. We are looking into moving from our 2,000+ square feet home of more than 19 years to an assisted living facility, not  a nursing home with a 2 bedroom 2 bath apartment of 800 square feet is the right thing for us. However, I…[Read more]

I learned through a study with 23andme that I have the gene mutations for LRRK2 and GBA. My daughter who doesn’t have PD was tested and has the mutated genes also.

My first sign that something was wrong was when using the mouse for my computer my right hand would just fly away. The tremor which has now taken over my body continues to be my most difficult part of PD.

I found that after about 3 days of Miralax I had diarrhea. I now take two capsules of Fibre each day and it seems to work. Just don’t expect a BM every day.

Ever since Medical cannabis became available in Florida I tried the sublingual drops. I didn’t get any relief from the low THC for off times during the day. I used the higher THC drops at night but I still need medication to sleep. Recently pre-rolled smokeable became available. I tried the lower THC for the day off time. It helped for a short…[Read more]

I “love” it when someone says but you look fine.  I have been breeding show cats since 1980. I can no longer go to shows because of the balance problem I can’t carry my cat to a ring and use the walker. My husband and I are now thinking of placing most of my show cats in pet homes.

When asked how I am I sometimes say “I’m hanging in” or I’m here. Only close family really want to know how I actually am.

Tremors and balance problems are most difficult for me. The tremors that started in my right hand seven years ago have progressed to both hands and legs and sometimes I feel it in my core.