Activity

When I saw that Mary Beth was asking readers to provide some input for April’s Parkinson’s Awareness program, I knew that I wanted to take a somewhat different approach. I’ll use my allotted space to make you aware of a fabulous organization – the NeuroChallenge Foundation for Parkinson’s (NCF) https://www.parkinsonsneurochallenge.org/

NCF is lo…[Read more]

Great idea! Glad a lot of people joined. Yeah I’ve been using Zoom for conference calls at work. It’s a great software for things like this.

Sinemet (one 25/100 tab twice daily) hasn’t worked great for me. I never feel much improvement, I just know I feel worse when I don’t take Sinemet. I’ve had visual disturbance side effects with all dopamine agonists in the past. I was going to give dopamine agonists another try but my MDS mentioned Nourianz as a possible add-on instead. I am…[Read more]

Our Rock Steady Fitness instructor has arranged at-home classes, through Zoom, three times a week for all participants.  We probably had our first class today.  It ran for the full hour at the same time we would generally be at the gym together.  It was encouraging to see how many joined in – pretty much the entire class.  Lots of waves and lau…[Read more]

This info is very heartening! I know medications are inevitable, but the side effects scare me more than the symptoms I have now. Thx for your comments

We, too, believe that one of the best therapies is exercise and keeping active.  My hubby had his knee replaced last June – less than a month after his Parkinson’s diagnosis.  This surgery turned out well – but there will always be certain limitations.  After having joined Rock Steady Boxing in December, once the knee was healed, he has found it…[Read more]

To Glenn M.: Thanks so much for taking the time to respond to my question. I really appreciate the references to the research studies because I learned that the intensity of the exercise is very important as well. I do not need medication at this point so I will focus on the exercise!

Hi Anne Marie:

I am a PD runner, but running and biking  have the same effect, i.e. high intensity excercise might help “slow the progression”. In my case, I was diagnosed with PD  13 months ago at age 73.  My neurologist, who is in a PD Center of Excellence, recommended I start medication (Sinemet) right away, even though my motor control sy…[Read more]

I agree with you on all points, Gretchen. My husband takes the 15 rounds class prior to my RSB class. He was so inspired by the incredible, selfless volunteers in RSB that he became a volunteer himself!

I was diagnosed in February at age 77 and all the coincidences that could coincide, did! They led me to RSB in New Braunfels, TX, about 13 miles from home. My husband and I have been attending twice a week – bought the gloves and the t-shirts and carry a fistful of brochures everywhere we go. I am grateful and inspired by the experiences. I am…[Read more]

Here’s the article! https://parkinsonsnewstoday.com/2020/02/19/reviver-motion-machine-ability-ease-motor-symptoms-parkinsons-atypical-parkinsonism-enter-trial/

I started Rock Steady Boxing soon after my diagnosis four years ago (age 65 then). I absolutely recommend to anyone—-at least try it. I don’t know what my progression would have been without it; all I can say is that every time I go I’m glad I did. I must admit that as a former martial artist it’s the kind of thing I would enjoy. (Although recentl…[Read more]

Hi Marilyn, the forum moderator has posted the video from Parkinson’s News Today about the Reviver Trial in her post above. It is the first entry in this forum topic.

Where is the article about the Reviver trails ?