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Ally started the topic Making connections in the forum Living With Parkinson's Disease 14 hours, 2 minutes ago
How has having Parkinson’s disease affected your social life? Have you made new friends through online or in-person support groups for people with PD and/or caregivers? Have you enjoyed connecting with people in this forum?
Do you prefer to connect with people in-person or online? For me, it’s a bit of both but everyone is different. What works…[Read more]
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Paul S became a registered member 18 hours, 14 minutes ago
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James A. Starrett became a registered member 18 hours, 15 minutes ago
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Cath became a registered member 18 hours, 16 minutes ago
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Jan M became a registered member 18 hours, 17 minutes ago
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Chris became a registered member 18 hours, 18 minutes ago
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Tiffany became a registered member 18 hours, 20 minutes ago
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Robert replied to the topic Does it get easier to witness the decline? in the forum A Forum for Parkinson's Disease Caregivers 18 hours, 50 minutes ago
You see! If I had just spent more time, I would have caught the two signatures!!
If us PD people can’t laugh at ourselves, we are gonna have a tough life. Right?
Robert C
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Robert replied to the topic Does it get easier to witness the decline? in the forum A Forum for Parkinson's Disease Caregivers 18 hours, 53 minutes ago
Very good topic Mary Beth,
I suspect it is hard for some to share personal situations on this topic. You can’t undo what you might type if you have second thoughts on what you have sent. And we are all in a “let’s see how it goes” mode and not a “presume the worst” mode as a way of coping with this Parkinson’s visitor in our lives. This topic…[Read more]
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Ally started the topic Rare Disease Day in the forum Parkinson’s Disease Awareness and Advocacy 1 day, 16 hours ago
Did you know that each year on the last day of February we celebrate Rare Disease Day? Parkinson’s is the second most common neurodegenerative disorder, which means it isn’t technically a rare disease, but that doesn’t mean people’s experiences with PD are common or ordinary.
Do you celebrate Rare Disease Day? Why or why not? Even though PD isn’t…[Read more]
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Renée Osborne replied to the topic What have you learned about Parkinson's since the diagnosis? in the forum Diagnosis Information and General Questions 1 day, 18 hours ago
My husband was diagnosed 1 1/2 years ago with Parkinson’s. After several months of medication, there was no evidence of it being effective. I was able to get an appointment last July at Mayo in Rochester, MN, where his diagnosis was specially indicated as MSA – Multiple Systems Atrophy, a more progression and rare form of PD. Mayo offered s…[Read more]
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Emanuel Sant replied to the topic How has Parkinson's disease impacted your relationship with your partner? in the forum Living With Parkinson's Disease 1 day, 18 hours ago
It has been tough. My wife struggles depression and can not get motivated. She’ irritable most of the time and rarely even smiles. Its tough to even get her to leave the house at times. We have been married 30 years. She does see a therapist and is on Zoloft but I think she needs more. I am pursuing other avenues.
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twok replied to the topic Does it get easier to witness the decline? in the forum A Forum for Parkinson's Disease Caregivers 1 day, 21 hours ago
As one of those ‘in decline,’ (no sarcasm intended), I offer the observation that cognitive prowess can vary greatly in the same person. Clearly, everything is slower and just as emotion effects tremor, emotion can cloud ideation and the use of common sense. Then there is vitamin d, hydration, wearing off, fatigue etc. There is still a person ‘…[Read more]
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Mary Beth Skylis started the topic How has Parkinson's disease impacted your relationship with your partner? in the forum Living With Parkinson's Disease 2 days, 23 hours ago
Parkinsons disease comes with a lot of different struggles. My Dad has been married to my Mom for over thirty years, and they’ve had to learn how to manage obstacles like nightmares and aggressive thrashing. My Mom is continuously learning when to step in to help my Dad and when she should let him complete a task himself. How has Parkinson’s…[Read more]
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Keith Graves became a registered member 3 days, 2 hours ago
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Melissa Eicholtz became a registered member 3 days, 2 hours ago
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William became a registered member 3 days, 2 hours ago
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Erica Boshoff became a registered member 4 days, 20 hours ago
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Mary Beth Skylis started the topic Does it get easier to witness the decline? in the forum A Forum for Parkinson's Disease Caregivers 4 days, 23 hours ago
This week, my heart broke into a bunch of fragments when I observed my Dad’s cognitive decline. During one particular conversation, I tried to explain to him what a “Sherpa” is in three different ways. I spent some time in Nepal previously, and he has always followed my journeys religiously. So the concept of a “Sherpa” wasn’t new to him. But this…[Read more]
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Harry Corbett became a registered member 6 days, 1 hour ago
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