Activity

<p style=”text-align: left;”>I normally just say, “good” because I will usually appear no worse than when you last saw me. The truth of the matter is that I am almost always doing very badly. After struggling with this disease for 31 years now, I am about ready to throw in the towel!</p>

I’ve been plant-based (vegan) for almost four decades. Yes, I do believe it has helped me. I have had symptoms for a very long time, and I think I would have been a lot worse off by the time I was diagnosed if I hadn’t been vegan. That said, I don’t believe being vegan will cure (or even prevent) PD (I’m a prime example of that), but I do think it…[Read more]

Hi, Ally. I’ve always been an early riser … just not THIS early! 😀 Insomnia was among my (many) first symptoms several years ago. Now I start to fall over (not literally fall, but fall asleep fall) around 7:30 p.m., though I force myself to stay awake for another hour (if I can). Of course, the irony is that I wake up in the middle of the…[Read more]

Oh my goodness, Andrew — I’m exhausted just reading about all the exercise you do. You’re a beast!!!

Happy to hear you can still enjoy some of the activities that bring you joy, Gregg. 🙂 I hope that remains for a long while yet.

Hi Jo, were you always an early riser or is that something new?

Carol, this is off-topic but I LOVE cats and would love to hear more about your experience breeding and showing them!

That’s awful. I wish people would be more mindful of the fact that disability isn’t always visible. How did your friend respond when that happened? My friend has PF and always worries about people judging her for taking elevators etc. when she doesn’t have her portable oxygen with her because she looks young and healthy. In fact, she’s not. Pe…[Read more]

even though i sleep good, i am still exhausted when i wake up. i always tell myself tomorrow is another day

Good work Jean and Jo! How much exercise I can do seems to be directly correlated with amount of sleep I get. 2 nights ago was a relatively rare good nite, so yesterday did a lot. Last night didn’t sleep too well. Anyway today pushed myself to do  1 hour Rock steady boxing class, moderately difficult ( decent aerobic workout, would call it a…[Read more]

Sadly, that is so true, Jean.

thank you Jo, my issues are no worse than any others who have PD.  PD is a crushing disease of loss and everyone suffers in their own unique way.

I’m so sorry that PD took dance away from you and that boxing has become more difficult as well. :'(

lack of motivation plagues me.. as for dance, i have not gone back to it, i have lost so much to pd; balance, rhythm, flexibility, it frustrates me so and i start getting stressed out.  i am enjoying my boxing classes though it is getting harder and harder to do them 🙁

LOL! I’m glad my routine sounds impressive. 😀 Some days I skip the walk or mini tramp (it’s so hard to get motivated, especially later in the day for me), but I try to keep on track most of the time. Still, dance is such a beautiful art form as well as great exercise, and moving to music is wonderful for PD. Do you still try to dance?

jo, mutual admiration club LOL  i just saw your post on your workout routine.  i got tired as i read it!