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Yes, both myself and one sister tested positive for LARRKS2 mutation. To our knowledge ,no one else has been diagnosed with Parkinson’s.

Thanks for writing this, Charles: ” I’m hoping something else gets me first like a massive heart attack or a fast, fatal stroke. I simply will not accept living a liife with no meaning or purpose, without quality, as only I can define that for myself. I’ll control my own destiny before I lose control over being able to make such a det…[Read more]

I was diagnosed with PD in August of 2019 at the age of 55.  This January I got Covid and 3 weeks later I was diagnosed with optic neuritis which led to a diagnosis of MOG, an autoimmune demyelinating disease similar to MS.  I was pissed off initially thinking how could I get two ‘incurable’ neurological diseases in under 2 years!  Prior to PD I w…[Read more]

So to answer Ally, I had angioplasty at age 49. Turned out three coronary arteries were 90 percent occluded. Three years later I was diagnosed with Diabetes, adult onset. All my other ailments followed. I’m early stage PD but I do think about how quickly I’ll move, stage to stage. I’m hoping something else gets me first like a massive heart attac…[Read more]

Thanks for responding, John. Did you wonder if you would be diagnosed with the disease after your mother was diagnosed? Did you consider genetic testing? If you have children, you have you talked to them about the possibility of also being diagnosed with PD?

Yes my mother and her father had Parkinson’s. I share many of the same symptoms of my mother.

I am 84. A 28 year breast cancer survivor. I also have a lung disease probably from whooping cough at 2. Allergies can make me very sick if I can’t control them w/a plan my old doctor created. In the last 3 years, I was diagnoised with a leaking heart valve. The third and last ecocardiogram show some not so good signs. I lost 18 inches of m…[Read more]

Phase I “Proof of Concept” Clinical Trial to Test if Therapeutic Angiogenesis with                                                FGF-1 Can Alter the Progression of Parkinson’s Disease

As I have reported in this Forum previously, we are developing a potent angiogenesis growth factor which stimulates the growth of new blood vessels in “ischemic” t…[Read more]

Yes, getting out of the house has been a no-go for over a year now. Living in a crowded city with residents and tourists, the pandemic has required a “lock down” for safety which pretty much continues even with the vaccinations completed. Plus everything being on Virtual, I’ve lost a fairly active weekly exercise routine doing Silver Sneakers…[Read more]

Yeah, some days are worse than others; on really bad days, focus on anything and everything you can do today to make tomorrow better and then do at least one thing today to get ready for a better day tomorrow.
And after you do one thing, I bet you’ll find you can do two things. Keep moving; your not alone. When your having a bad day you can be…[Read more]

Well, on the anniversary of my 19-month diagnosis, I was talking to my wife about how nice it would be to not wake up each day and think HEY, I HAVE PARKINSONS! But that said, I’ve felt pretty good and kept my humor and outlook up overall over the past 19 months.

But then I had some mini-strokes 2+ weeks ago, thanks to a tortuous carotid artery…[Read more]

I’ve been taking Butyric Acid supplements since September 2018, and all of my Parkinson’s symptoms have been alleviated.