Andrew L.

Educate yourself, there is a lot of info out there. It’s a wakeup call to get active (exercise). Reduce stress as much as possible.  Find a support group. Get a team of doctors (preferably someone specializing in movement disorders) and/or therapists (P.T. and psychotherapy, etc). Take advantage of the multiple free outreach programs put on by…[Read more]

Stress makes everything worse, however it has been said that the only time we (humans) have no stress is when we are in a coma or dead. That said excessive stress is best eliminated when possible, as the disease with its fluctuating brain dopamine levels  is stressful enough, thank you very much. CBT has been around for decades and is a widely…[Read more]

I periodically have it too. Very disconcerting. Have thought it is caused by my dopamine levels dropping to low, but I don’t know.

Hi Kate:

Do you have more info for the mindfulness meditation class for PD?  I have done mindfulness meditation, but never in the context of PD….

Am getting ready to try the Tom Brady exercise program (TB 12 program, ordered all the equip from Amazon). If he can do it why can’t I? Who cares if I am more than 20 years older and have PD? Certainly not him and not me either.  So far today I did boxing and Chloe Ting (on you tube) abs. She has many other great workouts as well, just need some…[Read more]

I had vaccine number 2 (Moderna) 2 weeks ago. Felt nothing after vaccine 1, after vaccine 2 had a horrific night. Rotating (throughout my body) muscle spasms every hour, Parkinson’s symptoms in general MUCH worse than I have ever experienced etc.  Ended up doubling up on my dopamine medication over the 24 hour period (which helped), then took it…[Read more]

Hi Ian:

Am a young 64/athlete. Diagnosed 2 years ago. First noticed tremor in left hand 3 years ago. Followed by what I thought was a frozen should (in hindsight it was PD onset.) Followed by tremor in right leg/ esp foot. Was then diagnosed (had decrease L arm movement, no facial expression, emotional lability.) First neuro I saw told me the…[Read more]

Exercise apparently  helps in Parkinson’s by increasing the release of neurotrophic factors as mentioned above….making exercise a key component to the puzzle.   One problem apparently is that every time the research scientists come up with an important basic science research modification, it takes years for the new information to translate cl…[Read more]

Watch from 4 minutes on, reminds me of “awakenings”

Doesn’t address what Bill is talking about tho….

Never tried Butyrate. have been on Niacin for 25 years for high cholesterol, diagnosed with Parkinson’s just a few years ago.

I don’t think the placebo effect works if you know it is a placebo.  The point of the placebo effect is that it occurs only when the patient believes they are taking something that works, as in a double blind study (or for example if you read about something in a nutrition mag and believe it, even if there is no scientific validity.) I believe…[Read more]

Ran behind the DDT truck as young child laughing in the fog many summer nights. Used to call it the “fogging man”. Big treat then. NOT NOW 🙁

The day  I got my diagnosis I presented with foot tremors. The neuro told me they could only be relieved with brain surgery.  However getting treated with carbidopa / levodopa and selegiline, they went away (for the most part).

OK will chime in…Bike 20 miles 3x per week on lifecycle. Takes me about 75 minutes and I do cognitive exercises at same time (when indoors obviously) utilizing ALZ life program on I pad (my own clinical trial, so to speak). Have gotten really good at Sudoku , haha.  Take the cycling outdoors with the sunrise on the weekends (afraid of COVID and…[Read more]

I have also been told that to get a similar effect with CBD one would have to take up to 50x or more CBD than is normally “prescribed” and this is associated with liver toxicity. Stated differently , to get the same beneficial effects using CBD versus micro dosed THC, one would have to take a toxic dose.

Mary- Here is the deal as I see it today (am always learning) after much consultation with respected physicians in the field…THC is not a placebo unlike CBD. Taken in relative “microdoses” (the only way to do this scientifically is with capsules, otherwise the actual ingested dose is guesswork, particularly if smoked), it does decrease anxiety,…[Read more]

I believe CBD is a placebo unless taken at extremely high and potentially toxic doses. It doesn’t bind to the receptors of the endocannabinoid system. It has been speculated that it may boost your body’s endocannabinoid production, but I don’t buy it. Any non-placebo effects of CBD are mainly from the THC in the oil.

Was also very excited by the study, but “years” is a bit depressing. I guess there are different stages of clinical trials, and it has to go through at least 4 before being approved.Maybe they can fast track it….

Hi all: Will stick my two cents in …

I totally understand the strong desire to avoid pharmaceutical dopamine replacement for PD  (I think this is part of the “denial” stage we all go through), but the medical studies do not support this as an effective form of treatment. It has been said you won’t die from Parkinson’s but with it. Dopamine…[Read more]