Andrew L.

Sleep is an ongoing challenge.

I have accepted the fact that I will wake up somewhere around 2-4 am pretty much no matter what I do (I go to bed around 1130), and will probably be awake around an hour or two.

My neuro recommends a dose of dopamine when I wake up, so I have been doing that (1 tab at 1030 pm, 1 tab middle of the night 25/100…[Read more]

MM experiences continued:

I think it is about to become mainstream in the PD community (by this I mean neurologists specializing in PD) that CBD at a 20 mg dose is helpful for anxiety associated with PD. Heard this from someone very high up in the PD medical hierarchy, though doubt there is any hard scientific data to back it up . I have also…[Read more]

I have vaped it, used edibles, and sublingual tincture.
At 20 mg I believe it reduces anxiety. 10 mg hit or miss with anxiety. Doesn’t really help with sleep.
Most of what is sold in the dispensaries here in Florida is hybrid, one dispensary here has indica dominant. Actually don’t like the way the indica dominant CBD makes me feel. I have also…[Read more]

Have it a couple of years.PD is Dopamine deficiency. While everybody has different manifestations, there is probably a decent chance that once you begin to adequately  replace your dopamine u will be able to do things again that you did before though for how long and how well is uncertain As everyone is different.There are no generalized answers…[Read more]

Thank you Jean for all that you did and do! Live strong, one moment at a time!!

Hi Joel; am personally unaware of the benefit of one part of the light spectrum vs. another till I saw it here. As for the “experiment”- I was all set to hire an electrical engineer to wire my house when I found a program (app) that works on certain types of I -pads that have a minimal refresh rate of 120 HZ. Sound and cognitive exercises inc…[Read more]

I am doing an unscientific (i.e. not a controlled double blind study and a sample size of one) clinical trial on myself doing this with synchronized flickering light and sound at 40HZ. Just finished the logistical part of it, good to go starting today or tomorrow. Plan is 1 hour per day. As Jean pointed out the research appears to be for…[Read more]

I like that Jean. Normal is good. :)Plus we are getting older, so maybe it is not all Parkinson’s if we slow down a bit.

BOB YOU ARE AM INSPIRATION! I played tennis and went to the gym (worked out with weights and on various aerobic machines) most of my adult life. Since the advent of the “fit bit” , rarely have a day with less than 10K steps going back many years. Sometimes looking back I think I might have had this disease for years or even a decade or longer,…[Read more]

Blood Pressure and Prostate Treatment May Prevent or Slow Parkinson’s, Early Study Suggests

Hi Jean:

From a different forum- https://www.dailystrength.org/group/parkinson-s-disease/discussion/treating-my-wife-with-pd

Hi Russ: Congrats on reversing your PD, there is very little about this in the literature. I have some questions for you:

1) Did you do this treatment on your own, or are you working in conjunction with a doc (if with a doc, is it a neurologist or internist?)
2) How did you decide on your butyric acid dose?
3) Which brand do you use?
4) Do you…[Read more]

I was asked by Mary Beth if I ever tried a back brace, not sure where to reply (every time I hit reply there is nowhere to type), don’t find this site to be very easy to navigate…anyway my answer is yes, but I don’t like braces in general as they tend to weaken muscles as the brace does the work your muscles do. So prefer to strengthen muscles…[Read more]

Might be a useful alternative to a posture brace, uses bio feedback

UPRIGHT GO 2™

for me- 2 table spoons of organic psyllium cornhusks in my morning smoothie, which also contains mixed organic berries and mixed organic greens and the equiv of 3 glasses of water . Several hard boiled eggs with breakfast (mainly eat the whites, the dogs get the yokes.) Snack on nuts. Stay hydrated. Veggies (sometimes heavy veggies) again with…[Read more]

Hi Christine: Exercising is my new job as well. Am thinking pickle ball is probably good on many levels. Lot of fast movements, eye hand coordination , and tracking the ball as it flies from side to side , esp with better players. Not too happy with my ability to transition from power to touch game, trying not to be too self critical. Yesterday…[Read more]

Hi Jeffrey: Nice to find a fellow traveler. I also love exercise, it is the only time that I feel prolonged periods of something resembling “normal”. I guess I am trying to figure out when and how to incorporate exercise “off days”, since I feel so much worse doing nothing. Do you take exercise days off? As for yoga- it is not a cure all for me,…[Read more]

Also certain antidepressants help with sleep , if depression is an issue. Again a question for doc.