Andrew L.

Was also very excited by the study, but “years” is a bit depressing. I guess there are different stages of clinical trials, and it has to go through at least 4 before being approved.Maybe they can fast track it….

Hi all: Will stick my two cents in …

I totally understand the strong desire to avoid pharmaceutical dopamine replacement for PD  (I think this is part of the “denial” stage we all go through), but the medical studies do not support this as an effective form of treatment. It has been said you won’t die from Parkinson’s but with it. Dopamine…[Read more]

Thanks for sharing that Bob! Plan to  get another scientific opinion on this…

Meant to say latter two, not to. Now off to virtual boxing class, haha.

Meant to say latter two, not to. Now off to virtual boxing class, haha

For the record, I have been on Lion’s Mane, Magnesium, probiotics and many other supplements I researched and am on a strict diet since diagnosed a few years ago. I exercise like a maniac (for me), and am on an uber healthy diet. As a result,  I am actually in the best overall physical shape of my adult life, and my labs have never looked better…[Read more]

Dopamine boost directly into brain via inactivated virus. Immune modulated response attacking harmful brain protein accumulation. Effects of light and sound therapy on brain. Not exactly excited (more interested) but trying to stay positive.

I tried. Didn’t work. All of those things help and are worthwhile and even necessary adjuncts For a lot of reasons. but in the end it depends how much dopamine ur brain is producing. Over time the brain produces less not more so when the critical mass is reached  then we need some form of dopamine to replace what is lost. there really is no way ar…[Read more]

Alan: Glad this has helped you. I have also used 10 mg in the day, but do better with 20mg as an anxietolytic dosage, mainly at night. ( I get trying to keep your dose a low as possible, but unaware of any side effects at higher dosage.) I used to think that any THC was a bad thing, because the last thing I wanted was the jittery and paranoid…[Read more]

The short answer is yes. The benzos hang out in ur body and are cumulative. The half life of clonazepam, which seems to be the drug the neuro guys like for PD, is something like 40 hours, which means every time you take it half is still in your body up to 2 days later! (note: others are shorter but are still quite long.) The THC I am ingesting…[Read more]

Just thought I would add that I am not a fan of the benzodiazepines because of tolerance (need more and more for same effect over time), plus addiction potential (probably the least of our worries with PD but nonetheless a problem.) Plus I don’t like them in my body during the day (most have very long half lives) as I think exercise is a critical…[Read more]

Hello: Have been experimenting with medical cannabis for anxiety and sleep for the better part of a year now. I find that all of the different dispensary’s in my town in Florida have slightly different products. Have started using 12.5:1 CBD to THC. The dose for anxiety is 20mg (for most concentrations this is one full dropper) sublingual. I like…[Read more]

Sleep is an ongoing challenge.

I have accepted the fact that I will wake up somewhere around 2-4 am pretty much no matter what I do (I go to bed around 1130), and will probably be awake around an hour or two.

My neuro recommends a dose of dopamine when I wake up, so I have been doing that (1 tab at 1030 pm, 1 tab middle of the night 25/100…[Read more]

MM experiences continued:

I think it is about to become mainstream in the PD community (by this I mean neurologists specializing in PD) that CBD at a 20 mg dose is helpful for anxiety associated with PD. Heard this from someone very high up in the PD medical hierarchy, though doubt there is any hard scientific data to back it up . I have also…[Read more]

I have vaped it, used edibles, and sublingual tincture.
At 20 mg I believe it reduces anxiety. 10 mg hit or miss with anxiety. Doesn’t really help with sleep.
Most of what is sold in the dispensaries here in Florida is hybrid, one dispensary here has indica dominant. Actually don’t like the way the indica dominant CBD makes me feel. I have also…[Read more]

Have it a couple of years.PD is Dopamine deficiency. While everybody has different manifestations, there is probably a decent chance that once you begin to adequately  replace your dopamine u will be able to do things again that you did before though for how long and how well is uncertain As everyone is different.There are no generalized answers…[Read more]

Thank you Jean for all that you did and do! Live strong, one moment at a time!!

Hi Joel; am personally unaware of the benefit of one part of the light spectrum vs. another till I saw it here. As for the “experiment”- I was all set to hire an electrical engineer to wire my house when I found a program (app) that works on certain types of I -pads that have a minimal refresh rate of 120 HZ. Sound and cognitive exercises inc…[Read more]

I am doing an unscientific (i.e. not a controlled double blind study and a sample size of one) clinical trial on myself doing this with synchronized flickering light and sound at 40HZ. Just finished the logistical part of it, good to go starting today or tomorrow. Plan is 1 hour per day. As Jean pointed out the research appears to be for…[Read more]