Bob Hodgson

What I loved most was finding an activity that I can participate in. I enjoy racket sports but having PD (7 years) has made me limit the activities that I enjoy. Sometimes I just need to silence the committee in my head and just go for it.

I get a toe cramp on the left foot for 15 minutes in the morning and then no cramping the remainder of the day. The most bothersome side affect is some dyskinesia in my legs. I call it my “stroke legs”. Anywhere from 30 minutes to several hours during the day. My right leg wants to go sideways.

Check out this latest research from UCSD.

https://health.ucsd.edu/news/releases/Pages/2020-06-24-One-Time-Treatment-Generates-New-Neurons-Eliminates-Parkinsons-Disease-in-Mice.aspx

Ditto on most of the previous posts. I was diagnosed a little over five years ago. I waited 18 months after diagnosis to start on a low dosage of carbidopa-levodopa. Actually I wish I hadn’t waited so long. I have modified my diet to limit carbs and sugars, I take around 24 different supplements and I take mucuna pruriens with my medication. All…[Read more]

What impresses me the most is the results from regular exercise of which you have all have experienced, the slowing down or even reversing the symptoms from PD. That’s incredible! Keep up the good work!

I was extremely active pre-diagnosis and have tried to remain so after I was diagnosed in June 2014. I have found that muscle memory has been beneficial in continuing to exercise. For example, I found that it was easier to run/jog then to walk. Consequently I am running 3-4 days per week and on non running days I either walk or use an elliptical…[Read more]

My neurologist started me on Xadago 2 weeks ago. I’m going to give it a 30 day try before I decide to continue or not. So far I’ve noticed that my tremors are down but it seems that other non motor symptoms are “worse/different”. I noticed that I’m clenching my jaw which I did not do before and that even though my hands show no tremors but my legs…[Read more]

My neurologist suggested that I DO NOT take vitamin B6.

My standard answer is “great” because if I’m not it lifts my spirits. Truth be told if I really think about all I have to be grateful for I should change my response to “fantastic!”. Have a great day!

Perhaps someone can verify this but I was told that the extreme heat impacts the effectiveness of the carbidopa-levodopa. I notice that in high heat that I seem to need more medication. So from that perspective my symptoms are worse in higher heat levels.

I can’t say that I have fatigue as a symptom other than from the levodopa-carbadopa which makes me sleepy.

My motivation comes from the desire to get better and to keeping a routine. I still work so I have a set work out routine every day.

I have been very active for most of my life and I believe that has helped me with slowing down the progression of my PD. I have stopped surfing and snowboarding but have continued with my other exercises which consist of running, elliptical and weight training. It is easier for me to run than walk which I attribute to muscle memory.

It’s a life…[Read more]

I’ve had this issue but never linked it to PD. I figured that this problem was a technique issue such that I watched other people to see their “technique” to figure out what I needed to change.

To answer your question I prefer to figure it out on my own but that’s because I’m super stubborn.

Thanks for the insight.