Beth

I just got this book out of the library today. It’s called “How to Be Sick” by” Toni Bernhard. The subtitle is “A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. My dad is reading “How to Wake Up; A Buddhist-Inspired Guide to Navigating Joy and Sorrow” also by the same author. He said it’s one of the best things he’s read in…[Read more]

I am interested in a device called SpeechVive. What it does is this: The SpeechVive device leverages an automatic brain response called the Lombard Effect. See: https://en.wikipedia.org/wiki/Lombard_effect
This brain response triggers louder speech volume as the ambient sounds around people increases. With this Parkinson’s speech device, you s…[Read more]

I am interested in the somnolence or drowsiness from the medications and how to fight it.

I would like to hear more about stem cell treatment for Parkinson’s Disease.

Somewhere on the web I found a research study that used GABA and Theanine in a ratio of 1000mg GABA to 200mg Theanine. I use 2 capsules of 500mg GABA by Swanson and 1 capsule of 200mg
Theanine by Jarrow. I have been using this combination of supplements for close to a year and it works well for sleep. I take it about 1/2 hour before bedtime.

Hi, I take Mucuna Pruriens (which is what dopatropic is) in the evening after my regular last dose of Carbidopa-Levodopa in order to be able to still walk around. My neurologist doesn’t like me to do this but I feel desperate and need to be active in the evening.
I have found that there is a good deal of variation in the strength of Mucuna…[Read more]

I wondered if the Parkinson’s disease could have anything to do with a gut surgery (where my ileum was removed)I had had which caused me to become deficient in vitamin B-12. I remember feeling exhausted most of the time and several years later I began having having PD symptoms. And unfortunately, my PD went undiagnosed for a couple of years.