Patricia McCormick

My grandmother had PD. I wish she was still alive so I could talk to her about her experience. Her symptoms were completely different than mine. My daughter is afraid that she will get it someday too. I hope she doesn’t.

Thank you Clive.  Migraines aren’t my main concern.  GERD is my biggest problem with PD, although I have many more non-movement disorders.  My gastro doctor ran the full gamut of tests and was perplexed when nothing showed up.  Once I got my diagnosis and told him about it, he said, “Well, that explains it.”

Thank you.  I’ll check into liquid Hope and see if that’s something my system can tolerate without causing GERD.  Any glimmer of hope helps!

I have had migraines for almost 40 years, but the GERD started in 2019, the year before I was diagnosed.  I haven’t heard of botox into the jaw muscles for GERD.  I can see that possibly helping with migraines though.  I had botox in my forehead for the migraines and didn’t help unfortunately.

My gastro prescribed Famotidine (prescription Pepcid) and that helps some, but doesn’t completely do the trick.  Both my gastro and my neurologist (MDS) said it is being caused by PD.  Very frustrating indeed.

I’m currently going through aquatic therapy for SI Joint, low back and hip pain. My neurologist said it’s also good for PD. I really enjoy it. The resistance from the water allows me to get a better workout. I have some balance problems, so I use a pool noodle to walk across the pool (part of the warm up).

My weirdest symptom is GERD which started about one year before I was diagnosed. I lost 30 lbs. in 4 months because of the GERD and have been unable to put any weight back on. At 5’9″ and 108 lbs., I am extremely thin to the point that I can easily see my ribs. I eat part of my meal and the GERD rises up and makes me stop eating. It doesn’t…[Read more]