Ally

Hi everyone, I was able to get in touch with Amir Sadeh and ask him for help with the CliniCrowd website for those of you who have been unable to login or even create accounts. He said you’re welcome to reach out to him directly. I’m going to write out his entire email address below without the @/. symbols so that it doesn’t get picked up by spam…[Read more]

The latest Parkinson’s News Today flash  briefing is up, and it’s a personal piece by Lori DePorter about conquering the fine motor skills associated with sewing. You can listen to it on SoundCloud here. 

When was the last time you challenged yourself to do pursue a hobby or interest you enjoyed (and could do easily) pre-diagnosis? What was it? H…[Read more]

What is the most challenging aspect of caring for someone with Parkinson’s disease?

According to new research, many caregivers report that cognitive challenges are the hardest to cope with.

Is this true for you? How have your caregiving challenges changed or evolved (perhaps even worsened) over time? What advice or words of encouragement do you…[Read more]

This week, I recorded a flash briefing of one of Lori DePorter’s columns about finding gadgets to make life with Parkinson’s easier.  You can listen to it here.

What gadgets, devices, tools and/or apps have you found that help make your life easier? How did you find them? What tool or gadget is missing from the marketplace that you think would…[Read more]

Is a sudden blood pressure drop (called orthostatic hypotension) an early marker of Parkinson’s disease? Researchers aren’t so sure. Listen to the latest Parkinson’s News Today flash briefing to learn more.

Did you experience sudden blood pressure drops before you were diagnosed with PD? Looking back, do you think they were an early warning s…[Read more]

This week I had the pleasure of recording a flash briefing for an article written by our very own Mary Beth Skylis! Listen to it here.

In her column, Mary Beth talks about the differences between service dogs, emotional support dogs and dogs who provide companionship. Like Mary Beth, I’m an animal lover and encourage everyone to get a pet,…[Read more]

I learned something new today – there is a whole day dedicated to celebrating digital workforces, and it’s today!

October 6th is Digital Workforce Day, which is great to acknowledge because I think more of us are working remotely (or digitally) these days than ever before. If you’re still working, do you work from home? Did you work from home…[Read more]

Hi everyone, the interview I did last month with Dr. Daniel Segal and Amir Sadeh of CliniCrowd about mannitol is now available on YouTube and SoundCloud!

If you want to watch the interview, check out the YouTube link here.

If you prefer to listen only, you can find the audio here. 

Hope you enjoy! Please comment below if you have any ideas for…[Read more]

October is Disability Employment Awareness Month, or DEAM. The purpose of DEAM is to promote employment inclusion for people with disabilities and celebrate the many and varied contributions of workers with disabilities.

As a person with Parkinson’s, do you identify as a person with a disability? If you do and you’re still working, in what…[Read more]

In Ontario, Canada, where I live, the number of COVID-19 cases has been spiking again. Yesterday the provincial government reported an all-time high of 700 cases — yikes. Many of us are fearing another shut down and the cold and flu season hasn’t even truly begun yet.

What’s the status in your community? Has the number of COVID-19 cases…[Read more]

Check out our latest flash briefing all about what the sandwich generation can teach us about heroes. 

The ‘sandwich generation’ includes adults who are simultaneously caring for their aging parents while also supporting their own children. This presents many challenges, but imagine being in this position and caring for a partner with…[Read more]

Sleep disturbance is a common symptom of Parkinson’s disease, and new research indicates that low quality sleep, like that due to sleep apnea, has a negative impact on cognitive function in people with Parkinson’s, particularly in the domains of attention, executive function, and memory. You can learn more about this topic by listening to t…[Read more]

The latest Parkinson’s News Today flash briefing is now online! In it, I read an article by Lori DePorter about how life with Parkinson’s can sometimes feel like a wildcard but, Lori argues, it doesn’t have to define you. Or at the very least, you can choose to what degree PD defines your life and whether that has a positive or negative impact…[Read more]

I recently moved into a new apartment and my partner and I are in the process of outfitting it with smart plugs that work with our Google Home devices – we have one in our bedroom and one in the living room. I gifted my old Amazon Alexa to my mom, and she’s having a blast asking Alexa questions about the weather, music and for help setting…[Read more]