Ally

Bob, you’re awesome – thanks for sharing all of these posts!! I love your positive attitude and I think humour is a great antidote to any difficulty. I am going to return to these posts when I need a reminder to shift my thinking in a more positive, less serious direction. 🙂 Have you always been a comedic writer?

I noticed you included some…[Read more]

Thanks for responding, Mary. I think you and John have a great outlook and I’m glad you have each other to lean on. Why do you think you and John share this positive, solutions-focused mindset? Is it something you developed and strengthened together over time, or do you think how you were raised or other factors had an impact? Do you think this is…[Read more]

Thanks for responding, David! I must admit, now that we are fully immersed in the world of Google/Amazon reviews, I will rarely take a chance on a product without doing at least a little bit of research first. Thank you for sharing your experience with the natural L-Dopa supplement. I’m sure it will be helpful to others in this community. Looking…[Read more]

Argya, your messages are always very encouraging to read. I think that small efforts over time do add up and create change. I believe that all the seemingly small and “quiet” ways you’re advocating for Parkinson’s now will pay off in the future. Your efforts today are creating a different world for people with Parkinson’s in the future.

Garrett, do you worry that the apathy has a negative impact on your ability to do your job or work with your students? Has anyone at your work place noticed the change?

Argya, it’s so great that you have the educational background to be able to properly understand research papers. That’s a huge advantage to you as a patient. I also think your reflections on the psychological impacts of PD on patients is very interesting. Given your personal and educational background, do you ever see yourself leading (or…[Read more]

P.S. I am so sorry to hear you have contemplated suicide so many times. Are you accessing any mental health supports, either online or in-person? Prayer is important to me, too, and I am praying for your safety and mental well-being.

Hi Argya, thank you for responding — it’s unfortunate that you have so much stigma to fight back against on top of the very difficult physical challenges you’re facing personally. You sound like a brave and determined young person and a bright light for the Parkinson’s community in Indonesia. I commend you for all that you’re doing to raise…[Read more]

Hi Argya, welcome to the forum. I’m so sorry to hear you’ve been diagnosed with PD at such a young age. The advice the others have shared is great and I hope you will continue to access this forum for information and support. It’s a great community. 🙂

Do you have a good support system of family and friends around you? Are you working or in…[Read more]

I’m so glad you feel more comfortable being open about your PD with your Facebook friends, Sharon! I’m sure that initial PD post on your personal page made you feel a little nervous, but I’m so glad you found that your friends were more accepting and supportive than you had thought they might be. How long have you been writing on your blog? Do you…[Read more]