Ally

Have you experienced medication side effects and stopped taking the medication or changed the dose as a result?  How did you approach this conversation with your physician? Were you able to find something else that worked better for you?

Related to this – if you could stop taking a medication for PD, what would it be and why would you want to…[Read more]

Patients are an integral part of clinical trials and Parkinson’s research from a practical standpoint, but what about their ideas and voices in terms of influencing the future of PD research and healthcare?

Have you ever heard of patient engagement or been involved in a patient engagement initiative through a healthcare provider, community group…[Read more]

Are you interested in participating in clinical trials? Joseph, one of the 30 Days of Parkinson’s contributors, says being part of Parkinson’s research through trials has given him a sense of purpose post-diagnosis. You can listen to his story here. 

Have you ever participated in a clinical trial? Would you like to? Why? If you have been…[Read more]

This month for Parkinson’s Awareness Month we’re running a campaign called 30 Days of Parkinson’s and profiling a new person in our community each day. You can read the stories on ParkinsonsNewsToday.com.

Which story have you enjoyed the most so far? Are you participating in this campaign? If you are, which day are you scheduled to share your…[Read more]

For many of us, tomorrow marks the start of the Easter long weekend. Happy Easter to you and yours if you celebrate!

Is Easter an important holiday to you? Why? Will you be doing anything special this week, or has COVID continued to hamper your plans?

Personally, I’m looking forward to a few extra days off from work and hopefully some nice…[Read more]

Woohoo! It’s March 31st, which means we have survived our second March in a global pandemic!

How did this March look different for you than last March? Have you been vaccinated yet or are you planning to get vaccinated soon? What lessons from the last 12 months do you want to carry with you for the rest of 2021?

For me, this March I felt a lot…[Read more]

As a caregiver, do you ever experience impatience with the person you’re caring for? Or are you ever on the receiving end of their impatience? How does that feel? Have you talked about how you can support each other when that happens?

Here’s a flash briefing about Sherri Woodbridge’s thoughts on this topic.

Has your doctor or MDS ever suggested taking up tai chi to help with your balance? What about golf? New research suggests that golf might be even better than tai chi at helping with balance.

What do you think? Does this surprise you? Have tried practicing tai chi and/or playing golf, and did you notice an improvement in your balance? Have any…[Read more]

Living with Parkinson’s disease has it challenges, and some days are worse than others, but you can still live your best life – perhaps just in a different way than you did pre-diagnosis. Click here to hear Sherri Woodbridge’s tips for living your best life with Parkinson’s.

What do you think? Are you living your best life or struggling? If…[Read more]

Do you notice that your symptoms worsen when you’re under stress? Research suggests that mindfulness can help. Is this a strategy you’ve tried or do you have other coping methods that help?

For me, mindfulness is challenging, and I have to do something “mindfully-active” (like mindfully washing dishes or going for a walk) to feel any…[Read more]

Getting a Parkinson’s disease diagnosis is life changing, and for many people, it’s a big decision to disclose this information to other people. Who did you decide to tell and when? What prompted you to tell them? Is there anyone you don’t plan to tell about your diagnosis? If so, why not?

For more food for thought on this topic, listen to this…[Read more]

Have you heard of PS128? It’s a probiotic which, according to a small study, may ease symptoms of Parkinson’s disease when used as an add-on treatment. You can learn more about it by listening to this flash briefing.

What do you think of this news? Have you tried or will you try PS128? If you’ve tried it, have you seen any results?