@ally
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Ally replied to the topic What Parkinson's research studies are you following? in the forum Parkinson’s Research News 5 days, 22 hours ago
Thanks for sharing, Frank. Please continue to keep us updated!
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Ally replied to the topic What Parkinson's research studies are you following? in the forum Parkinson’s Research News 5 days, 22 hours ago
Thanks for sharing, Frank. Please continue to keep us updated!
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Ally started the topic Personal growth and Parkinson's in the forum Living With Parkinson's Disease 1 week ago
Living with Parkinson’s is definitely not without its challenges, but it also presents some opportunities to grow – if we’re willing and open to it.
How do you think you have grown or changed since you were first diagnosed?
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Ally replied to the topic What's your favorite show right now? in the forum Living With Parkinson's Disease 1 week, 4 days ago
Thanks for all the great recommendations! I am just about finished a really quirky show I discovered on Amazon Prime called the Class of ’07. It wasn’t at all what I expected it to be but it’s pretty entertaining. 🙂
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Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 week, 4 days ago
Hi Marjorie, I apologise – I did not see your comment until now. Were you able to recover your post?
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Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 week, 4 days ago
Hi Marjorie, I apologise – I did not see your comment until now. Were you able to recover your post?
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Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 week, 4 days ago
Hi Marjorie, I apologise – I did not see your comment until now. Were you able to recover your post?
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Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis Information and General Questions 2 weeks ago
Hi Joanne, that is such a hard situation and I’m sorry your family is going through it. I don’t have any resources that I can recommend except maybe you could try calling the local government in your son’s area to see if any social assistance programs exist for folks in his situation. In Ontario, where I live, we can call 311 for that kind of…[Read more]
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Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis Information and General Questions 2 weeks ago
Hi Matthew, thanks for sharing. I am so glad to hear you have an awesome support system around you. Your advice to take things one day at a time is solid, too. Are your wife and son accessing any resources to help them cope so they can provide the best support to you?
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Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis Information and General Questions 2 weeks ago
Hi Jackie, thanks for sharing your experience. I really like your sense of humour! What kind of response did you get from your children and their classmates when you spoke to them about PD? Do you still do public speaking and education work?
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Ally started the topic Stories from the Parkinson's community in the forum Parkinson’s Disease Awareness and Advocacy 2 weeks ago
In April, Parkinson’s News Today published a series of personal reflections from folks in the Parkinson’s community.
Have you had a chance to check them out? Which of the stories did you most relate to or enjoy?
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Ally replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A Forum for Parkinson's Disease Caregivers 2 weeks, 5 days ago
I was really encouraged by a recent conversation I had with Mark Milow where he described intentionally seeking community using social media. It’s certainly not the same as meeting with others face-to-face, but it’s amazing how connected you can come become to others around the world through a phone or computer. This forum community is another…[Read more]
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Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis Information and General Questions 2 weeks, 5 days ago
Hi Phil, thank you for replying. I have also worked from home 100% since the pandemic began and I have noticed the same challenges you’ve described. You simply don’t socialize as much or even move your body as often when you work from home, unless you very intentionally make both a habit.
Is there any chance that you may return to the office at…[Read more]
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Ally started the topic What are your summer plans? in the forum Living With Parkinson's Disease 3 weeks ago
Summer is just a few short weeks away – and I can’t wait! This summer I have plans to finally visit California for the first time.
Do you have any plans to travel this summer? Do you have any special events (like weddings or graduations) to attend?
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Ally replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 3 weeks, 5 days ago
Chiming in to share a link to Bruce’s story about how he’s preparing for the 4200-mile bike trek! Bruce submitted it for this year’s Parkinson’s Awareness Month spotlight campaign. Thanks again, Bruce!
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Ally replied to the topic What made you smile this week? in the forum Living With Parkinson's Disease 3 weeks, 5 days ago
Aww, that’s so cute! Thanks for sharing! Your grandson sounds like a great little guy!
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Ally started the topic Young Onset Parkinson's Disease in the forum Diagnosis Information and General Questions 4 weeks ago
If you’re diagnosed with Parkinson’s disease when you’re under the age of 50, you’re considered to be part of the Young Onset Parkinson’s disease (YOPD) community.
For folks who have YOPD, at what age were you diagnosed? How do you think your diagnosis complicated things like your career, parenting responsibilities, and relationships?
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Ally replied to the topic Neupro transdermal patch in the forum Parkinson's Disease alternative treatments 1 month ago
Hi Vickie, wondering if you have any additional updates now that a few more months have passed. Are you still experiencing benefits? Is there anything else about your experience you can share. Thanks for starting this topic.
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Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 month ago
Amy, thanks for putting things in perspective – thanks to your husband, too!
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Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 month ago
Thanks for starting this topic, Elie!
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