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Ally

Home Members Ally
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@ally

@joelhahn welcome to the forums, Joel! Jean Mellano and I are the co-moderators. Please reach out to either of us if you have any questions. How did you find us? What kinds of information are you looking for? View
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    Ally replied to the topic What Parkinson's research studies are you following? in the forum Parkinson’s Research News 5 days, 22 hours ago

    Thanks for sharing, Frank. Please continue to keep us updated!

  • Profile picture of Ally

    Ally replied to the topic What Parkinson's research studies are you following? in the forum Parkinson’s Research News 5 days, 22 hours ago

    Thanks for sharing, Frank. Please continue to keep us updated!

  • Profile picture of Ally

    Ally started the topic Personal growth and Parkinson's in the forum Living ​With​ ​Parkinson's Disease 1 week ago

    Living with Parkinson’s is definitely not without its challenges, but it also presents some opportunities to grow – if we’re willing and open to it.

    How do you think you have grown or changed since you were first diagnosed?

  • Profile picture of Ally

    Ally replied to the topic What's your favorite show right now? in the forum Living ​With​ ​Parkinson's Disease 1 week, 4 days ago

    Thanks for all the great recommendations! I am just about finished a really quirky show I discovered on Amazon Prime called the Class of ’07. It wasn’t at all what I expected it to be but it’s pretty entertaining. 🙂

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    Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 week, 4 days ago

    Hi Marjorie, I apologise – I did not see your comment until now. Were you able to recover your post?

  • Profile picture of Ally

    Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 week, 4 days ago

    Hi Marjorie, I apologise – I did not see your comment until now. Were you able to recover your post?

  • Profile picture of Ally

    Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 week, 4 days ago

    Hi Marjorie, I apologise – I did not see your comment until now. Were you able to recover your post?

  • Profile picture of Ally

    Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks ago

    Hi Joanne, that is such a hard situation and I’m sorry your family is going through it. I don’t have any resources that I can recommend except maybe you could try calling the local government in your son’s area to see if any social assistance programs exist for folks in his situation. In Ontario, where I live, we can call 311 for that kind of…[Read more]

  • Profile picture of Ally

    Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks ago

    Hi Matthew, thanks for sharing. I am so glad to hear you have an awesome support system around you. Your advice to take things one day at a time is solid, too. Are your wife and son accessing any resources to help them cope so they can provide the best support to you?

  • Profile picture of Ally

    Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks ago

    Hi Jackie, thanks for sharing your experience. I really like your sense of humour! What kind of response did you get from your children and their classmates when you spoke to them about PD? Do you still do public speaking and education work?

  • Profile picture of Ally

    Ally started the topic Stories from the Parkinson's community in the forum Parkinson’s Disease Awareness and Advocacy 2 weeks ago

    In April, Parkinson’s News Today published a series of personal reflections from folks in the Parkinson’s community. 

    Have you had a chance to check them out? Which of the stories did you most relate to or enjoy?

  • Profile picture of Ally

    Ally replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 5 days ago

    I was really encouraged by a recent conversation I had with Mark Milow where he described intentionally seeking community using social media. It’s certainly not the same as meeting with others face-to-face, but it’s amazing how connected you can come become to others around the world through a phone or computer. This forum community is another…[Read more]

  • Profile picture of Ally

    Ally replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 5 days ago

    Hi Phil, thank you for replying. I have also worked from home 100% since the pandemic began and I have noticed the same challenges you’ve described. You simply don’t socialize as much or even move your body as often when you work from home, unless you very intentionally make both a habit.

    Is there any chance that you may return to the office at…[Read more]

  • Profile picture of Ally

    Ally started the topic What are your summer plans? in the forum Living ​With​ ​Parkinson's Disease 3 weeks ago

    Summer is just a few short weeks away – and I can’t wait! This summer I have plans to finally visit California for the first time. 

    Do you have any plans to travel this summer? Do you have any special events (like weddings or graduations) to attend?

  • Profile picture of Ally

    Ally replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 3 weeks, 5 days ago

    Chiming in to share a link to Bruce’s story about how he’s preparing for the 4200-mile bike trek! Bruce submitted it for this year’s Parkinson’s Awareness Month spotlight campaign. Thanks again, Bruce!

  • Profile picture of Ally

    Ally replied to the topic What made you smile this week? in the forum Living ​With​ ​Parkinson's Disease 3 weeks, 5 days ago

    Aww, that’s so cute! Thanks for sharing! Your grandson sounds like a great little guy!

  • Profile picture of Ally

    Ally started the topic Young Onset Parkinson's Disease in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 weeks ago

    If you’re diagnosed with Parkinson’s disease when you’re under the age of 50, you’re considered to be part of the Young Onset Parkinson’s disease (YOPD) community. 

    For folks who have YOPD, at what age were you diagnosed? How do you think your diagnosis complicated things like your career, parenting responsibilities, and relationships?

  • Profile picture of Ally

    Ally replied to the topic Neupro transdermal patch in the forum Parkinson's Disease alternative treatments 1 month ago

    Hi Vickie, wondering if you have any additional updates now that a few more months have passed. Are you still experiencing benefits? Is there anything else about your experience you can share. Thanks for starting this topic.

  • Profile picture of Ally

    Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 month ago

    Amy, thanks for putting things in perspective – thanks to your husband, too!

  • Profile picture of Ally

    Ally replied to the topic DBS surgery forum in the forum Parkinson's Disease alternative treatments 1 month ago

    Thanks for starting this topic, Elie!

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