Ally

Happy to hear you can still enjoy some of the activities that bring you joy, Gregg. 🙂 I hope that remains for a long while yet.

Hi Jo, were you always an early riser or is that something new?

Carol, this is off-topic but I LOVE cats and would love to hear more about your experience breeding and showing them!

That’s awful. I wish people would be more mindful of the fact that disability isn’t always visible. How did your friend respond when that happened? My friend has PF and always worries about people judging her for taking elevators etc. when she doesn’t have her portable oxygen with her because she looks young and healthy. In fact, she’s not. Pe…[Read more]

Love your positive attitude, Bob! I bet it’s contagious. 🙂

Too funny, Lou! You have a great sense of humour.

That’s awesome to hear Jeffrey. What do you like to do to stay active? Do you work out every day?

Happy to hear that reducing your stress has had a positive impact on your PD, Tim. What do you like to do now that you’re retired?

All of your points are well taken, Jo. Did you have a formal conversation with your physicians re: their philosophy on discussing stages, or is this just something that evolved naturally without discussion? Just curious if it was your request not to use stages or if the doctors just practice that way. Thanks again for sharing your view!

I really appreciate your perspective on this. Thanks for sharing, Robert.

I’m glad to hear you self-advocated and got the referral you needed, even if your physician was initially skeptical. Do you have any advice for others who might be in that situation right now?

I agree with Jean, Joe is a lucky guy. What about you, Shirley? What support do you have in your role as Joe’s caregiver?

Great idea. I haaate taking pills and I think if I had to take more than a couple at once I would start to gag. Thanks for sharing, Shirley.

Wow, Gail, thanks for sharing. I’m so impressed with ability to deliver difficult news in such a positive and hopeful way. Your references to your faith really speak to me. God is good and he will always provide for us, even when things are difficult. You sound like an amazing mom and grandma and I’m glad your family has been so supportive of you…[Read more]

Thanks for sharing your experience, Gail. It’s super helpful to hear from someone who has ‘been there, done that’!