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Toni Shapiro

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@toni

I just lost a reply to Gary Munson and wondering if it is on hold for some reason or if it can’t be posted or I neglected to tick the reply. I did click on Submit. Is there somewhere I can find what I wrote to post it? Thanks View
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  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic Do you have low back pain not responding to PD medications? in the forum Parkinson's Disease and exercise 1 month ago

    Hi Kim, I really understand what you are saying about wondering if your symptoms are not the norm.  The more I learn about Parkinson’s the more I realize it impacts pretty much everything in your body.  Apparently low back pain and PD together are common. The stiffness of our trunk muscles doesn’t help and my understanding is that Central Pain c…[Read more]

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    Toni Shapiro replied to the topic Humor and Parkinson’s in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month ago

    Thanks Mary Beth…Yes, I use humour all the time.  Love, love humour! It makes me smile and even if I am making a joke about myself it lifts me.  I notice that other people become more comfortable when I use it and will make funny observations about me in return.  My husband and I banter and have fun. I enjoy it. Yes,  I am aware my Par…[Read more]

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    Toni Shapiro replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 1 week ago

    Hi Richard, I am wondering if you recall where you saw the statements about the reduction or elimination of Levodopa and if you feel ok sharing that?  Have you ever forgotten your dose every so often and felt great rather than the usual off feeling like I have? Thanks, all the best. Toni

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    Toni Shapiro replied to the topic Levodopa Reduction? in the forum Parkinson's Disease Medications 1 month, 1 week ago

    I have had 2 L/C increases this past year.  It helped the off times I was having about 30 minutes prior to my next dose.  I can usually tell when its close to the time to take L/C.  It mostly starts with my inner Parkinson’s acting up and/or RLS and/or pain in my legs.  That said there are times when I realize that I am well over an hour past due…[Read more]

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    Toni Shapiro replied to the topic Driving with PD (DWPD) in the forum Living ​With​ ​Parkinson's Disease 1 month, 3 weeks ago

    Yes Sherman, I hear you and I feel it too.  When I was asked what is the thing I miss the most my answer was driving.  I sold may car and gave up my license a few years ago.  That was very, very difficult for me but the best decision I could have made.  I noticed that my judgement was off in that I couldn’t tell just how close or far away ano…[Read more]

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    Toni Shapiro replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 1 month, 3 weeks ago

    Hi Ann,

    I am really glad that you mentioned pseudobulbar.  In my post where I list most of my symptoms, at the end I mention crying inappropriately.  I should have mentioned pseudobular by name in the post as that is what I have.  It would have been helpful to anyone not familiar with the term but has the symptom, so thank you for adding th…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 1 month, 3 weeks ago

    No, I live in the suburbs and transit isn’t good here however Vancouver, 20 minutes away, has a good transportation system that is expanding as I write this.

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic How can we make improvements to the forums? in the forum Using our forums 2 months ago

    Hi Joanna,  I was surprised to read that you don’t find much that is positive on this site. Personally I find  positives in all of the Forums. The Forums are helpful to me in various ways and contain information that does embrace the positive, including the Symptoms Forum and Living With Parkinson’s Forum.  To me a symptom is not a negative in it…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic Do you like to set goals? in the forum Living ​With​ ​Parkinson's Disease 2 months ago

    Yes, I like goal setting.  I like what Ally said about breaking down goals into manageable smaller milestones.  I find I can overwhelm myself with all that I want to do and become frustrated and anxious which isn’t helpful. Presently I write down what many would call just a daily to do list but is very much like goal setting to me and keeps me f…[Read more]

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    Toni Shapiro replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 2 months, 2 weeks ago

    Hi Ally,  Yes, Thank you.  My post appeared a day or two later.  The bus taking has been fun except when I need to take my walker. I like to people watch too.  It’s like I am a part of society again. Unfortunately I can’t read well anymore which was second to driving in what used to give me the greatest pleasure.  PD has played around with my eyes…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 2 months, 2 weeks ago

    Hi,  I would say having to give up my driver’s license.  I drove for 60 years and loved every minute behind the wheel. I drove a stick shift until I couldn’t manage the clutch anymore and although driving an automatic was boring it still gave me a good sense of independence. It was incredibly sad and painful for me to give up driving altogether b…[Read more]

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    Toni Shapiro replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 2 months, 3 weeks ago

    Why is my post on hold?  Thanks! Toni

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago

    Hi Judy, Same with me re sciatica.  I was surprised to learn the various PD issues that come from the spine.

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago

    Hi Tom, When you say seeing problems do you mean eye problems or hallucinations? I also have the tingling in my feet, bees buzzing in my feet, bubbles in my feet.  It really bothers me too.  For me I think it is the business of the spinal cord and sciatica which is linked to PD.

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago

    Hi Dick, I just saw your reply now.  I am so glad you mentioned Akathisia.  I started a thread in 2020 and there were many responses going through to 2021.  Many of the posts are very detailed which I found extremely helpful.  Jo was great with  details.  It is good when a post is descriptive as often there is so much to it you miss somet…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago

    Thank you to all who responded to my post.  It is so helpful and I very much appreciate it. Karlyn, I noticed that you included sciatica.  I too have it and just this year I realized that there is a connection. The spinal cord and brain stem seem to play in everything. Jeffery, I was interested in what you said about stress.  I have it big time an…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 3 weeks ago

    Katherine, thank you so much for your contributions to this forum.  Your posts have been very helpful to me and you have the same kind of questions about PD that I have.  I also believe most doctors are unaware of many other symptoms that are related to PD and that more and more will be attributed to it in time. There is a thread here that asks w…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic PD and cardiac symptoms in the forum Using our forums 2 months, 4 weeks ago

    Hi Katherine,

    This is Toni.  Thank you for your post.  When you mentioned at least 20 symptoms and that one day you would list them all I found myself wishing you would have done that in your post. I am very interested.  I posted a new topic asking if participants would list all of their symptoms that are PD related.  I think we can learn a lot…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro started the topic What are all of your symptoms that are PD related. Please list them. in the forum Parkinson's Disease Symptoms 2 months, 4 weeks ago

    I have noticed that a number of posts make reference to having a lot of PD related symptoms. I know there are many but often they are not well known to have a connection to PD.  I think it would be interesting to know what kind of things others are going through. Making a list of them on one post would be eye opening. I realize that this forum is…[Read more]

  • Profile picture of Toni Shapiro

    Toni Shapiro replied to the topic PD and cardiac symptoms in the forum Using our forums 3 months ago

    Hi Jorge,

    I don’t know what is going on with the pain and pressure I feel in my chest almost daily. Until I read your post I hadn’t thought that it could be Parkinson’s related.  I don’t know why it didn’t occur to me since pretty much every thing else I have is related.  I am waiting for the results of a chest x ray and a dye scan but to date m…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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