Beth T Browne

Joan, I am f inding my doctor won’t talk about any thing except what has been tested and proven.  I have recently changed doctors, but only have seen him once.  So, maybe he is the same.  Since I cannot handle the LevaDopa, I am trying Mannitol, and I recently started taking Niacinamide, 500mg, 1 a day.  I am petite only weighing 94, so I am conce…[Read more]

Hi Gwendoline,

Thanks for sharing about your husband.  I wanted to comment my episode with lost of taste.  First, I was diagnosed a year ago this month, however, we are sure from some symptoms, tremors and sleep issues, I had it the year before.  I lost my sense of taste a week before Thanksgiving last year.  I was pretty devastated.  I coul…[Read more]

I have been taking 2 teaspoons of the Mannitol I purchase from Amazon for about 6 months. I noticed the 10th of this month, today is the 13th, my tremors were better. I was getting food to my mouth with out it falling off the utensil. I only weigh 93 pounds, so I didn’t not want to take too much. I had to stop the Leva/Dopa last year as it c…[Read more]

Glen, what about sleep. Do you have any problems there? If so, did the Lexapro help there. Or did it make sleep more difficult?
Thank you,
Beth

Hi Katherine.
The LevaDopa meds me so nauseous I finally had to stop. I lost 5 pounds. I am petite and only weighed 98, now 93. I was so concerned I wasn’t able to take anything to help my Dopamine problem my anxiety got worse. I would sleep 4 hours or less, fatigue during the day, fall asleep sitting up watching TV which was bad for o…[Read more]

Hi Laura,

I saw a new PD doctor today. I didn’t seem to be getting much help from the first one. He could tell my anxiety was out of hand just meeting me. I asked him about an antidepressant I read about that was good for Parkinson’s. He knew of it, said he prescribed it often, but wasn’t sure it would help my anxiety, but sent in a presc…[Read more]

Hi Melissa,

I did start off with just 1/2 of the Trazodone, and it didn’t do much at all to help my sleep. Xanax helped taking 1/2 at bedtime, but not enough for more then 4 hours. My doctor who gave me the Xanax told me to cut it in half, and that half in half which is the only way I can take it during the day. I only weigh 93. I stopped t…[Read more]

Thanks Thomas for this info.

Hi Melissa. My new primary just put me on Trazodone for my sleep. When he gets my blood work up, he may change it. However, I do not like the way it makes me feel the next day. I can’t even describe it. It is 50mg. So, now what do I do? Hopefully, he will try something else. I also was taking a small amount of Xanax for anxiety another d…[Read more]

I can not hand LevaDopa at all. My doctor gave me a bottle of Rytary. My anxiety got worse. I let her know and she said Rytary doesn’t cause anxiety, yet the pharmacy said it could, the written literature with it said it could, and my primary said it can cause anxiety. She got a little short and not to pleasant because I did not believe her.…[Read more]

Hi Charles,

Thanks a bunch for your newsy note. Good to know those 20 yrs were worth it. I have osteoarthritis and osteoporosis and that is why I stopped the gym. I tried going not doing the weights, which the doctor said to stop, but I had a routine for 20 yrs, and not being able to continue, I guess I got disappointed, and thought I would…[Read more]

Thanks Barry. I guess I need to exercise more. At 84, not as motivated as I was back in the day. A year after I had breast cancer, and surgery, I went to the gym faithfully, for 20 yrs, and did the weights and treadmill. The last trip to the gym was when I was 73. I then made sure I was walking a lot. Since I moved three yrs ago, I have…[Read more]

Thank you so much for reply Paul. I guess it isn’t hurting me since I have been doing this about 3 months, I think. I will check out the site you sent me.

Beth

I was diagnosed a year ago this month. I am pretty sure I had it the year before, as I had serious sleep issues and my right hand shook badly. I thought it was too much thyroid. I went to a movement doctor, had an MRI, and said I had Dopamine lacking in my brain.

I am seeing a new doctor in July. I won’t go into all the reasons why, but one i…[Read more]

Hi Robert,

The brand I get on Amazon says on the front, “Mannitol Powder and it has a large MB printed under that, then “Mannitol Balance”. Down the front and to the left it says “Made in France, Packaged in the USA. There is also more info about the ingredients. The net weight is 35.27oz (1000g)

I only weigh 93 pounds, and have problem…[Read more]

Thank you. I have been taking 2 tsp in my coffee and that is all. I knew it could cause trips to the bathroom if taking to much. Last week I upped it to 3. I only weigh 93lbs, so I am careful with most things. But, I have not noticed any change, so we shall see. Depending on things, I may try 1 Tbs down the road. Nice to hear you spoke to a…[Read more]

Paul, could you share the exact kind you have been taking? Many on here say they got theirs in Australia (kind?), some in Israel (ingredients?), and Spain. Don’t know what is different in each of those types. I am a bit confused. I have been taking Mannitol for about 5 months. I order it on line from Amazon and the kind I get is made in F…[Read more]

Hi Laura,

Thanks so much for your message.  Very interesting, and I say that because I recently changed primary care doctor.  I was having difficulty finding one who listened, cared, and was willing to work with me.  I discussed my problem with my heart doctor.  He recommended one and said in the meantime he would give me a small amount of Xan…[Read more]

I am so glad to see all these comments.  I started using Mannitol about two to three months ago.  I was diagnosed with PD a year ago, we feel sure I had it the year before due to shaking hand and sleep issues.  I am taking some I ordered from Amazon and it said it is made in France, packaged in the US.

I was hoping my tremors would get better, an…[Read more]

I don’t believe I had anxiety before Parkinson’s.  No one every said I did or appeared to have it.  But it really comes out when my tremors are bad.  If I am home and not doing a lot, the anxiety is better.  But if I a preparing a meal, clean up, going shopping, getting gas, as I still can drive, I definitely shake a lot more and feel the anxiety…[Read more]