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  • At 83 I found out I have Parkinson’s.  Learning symptoms, I think I had it a year sooner.  I discovered at 80, my father was not really my father.  I never saw him much as my parents divorced when I was 2.  When I did a DNA with Ancesory, and later with My Heritage, I discovered I was 49% Jewish.  I thought I was 1/4 Cherokee, since the man I thou…[Read more]

  • I did experience a sudden drop in my blood pressure, twice, before I was diagnoised.  It was mid-morn, and I had had breakfast both times, and was standing at my Ipad when I knew I was going to faint.  I immediately laid down.  It took me about 20-25 minutes, to feel good again.

    I did not know anything about PD, except the shaking part.  As I hav…[Read more]

  • I found this article about dosage very interesting, as I started Carbidopa/Levodopa 25/100mg July 23, of this year. I took 1/2 dosage 2x a day for 2 weeks, then was to increase it to 1 tab 2x a day. It made me very nauseous and I could hardly eat, so two week later, I was taken off of it. My doctor suggested I buy Dopa Mucuna OTC. I had to…[Read more]

  • Glad to see this research. I am 83, and wondered why, at this age, I got this. No one in my mother’s family had it. I do not know about my father’s side. So can’t say it was hereditary. It just seemed to me strange when I am more near death, then coming down with PD.

  • Just read the article on blood pressure drop. About a year ago, suddenly one morning, had such a drop. I had been up several hours, had my breakfast, and was standing when I suddenly felt faint, so I quickly laid down on the floor and put my feet up. After 30 min I was okay. But, it happened again a week later, so I notified my heart doctor.…[Read more]

  • Beth T Browne posted an update 4 weeks ago

    Just read about the study using Simvastatin. I was diagnosed with Parkinson’s in July of 2020, at the age of 83. I have been taking Simvastatin for many years. I have never had a weight problem, always very small, as well. I had high blood pressure for years, and did not understand that, as I was not a big red meat eater. Recently, I was a…[Read more]

  • I am 83, and was diagnosed in July of 2020.  My right hand had been shaking for a year.  I had been on thyroid for years, and suddenly, it appeared I got a bad dose, and ended up at the hospital.  Once I changed brands, the shaking got better, but never stopped.  My thyroid doctor suggested I see a movement doctor.  I was very shocked to lear…[Read more]

  • Thank you Karen for taking the time to let me know your life as it is.  I admire you greatly, as I know taking care of someone who has a disease is extremely challenging for both.

    I will talk to my doctor about a support group.  Since writing you, they have discovered a mass on my left lung, but the new primary doesn’t think it is cancer, how…[Read more]

  • Beth T Browne posted a new activity comment 1 month, 2 weeks ago

    Hi Sharon. I saw your comment about Amantadine. Before PD, I had taken that for years as I was getting lung problems from colds and had pneumonia a few times. But when I took one Amantadine daily for a couple of days, I got better really quick, so I called it my miracle drug. Then about 5 years ago, I noticed it was causing me to be shakey and…[Read more]

  • Being diagnosed almost 2 months ago, I have been reading the newsletter and Michael J Boxes news to learn as much as possible. I now am dealing with Pancreatitis, at 83, which I never have ever had, and not hearing back from my doctor, but not sick enough to go to the hospital, so right now, probably not in a good space. Being alone during this…[Read more]

  • I am 83 and was just diagnoised in July of this year.  My MRI showed my problem was lack of dopamine.  I have had shaking in my hand, and a slight balance problem, but my walking is not a big problem right now.  I had a lot of nausea on the dopamine meds, and the doctor took me off.  I think I may have had this disease a year ago.  I am conc…[Read more]

    • Beth, I’m sorry to hear about the diagnosis. It’s always best to talk to your doctor about the right dosage and “medicine cocktail”. But I can tell you that it took my Dad a while to figure out the right system to handle his symptoms. My best advice is patience! Keep at it.

  • Hi Mary Beth.

    I was reading all the letters here, and must admit, it scares me.

    I was diagnosed last month, July, but am pretty sure I had PD last year after reading the symptoms.  I am 83, and never thought of getting this disease.  I am also a 27 yr breast cancer survivor.  I do have a leaky heart valve, as of about 3 yrs ago, but it is do…[Read more]

  • Beth T Browne posted a new activity comment 2 months ago

    Hi Becky. I tried sending you a message the day I read your message, but it came back. So now I don’t know what I did wrong in getting my reply to you. I put another comment on today regarding the problems I am having with the drug I need. Feeling a bit scared of what to do. I will call my doctor after I speak to the new gastrointestinal d…[Read more]

    • I got an email , somehow? With your reply…this technology is much smarter than I am ,,,lol..don’t know how things happen”” they just do! Yes, PD is awful yuck but I just live each day, one day at a time .”. I have fallen too many times and broke my first bone (actuallyshattered my wrist) about a year ago, due to PD… Inow use a walker pretty m…[Read more]

  • Beth T Browne posted an update 2 months ago

    I am having extreme difficulty with the drug, Carbidopa/Levodopa 25/100 mg. It causes so much nausea, it is hard to eat, plus, I can’t get out of the bathroom very long. I was only on it a couple of weeks. Saw the doctor last Thursday. She took me off of it and said try OTC Mucuna. Well, that was even worse. Took the first pill after d…[Read more]

  • Beth T Browne posted an update 2 months ago

    Hi, I just joined. I found out last month, July, I have Parkinson’s and so surprised. I am 83, a 27 yr breast cancer survivor. I do have issues with my lungs, like allergies that me sick, but worked in a corporate environment until I was 72. I moved to a new location 2 yrs ago, to be a little closer to my daughter. No one in my mother’s sid…[Read more]

    • Hi Beth , you are one if the first I’ve met who has Been diagnosed in their 80s .you might try eating like a cracker or something just to maybe help right before you take your carbsdopa .. I’ve never had any issues except occasionally my trazadone.
      No one in my family has had PD either. And I grew up in Galveston , Texas and we would as kids run…[Read more]

      • Hi Becky. I tried sending you a message the day I read your message, but it came back. So now I don’t know what I did wrong in getting my reply to you. I put another comment on today regarding the problems I am having with the drug I need. Feeling a bit scared of what to do. I will call my doctor after I speak to the new gastrointestinal d…[Read more]

        • I got an email , somehow? With your reply…this technology is much smarter than I am ,,,lol..don’t know how things happen”” they just do! Yes, PD is awful yuck but I just live each day, one day at a time .”. I have fallen too many times and broke my first bone (actuallyshattered my wrist) about a year ago, due to PD… Inow use a walker pretty m…[Read more]

  • Beth T Browne became a registered member 2 months ago

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