Beth T Browne

Hi Ally,

Thank you for your response.   I have not tried cognitive behavioral.  No one has discussed it with me re my anxiety.  I have not tried CBT either, but would not be afraid too, if I had the right person to assist me.  Don’t know of any doctor to discuss that with.  Being sensitive to medications, I would need responsible assist…[Read more]

Oh yes.  I was diagnoised July 0f 2020, but we believe I had it a year before, as I had tremors, and sleep problems.  Now, the anxiety has been bad and if I have a problem with something, that is a daily, monthly or whatever issue, I really shake and get very upset.  I do NOT like having anxiety.  I recently was prescribed a very small dosage of…[Read more]

Thank you Ian.  Have you every heard of  Bill Bucklew?  He has had Parkinson’s a long time, but you would not know seeing him.  My son just sent me a YouTube.com TEDXChicago show of him, and he is an amazing man.  I tells a story you find hard to believe, but with some humor.  He is saying some great things.  Hope you can pull it up.

Hi Ian, I have been on here a lot trying to learn how I got this so late in life, and asking questions.  I lost my sense of taste 2 weeks before Thanksgiving.  It was awful.  I did not have COVID, was checked.  My movement doctor said it was Parkinson’s.  I am starting to get some back, and she said I would not.  I did ask on here about lost of…[Read more]

I am 84 this month.  No history of Parkinson in my family.  When I was 80, I had shaking in my right hand.  I also had sleep problems which I didn’t understand.  I moved 60 miles when I was 80 to be near my daughter.  That as when I really noticed the shaking.  I could barely get the food to my mouth.  I thought it was too much thyroid, but my d…[Read more]

I was diagnoised in July of 2020.  At 83, it was a shock.  I am a 28 yr cancer survivor, and there is no PD in my mother’s side of the family.  I do not know about my father, who I discovered at 80 when I thought it was the man I knew growing up, but did not have a relationship with.  He died in 1970, and I have found no relatives, except one 2…[Read more]

I would also like to know more.  Does it always work? I hear it is expensive, but how much.  I am new to PD, and I am researching as much as I can for help for my tremors.

I think we should try anything that is not harmful.  Although my doctor said butyrate acids does not cure PD, and it is okay to try, it seems to work for some and some not so.  I was also told losing your taste is one of Parkinson’s symptoms, and that it doesn’t come back.  I was tasted for the virus twice, and it was negative, and I have no sym…[Read more]

I saw my Parkinson’s doctor last week.  I told her about some having good results from using these items.  She was not recommending it.  She didn’t say it was harmful, she just said it usual provides a false result, like when tests give some the real medication and others receive a fake one.

Hi Murray. Just read your May note and you are the only person I have heard lost their taste. I just lost mine last month, so I am very interested in how you got it back. I was just diagnosed in July of this year, but may have had PD last year, as I had sleep loss, and my right hand was shaking a lot. Anyway, I have never heard of Butyric acid…[Read more]

Hello,

I was diagnoised in July of this year with Parkinson’s, but I may have had it a year before with only sleep problems and some shaking in my hand, which I thought was related to thyroid.

I am almost 84, petite, and in my older age, my weight dropped down to 98. When I was put on the prescription of dopamine, it made me so nauseous I c…[Read more]

Hi Mary Beth,

Beth here again. As I have mentioned, was diagnoised in July. However, may have had it a year possibly, and did not know.

Two weeks before Thanksgiving I lost my sense of taste. Can’t tell you how awful it has been, and I thought bizarre since I have not had this disease a long time, mostly tremors in my hands, and a little b…[Read more]

Hi Russ,

I was amazed in reading your comment about how the items you mention that you take 12 of a day, had helped you so much. I was diagnoised this year, but we feel I had it a year before. It started with tremors, then after an MRI of my brain, she said I was lacking Dopamine. The did not agree with me. Made me so nauseous. She now has…[Read more]

Hi Robert,

I am 83, diagnoised this year, but we think I already had it a year. Like you I have pretty much the same problems with my lungs. Got Whooping Cough when I was 2. I moved 2-1/2 years ago to be closer to my daughter. It is only 60 miles north of where I lived, but I have had serious allergies that turn into lung problems 3 times…[Read more]

Hi Robert,

I am 83, diagnoised this year, but we think I already had it a year. Like you I have pretty much the same problems with my lungs. Got Whooping Cough when I was 2. I moved 2-1/2 years ago to be closer to my daughter. It is only 60 miles north of where I lived, but I have had serious allergies that turn into lung problems 3 times…[Read more]

Hello Mary Beth.  I did call and talk with her, and I had a COVID test, which was negative, and I felt sure it was not that, as I have no other symptoms.

My doctor suggested adding more seasoning.  I have a heart condition, so I am advised not to add too much salt.  I use Stevia for my coffee.  However, none of this has worked.

Now I wonder wha…[Read more]