Beth T Browne

I think we should try anything that is not harmful.  Although my doctor said butyrate acids does not cure PD, and it is okay to try, it seems to work for some and some not so.  I was also told losing your taste is one of Parkinson’s symptoms, and that it doesn’t come back.  I was tasted for the virus twice, and it was negative, and I have no sym…[Read more]

I saw my Parkinson’s doctor last week.  I told her about some having good results from using these items.  She was not recommending it.  She didn’t say it was harmful, she just said it usual provides a false result, like when tests give some the real medication and others receive a fake one.

Hi Murray. Just read your May note and you are the only person I have heard lost their taste. I just lost mine last month, so I am very interested in how you got it back. I was just diagnosed in July of this year, but may have had PD last year, as I had sleep loss, and my right hand was shaking a lot. Anyway, I have never heard of Butyric acid…[Read more]

Hello,

I was diagnoised in July of this year with Parkinson’s, but I may have had it a year before with only sleep problems and some shaking in my hand, which I thought was related to thyroid.

I am almost 84, petite, and in my older age, my weight dropped down to 98. When I was put on the prescription of dopamine, it made me so nauseous I c…[Read more]

Hi Mary Beth,

Beth here again. As I have mentioned, was diagnoised in July. However, may have had it a year possibly, and did not know.

Two weeks before Thanksgiving I lost my sense of taste. Can’t tell you how awful it has been, and I thought bizarre since I have not had this disease a long time, mostly tremors in my hands, and a little b…[Read more]

Hi Russ,

I was amazed in reading your comment about how the items you mention that you take 12 of a day, had helped you so much. I was diagnoised this year, but we feel I had it a year before. It started with tremors, then after an MRI of my brain, she said I was lacking Dopamine. The did not agree with me. Made me so nauseous. She now has…[Read more]

Hi Robert,

I am 83, diagnoised this year, but we think I already had it a year. Like you I have pretty much the same problems with my lungs. Got Whooping Cough when I was 2. I moved 2-1/2 years ago to be closer to my daughter. It is only 60 miles north of where I lived, but I have had serious allergies that turn into lung problems 3 times…[Read more]

Hi Robert,

I am 83, diagnoised this year, but we think I already had it a year. Like you I have pretty much the same problems with my lungs. Got Whooping Cough when I was 2. I moved 2-1/2 years ago to be closer to my daughter. It is only 60 miles north of where I lived, but I have had serious allergies that turn into lung problems 3 times…[Read more]

Hello Mary Beth.  I did call and talk with her, and I had a COVID test, which was negative, and I felt sure it was not that, as I have no other symptoms.

My doctor suggested adding more seasoning.  I have a heart condition, so I am advised not to add too much salt.  I use Stevia for my coffee.  However, none of this has worked.

Now I wonder wha…[Read more]

Two weeks before Thanksgiving, my taste went away.  Being a fairly new PD patient, this has hit me very hard.  I had not cried until then, and I still cry at times.  I have no desire to grocery shop, but when I do, I don’t know what to by.  Then I sit down to eat, and there is no taste.  What I taste is the same thing with everything, not desira…[Read more]

Good question.  I just started noticing I have some balance issues.  My new primary thought I should get a Life Alert thing you wear around your necklace or a bracelet.  He said even though I have a cell phone, it may be difficult to always carry it around with you, so if you fall, and need help, what do you do.

If anyone out there has one of th…[Read more]

Hi Rich,

My reply came back.  So I will try this one more time.

I did the Sinemet 3x a day, 1/2 pill, and got the nausea.  My doc never mentioned to try it your way, however, when the 15% Dopamine I am not taking starting making me dizzy at morn, noon, and night, she suggest to take 2 in the AM and one at lunch.  That seems to be working.  B…[Read more]

Hi Joseph,

I have heard exercise is important, so I have finally started walking 30 min a day, hoping to up it soon.  At 83, with arthritis, I don’t push anything too much.  I did a lot of dancing when I as younger, and wish they had classes for PD patients only.  I would certainly give that a try.

I have been taking Melatonin for years, but…[Read more]

Hi David,

Thanks for taking time to write.

I did try the tennis ball thing, as my mouth piece, special made for mild sleep apnea, worked fine, as long as I did not turn on my back, then the apnea kicked in.  I did not know I slept on my back.  Anyway, the tennis balls thing only woke me up, and then I would lay there for anywhere from an hour t…[Read more]

Hi Joyce,

I just realized I had not responded to your note.  I am so sorry.  I got a lot of comments, but none that have worked yet.

I have never heard of orthotic hypotension.  Thanks for the info.  I will talk with my doc about it.  I stopped the prescription medication and my doctor said try it 2-low dose (15%) w/breakfast, and only 1 at lunc…[Read more]

Hi John,

Just opened my Ipad and read you nice note.  Thanks so much for taking the time to share.

I was diagnoised the end of July of this year, so I am about four months also.   I am petite, now 92 pounds, but started at 98 until the nausea hit and the eating was not there much.  I have never had a weight problem, always been small.

My do…[Read more]

Hi Paul,

Thank you so much for your note.  It is so encouraging to know someone else who only gets 4 hours sleep.  And, that you appear to not have other issues due to lack of sleep.

I have allergies very bad and sometimes, if I can’t get them under control, my lungs get infected, and I get very sick.  Sleep is so important for me, mainly beca…[Read more]

Hi Lyn,

First off, I so appreciate you taking the time to write me about my medication and Parkinson’s.

My doctor did initially start me off doing what you suggested. 1/2 of the medication for two weeks, increasing it to 1 full pill, 3 x a day.  I had the nausea with the 1/2, but went on and increased it for a few days to the full prescribed do…[Read more]

Hi Deborah,

Thank you very much or your time to replay.  I am seeing a Parkinson doctor in what is know as the top Medical Group in Orange County.  She had a brain scan and said while my brain showed no signs of Dementia it did show I have no Dopamine.  So that is why she started me out on it.  I am small in statue, and have always had dif…[Read more]