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Robert Harris replied to the topic Faith in the face of adversity in the forum Living With Parkinson's Disease 1 week, 1 day ago
- As Parkinson’s continues to take its toll on me, my handwriting (which earned me a D in 6<sup>th</sup> grade) is now impossible to read. I don’t know why I keep trying to write, or why I keep buying new pens. I think I want to write my life the way I want it to be. But God wants to write my life the way he wants it to be. So we struggle. I sta…
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rose and
Robert Harris are now friends 2 weeks, 6 days ago
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Rev. Charles D. Good and
Robert Harris are now friends 2 weeks, 6 days ago
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Linn Starr and
Robert Harris are now friends 2 weeks, 6 days ago
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Beth T Browne and
Robert Harris are now friends 2 weeks, 6 days ago
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Robert Harris replied to the topic Online Faith-Based Support Group in the forum Living With Parkinson's Disease 3 weeks, 5 days ago
RE: Saddleback Church Parkinson’s Support Group
Meets the Second Wednesday of Each Month via Zoom, from 2:00-4:00 pm (Pacific)
WELCOME
Manny Johnston and Robert (Bob) Harris, facilitators
This group provides a relaxed and friendly atmosphere where anyone interested in learning more about Parkinson’s disease—including Parkies, caregivers, relat…[Read more]
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Robert Harris replied to the topic Faith in the face of adversity in the forum Living With Parkinson's Disease 1 month ago
Ally:
I don’t know if this is the appropriate place to post this, but it might be of interest to readers. Beginning today (December 16, 2020, the Saddleback Church Parkinson’s Support Group will begin a once-a-month Zoom meeting faith-based support group. It is Christian-based, but we welcome Parkies and their supporters of all faiths (and just…[Read more]
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Robert Harris replied to the topic Parkinon's impact on sleep and dreaming in the forum Parkinson's Disease Symptoms 2 months ago
I bought a weighted blanket a year so ago. It was 15 pounds, which I believe is a standard weight. (They go up from there.) As a Parky, however, I found it very difficult to move the blanket around, to get it, say, covering my feet and up to my neck. Also, I have typical Parkinson’s figit, causing me to change positions almost constantly. The w…[Read more]
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Robert Harris replied to the topic Diagnosed July 2020 in the forum Diagnosis Information and General Questions 2 months ago
I’ve suffered from “sleep disturbances” since I was about 8 (I’m 70 now) I’ll give you a digest of what sort of helps with sleep for me.
1. I take a pretty hot bath just before bedtime. The theory is that when your body starts cooling down, your brain goes into sleep mode, because it takes a cue from the temp change.
2. Relatedly, make sure…[Read more]
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Robert Harris started the topic Connect the Dots in the forum Coronavirus (COVID-19) and Parkinson’s 3 months, 2 weeks ago
1. A couple of recent studies have revealed that Vitamin D3 improves resistance to and helps shorten the illness of Covid-19.
2. Studies have also revealed that most Parkinson’s patients have a Vitamin D3 deficiency. (When I was tested for the first time a few years ago, my reading was 15.)
3. Doctors recommend a level of 40 or above.
4.…[Read more]
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Robert Harris replied to the topic Are you always honest about how you're feeling? in the forum Living With Parkinson's Disease 5 months, 3 weeks ago
No. If I were always honest when someone asks, “How are you today?” or “How are you feeling?” much of the time I would have to day, “Wretched, exhausted, tired, having some more balance issues.” Other times I would have to say, “I’m sleepy because my myoclonous kicked in a 3:30 this morning and kept me awake. I couldn’t move around it because I…[Read more]
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Robert Harris replied to the topic Staying Motivated in the forum Living With Parkinson's Disease 6 months ago
To Robert C from Robert H:
Well, compadre in PD combat, we have a lot in common. Your last paragraph in another related post mentions your problem with typing. My accuracy rate is about 10-6: for every ten letters I type, six of them are typos requiring me to back up and retype. If my meds have pretty much burned off, I have to quit typing. And…[Read more]
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Robert Harris replied to the topic What side effects do your medications have? in the forum Parkinson's Disease Medications 6 months, 1 week ago
It can sometimes be a challenge to separate what is a side effect of medication and what is a symptom of Parkinson’s. For example, fatigue, insomnia, constipation and a few other presentations can be related to either the disease or the medication (or maybe both). If you read the monograph accompanying these medicines, you’ll note that they will…[Read more]
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Robert Harris replied to the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 8 months, 1 week ago
Russ:
What is the strength of your pills? Do you take straight butyric acid or GABA?
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Robert Harris replied to the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 8 months, 1 week ago
Okay, let’s see if we can discover why natural remedies are so often shoved aside by the pharmaceutical industry:
1. A remedy must be proven to be SAFE and EFFECTIVE before it can be declared a genuine remedy.
2. To prove a remedy is safe and effective, several rounds of development and testing are necessary. For a new chemical, the cost to big…[Read more]
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Robert Harris started the topic Butyric Acid and Niacin in the forum Parkinson's Disease alternative treatments 8 months, 2 weeks ago
I wonder if anyone has an up to date report on butyric acid fighting Parkinson’s from the intestines, and on niacin fighting inflammation in the gut caused by Parkinson’s? I’ve just recently glanced at articles from the “miracle cure” types and from respected authorities, such as NIMH.
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Robert Harris replied to the topic Do You Know How to Take Your Medicine? in the forum Living With Parkinson's Disease 8 months, 2 weeks ago
In this episode of How to Take Your Medicine, we offer some information about where to stick the Neupro patches. Those Parkies with too much free time might have tried to read the full monograph that comes with each 30 patches, but having access to the Cliff’s Notes version (or is it the Reader’s Digest Condensed Books version?) might provide a…[Read more]
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Robert Harris replied to the topic Faith in the forum Living With Parkinson's Disease 8 months, 2 weeks ago
Okay, I’ll come out of the closet. I’m a Christian, and the faith and my relationship with the Lord have made all the difference. The reasons are. first, we are all going to die, but God has a cure for death. Second, take a look in the Bible and you’ll see that some of the greatest promoters of Christianity suffered horribly. The Apostle Paul g…[Read more]
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Robert Harris replied to the topic Have you lost weight since the diagnosis? in the forum Living With Parkinson's Disease 8 months, 2 weeks ago
In high school, I was a macho meanie. Six feet one, and intimidating everyone by hulking around at 179 pounds. Okay, the macho part is a lie, as was meanie, intimidating, and hulking. Actually, if you think about a 179 pounds hanging off a 6-foor frame, you will more than likely think, “string bean” instead of “nightclub bouncer.” Then I went to…[Read more]
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Robert Harris replied to the topic How did you tell your loved ones that you have PD? in the forum Diagnosis Information and General Questions 8 months, 3 weeks ago
I met a woman through eHarmony after we were deemed by some computer or pocket calculator to be compatible. We later met in person and ate food together. She brought me an avocado and a jar of green olives because in one of our emails I had said I liked them. I think I kissed her at the end of the second date, while she was distracted putting…[Read more]
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