Viewing 12 reply threads
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    • #24518
      Mary Beth Skylis
      Moderator

      Parkinson’s can come with an array of different symptoms. My dad struggles a lot with freezing episodes. But tremors and dyskinesia are extremely tough symptoms to navigate as well.

      Which symptom is most challenging for you to navigate? Have you found any ways to minimize their effect on you?

    • #24555
      fred kanter
      Participant

      For me balance is the most difficult.  Using a cane has been helpful but when I turn when standing still I can lose my balance.

    • #24556
      Jo S.
      Participant

      For me, it’s chronic constipation. It’s a never-ending daily struggle.

      • #24604
        Lou Hevly
        Participant

        Have you tried Kayam tablets? My wife (63 years old) swears by them. They’re on Amazon.

        • #24611
          Alan Berry
          Participant

          Hi Lou,

          I have switched from a laxative which was itself an improvement on nothing.

          Now I am taking Weber Naturals Probiatics. 30 billion active cells. After a three day delay I am now performing daily.

          Purchasing through Amazon I get 30 pills for about $12 + tax Canadian. Dosage only one pill a day.

          Alan Berry.

          Hope you get the same results Lou.

    • #24558

      Non-motor: depression, anxiety, apathy, fatigue.

    • #24564
      Richard
      Participant

      For me its my freezing of gait and associated falling due to the loss of balance when I’m frozen. No medication has helped and I’m nearly housebound after only 3 years.

    • #24566
      Karla Burkhart
      Participant

      I have always been very active and loved hiking and walking. I have been having an increasingly difficult time with stiffness. At times I feel like the tin man without an oil can. I can no longer do many of the activities I enjoy. I retired early from teaching elementary school not knowing what the problem was but knowing I was too awkward and off balance to continue. It was 5 years later I was diagnosed.

    • #24573
      Tim Brindley
      Participant

      A-Typical PD is what I have.

      Thankfully my wife has arranged the house to make it the easiest it can be for me.

      i constantly freeze up and fall just about everyday yet I’ve been lucky as I haven’t broken anything except a cup.

      I’ve gotten severely worse since the beginning of 2022

      I was a strong, energetic, active individual until PD struck.

      • #24574
        Richard
        Participant

        Hi Tim

        your case of Parkinson’s sounds exactly like mine. I was originally diagnosed with atypical Parkinson’s but it is being Treated with the same drugs that are used to Treat normal Parkinson’s. Unfortunately, the drugs don’t seem to work For freezing of Gait And most researchers consider this a problem to be worked on.

        • This reply was modified 1 week, 1 day ago by Richard.
        • This reply was modified 5 days, 23 hours ago by Kevin Schaefer.
      • #24575
        Richard
        Participant

        Hi Tim

        your case of Parkinson’s sounds exactly like mine. I was originally diagnosed as atypical Parkinson’s but it is being Treated with the same drugs that are used to Treat normal Parkinson’s. Unfortunately he drugs don’t seem to work For freezing of Gait And most   researchers consider this a problem to be worked on. 😊

        • #24599
          Tim Brindley
          Participant

          Richard

          l know exactly what your saying about the drugs don’t work as I’m going to the Mohammad Ali center for treatment and they have told me they have never seen a case advance as rapid as mine has.

          Prognosis is I won’t be walking by the end of this year.

          like Cynthia stated I lose tract of my thought train real easy where as before the on slot of PD I had a memory like a computer.

          Just taking each day as they come some are diffidently better than others.

        • #24605
          Paul Hojuson
          Participant

          Tim: my case is the same. I’ve had a rapid decline in the last year and anticipate being in a wheelchair by Jan 1. It was hard enough to accept the use of a cane for balance purposes and now a wheelchair! My neurologist has no further suggestions; my social worker has suggested a home aide/convalescent care and my dyskinesia is driving me crazy. Out of frustration, I asked to speak to a psychiatrist to at least get me a medication so I can feel good about my condition. Lexapro has helped @ 10mg twice/day.

          Participating in Rock Steady Boxing, daily walks and stationary bike rides have also helped maintain my independence. I’ve come to the realization, there is no good solution and only I can be my own advocate. To give up is really the start of the end and I just won’t accept this.

    • #24579
      Don Harris
      Participant

      Muscle atrophy is my main concern but I don’t know whether PD is the culprit.  Whatever, everything is a lot heavier than it used to be!

    • #24577
      Cynthia Johnson
      Participant

      When conversing with people I’ve noticed it’s becoming harder to complete my thoughts. I feel like it’s becoming more difficult to complete thoughts and I struggle trying to complete sentences and articulate the right words…..In trying to communicate I lose my train of thought very easily.

    • #24596
      Ruth Gravitt
      Participant

      My sister has Parkinson’s and her orthostatic hypotension/dizziness is making her suicidal. Please give any helpful info!

      • #24597
        Tim Brindley
        Participant

        Ruth does she have any pets   I and others on this site have pets and I can state for myself they are life savers.

        • This reply was modified 6 days, 12 hours ago by Tim Brindley.
        • #24603
          Ruth Gravitt
          Participant

          She can’t manage pets now. I was thinking of medication.

    • #24607
      Tim Brindley
      Participant

      I also have a problem with my speech, my wife calls it mush-mouth.

      I’ve lost all the sound output in my speech too as in my head it seem like I’m yelling and in reality I’m whispering. Nothing wrong with my lungs but I run out of air when I’m talking and that also screws up my speech.

    • #24612
      Alan Berry
      Participant

      I have weak legs, frequent fatigue, restless legs when sleeping, painin legs and arms but I can tolerate all of these without medication.

      My worst symptom is that my brain has deteriorated so my concentration is poor and it is impossible to join in group conversation since I am unable to grasp what is being said. Lastly my memory is ridiculously poor, sometimes I can’t even remember my grand-children’s names.

      Alan Berry.

    • #24622
      Mary kelly
      Participant

      Cognitive issues

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