Shirley Cypher

My husband has an upright walker which is just great.  He uses it when he feels unstable.  He is 87.  It easily folds up to put in the back of our Outback. Very light weight. There are a number of brands on Amazon.  With Parkinson’s he still has the forward leaning posture but not like a regular walker he can watch where he is going and stop and…[Read more]

My husband has PD he is 87.  We have been going to MOG (medically orientated gym) which is run by our local physical therapy group.  There are MOGs in other areas (we are in Idaho)  Our ph group includes a therapist who specializes in Parkinson’s.  The way it is set up is you pay a fixed amount per month and can go as often as you wish.  They do a…[Read more]

The main thing the xylitol will help with is preventing the aspirational pneumonia by killing the bacteria in the mouth.  however if you are having to thicken your liquids (water) you can make your own flavored simple syrup with it or use sugarless simple syrups found in the coffee section of grocery stores such as Winco and Fred Meyers.  I have a…[Read more]

Jo most of his pills are supplements.  i.e. -Acetyl Cysteine, turmeric, D3, B12, stool softener, allergy pill etc.  its just been 2 years  since diag but neuralogist says he has probably had it for 9 or 10 years.

Jo I am sure my husband feels the same way total meds and supplements a day is 29 taken 4 times a day.

Forgot to say his mouth stills hangs open most of the time. lol

My husband used too before diag.  meds and speech therapy stopped it.  He had asperial pneumonia when he was diagnosed.  (spent a month in rehab due to pneumonia and pd.   Was on liquid diet then soft food when released.  went on to be able to eat any thing.  The speech therapy was major I think in stopping the drooling as the exercises streng…[Read more]

Twin Falls IDaho (where Evel Knievl (sic) “tried” to jump the Snake River canyon in his rocket powered motorcycle.

My husband sees his neurologist twice a year but in contact with him through the hospital patient portal whenever I have a question.  Works real well.  Joe is 86 was diagnosed in 2018 while in the hospital with aspirational pneumonia.  According to his doctor he has probably had it for 9 or 10 years.  Has some dementia.  All things considered he i…[Read more]

After discussing NAC with Joe’s neurologist (primarily interested in it for obsessive/compulsive behavior) he is taking 2 600mg capsules 4 times a day.  Interestingly enough it not only helped the o/c he also started speaking more clearly with less searching for words.  This was almost overnight and initially took 300 mg 3 times a day.  Dr su…[Read more]

I forgot to say “do NOT cut timed release meds in half”.  If the pill has a line on it on one side you can safely cut it.  If in doubt ask pharmacist.

In the morning husbands meds seem to take 1/2 hr to an hour.  He is a basket case in the morning barely able to take meds  and usually just lays back down until breakfast at 9.  Sometimes he does get up and dressed earlier.

My husband has advanced stage PK trouble walking, talking, memory(sound familiar?) We go to MOG (Medically Oriented Gym).  Most of them are in the eastern US but we are fortunate to have the only one in Idaho in Twin Falls.  We go 3 times a week.  Joe basically has a personal trainer who has physical therapy background and the Therapy group CPR wh…[Read more]