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Shirley Cypher replied to the topic Do you find canes or walkers to be helpful? in the forum Diagnosis Information and General Questions 3 months, 1 week ago
My husband has an upright walker which is just great. He uses it when he feels unstable. He is 87. It easily folds up to put in the back of our Outback. Very light weight. There are a number of brands on Amazon. With Parkinson’s he still has the forward leaning posture but not like a regular walker he can watch where he is going and stop and…[Read more]
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Shirley Cypher replied to the topic Do you still have access to some form of exercise? in the forum Parkinson's Disease and exercise 3 months, 1 week ago
My husband has PD he is 87. We have been going to MOG (medically orientated gym) which is run by our local physical therapy group. There are MOGs in other areas (we are in Idaho) Our ph group includes a therapist who specializes in Parkinson’s. The way it is set up is you pay a fixed amount per month and can go as often as you wish. They do a…[Read more]
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Shirley Cypher replied to the topic Dysphasia-swallowing disorder in the forum Living With Parkinson's Disease 1 year ago
The main thing the xylitol will help with is preventing the aspirational pneumonia by killing the bacteria in the mouth. however if you are having to thicken your liquids (water) you can make your own flavored simple syrup with it or use sugarless simple syrups found in the coffee section of grocery stores such as Winco and Fred Meyers. I have a…[Read more]
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Shirley Cypher started the topic Dysphasia-swallowing disorder in the forum Living With Parkinson's Disease 1 year ago
My husband has PD with dysphasia. He has silent aspiration (food, liquid being inhaled with out coughing) This can cause aspirational pneumonia. He has been in the hospital twice with pneumonia. Pneumonia is a major cause of death of people with PD. He is working with a speech pathologist to strengthen his throat muscles. She indicated he sho…[Read more]
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Shirley Cypher replied to the topic How long does it take for your medications to take effect? in the forum Parkinson's Disease Medications 1 year, 4 months ago
Jo most of his pills are supplements. i.e. -Acetyl Cysteine, turmeric, D3, B12, stool softener, allergy pill etc. its just been 2 years since diag but neuralogist says he has probably had it for 9 or 10 years.
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Shirley Cypher replied to the topic How long does it take for your medications to take effect? in the forum Parkinson's Disease Medications 1 year, 4 months ago
Jo I am sure my husband feels the same way total meds and supplements a day is 29 taken 4 times a day.
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Shirley Cypher replied to the topic Do you drool? in the forum Parkinson's Disease Symptoms 1 year, 4 months ago
Forgot to say his mouth stills hangs open most of the time. lol
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Shirley Cypher replied to the topic Do you drool? in the forum Parkinson's Disease Symptoms 1 year, 4 months ago
My husband used too before diag. meds and speech therapy stopped it. He had asperial pneumonia when he was diagnosed. (spent a month in rehab due to pneumonia and pd. Was on liquid diet then soft food when released. went on to be able to eat any thing. The speech therapy was major I think in stopping the drooling as the exercises streng…[Read more]
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Shirley Cypher replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 1 year, 4 months ago
Twin Falls IDaho (where Evel Knievl (sic) “tried” to jump the Snake River canyon in his rocket powered motorcycle.
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Shirley Cypher replied to the topic How often do you see your neurologist? in the forum Living With Parkinson's Disease 1 year, 4 months ago
My husband sees his neurologist twice a year but in contact with him through the hospital patient portal whenever I have a question. Works real well. Joe is 86 was diagnosed in 2018 while in the hospital with aspirational pneumonia. According to his doctor he has probably had it for 9 or 10 years. Has some dementia. All things considered he i…[Read more]
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Shirley Cypher replied to the topic Have you ever tried NAC supplementation? in the forum Parkinson's Disease alternative treatments 1 year, 4 months ago
After discussing NAC with Joe’s neurologist (primarily interested in it for obsessive/compulsive behavior) he is taking 2 600mg capsules 4 times a day. Interestingly enough it not only helped the o/c he also started speaking more clearly with less searching for words. This was almost overnight and initially took 300 mg 3 times a day. Dr su…[Read more]
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Shirley Cypher replied to the topic How to take small pills in the forum Parkinson's Disease Medications 1 year, 4 months ago
I forgot to say “do NOT cut timed release meds in half”. If the pill has a line on it on one side you can safely cut it. If in doubt ask pharmacist.
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Shirley Cypher started the topic How to take small pills in the forum Parkinson's Disease Medications 1 year, 4 months ago
Between prescriptions and supplements Joe (husband) takes 29 a day total. Seniment and Mirapex 4 times a day. Have found it is easier to put the small pills in a capsule. I can put 4 out of 9 of his 8 a.m. pills in a capsule. I do have cut 1 in half for it to fit. It makes it so much easier. I got a capsule maker 00 size from http://www.…[Read more]
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Shirley Cypher replied to the topic How long does it take for your medications to take effect? in the forum Parkinson's Disease Medications 1 year, 4 months ago
In the morning husbands meds seem to take 1/2 hr to an hour. He is a basket case in the morning barely able to take meds and usually just lays back down until breakfast at 9. Sometimes he does get up and dressed earlier.
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Shirley Cypher replied to the topic Exercising Regularly Can Help People with Parkinson's in the forum Parkinson's Disease and exercise 1 year, 4 months ago
My husband has advanced stage PK trouble walking, talking, memory(sound familiar?) We go to MOG (Medically Oriented Gym). Most of them are in the eastern US but we are fortunate to have the only one in Idaho in Twin Falls. We go 3 times a week. Joe basically has a personal trainer who has physical therapy background and the Therapy group CPR wh…[Read more]
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Shirley Cypher became a registered member 1 year, 4 months ago
hi shirley
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic: