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Alan Berry

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@ancientalan

Geriatric Consultant at Oakville Trafalgar Hospital put me through a series of mental and physical exercises and was shocked when I had 100% on mental and completed the physical comfortably. He is dubious that I have Parkinson’s . More tests to come. Had my 3rd Covid vaccine with no side effects. View
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    Alan Berry replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 2 weeks, 3 days ago

    Every day I get a pain in my right arm. Above my elbow and up into my shoulder. It is a constant pain, not intermittent.

    Alan Berry

  • Profile picture of Alan Berry

    Alan Berry replied to the topic How do you store your medication? in the forum Living ​With​ ​Parkinson's Disease 3 months, 2 weeks ago

    I have several ailments including Type 2 diabetes for which I do not have medication. It is controlled by diet.
    All my meds are stored in a single box under my control. A list of all meds and the times of taking them is also in the box. I am lucky that all my morning pills and , in turn, my evening pills are taken at the same time. My most…[Read more]

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Did you ever reach a point of acceptance? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 2 weeks ago

    Yes! Very soon after I was diagnosed. But now I am up in the air again. My neurologist hasn’t spoken to me in six months. A doctor I see at the Geriatric Clinic of Oakville Hospital believes I don’t have Parkinson’s at all. Says I don’t walk, talk and have tremors. So I must have a brain scan on December 22. Is it Lewy Bodies or something even wo…[Read more]

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Do you have multiple illnesses? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 6 months, 1 week ago

      Yes
      Depression on and off has been part of my life since the 1980s. Medication continues.
      Rheumatoid arthritis for about 20 years. Medication on-going plus monthly blood tests.
      Lack of urinary control following removal of part of bladder during prostate cancer surgery in 2006.Type 2 diabetes for many years. Controlled by diet.
      High blood…

    [Read more]

  • Profile picture of Alan Berry

    Alan Berry posted an update 6 months, 2 weeks ago

    Geriatric Consultant at Oakville Trafalgar Hospital put me through a series of mental and physical exercises and was shocked when I had 100% on mental and completed the physical comfortably. He is dubious that I have Parkinson’s . More tests to come. Had my 3rd Covid vaccine with no side effects.

  • Profile picture of Alan Berry

    Alan Berry replied to the topic What are your hobbies? in the forum Living ​With​ ​Parkinson's Disease 6 months, 2 weeks ago

    A recent ((4 months) diagnosed patient I have pretty much retained all of my hobbies. Reading is a hobby since childhood, primarily fiction but some “non”. In recent months I tend to lose sight of the plot and characters unless I note them as I go. Adult book colouring is recent but allows my creativity to remain active. My personal favourite is…[Read more]

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Games in the forum Living ​With​ ​Parkinson's Disease 6 months, 3 weeks ago

    I have enjoyed word game magazines for many years as well as crosswords. However I find that in the four months or so since diagnosis my skills and memory have declined. I will continue though and try other outlets including absorbing daily news and sports news for discussion with my wife.

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Parkinson's and Rheumatoid Arthritis in the forum Living ​With​ ​Parkinson's Disease 7 months ago

    I have had rheumatoid arthritis for around 20 years or more. Early on my medication were such that one was primarily treatment for cancer and the other had disturbing side effects. But throughout the arthritis my pain has been well controlled. Now I am on methotrexate alone. Dose-age changes according to pain level but overall it is well managed.…[Read more]

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Do you still drive? in the forum Living ​With​ ​Parkinson's Disease 7 months ago

    Gave up driving about 4 years ago at a time when my balance was poor and I had numerous falls. I also found my concentration poor when driving so took the safety first route. My wife now does all of the driving, bless her.

  • Profile picture of Alan Berry

    Alan Berry posted an update 7 months, 1 week ago

    Wish I knew categorically which of my symptoms are from Parkinson’s Disease, which from blood pressure and/or heart related and which are simply age related. Even the neurologist and cardiologist can’t seem to agree. Appointment with geriatric department of hospital (tomorrow) may help.

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Is there such thing as a "garden variety" version of Parkinson's? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 7 months, 2 weeks ago

    Hi Mary Beth . Alan Berry here. Cannot see myself as  “garden variety” anything. Sorry. I am 81 with primary “P.D.” Indicators memory loss/ concentration. Symptoms could be simply ageing?? Then slow moving & fatigue. 4 yrs ago diagnosed incureable nerve damage arms & legs. Speech changes if tired – yes. Depression? No. On medication since I was 30…[Read more]

  • Profile picture of Alan Berry

    Alan Berry posted an update 7 months, 2 weeks ago

    Remarkable! I am now in my 5th day of minimal symptoms which feels like a vacation from Parkinson’s. No idea why. Does this happen to many “newcomers” to our disease. How about things to do to stimulate lessening of symptoms? Lastly I am to have a 3rd Covid vaccination tomorrow. Thank you to the producers of this newsletter for your hard work.…[Read more]

  • Profile picture of Alan Berry

    Alan Berry posted an update 7 months, 2 weeks ago

    Still getting used to changes. Primary challenges are rapid decline of energy so I need a rest daily after lunch. Memory and concentration weak but use puzzle books and write essays to help me. Sometimes lose symptoms for several days. Is this usual? Pat, my wife is my only caregiver which stresses her. Family supportive. I remain upbeat and optimistic.

  • Profile picture of Alan Berry

    Alan Berry replied to the topic Are blood pressure drops an early sign of Parkinson's disease? in the forum Flash Briefings and Podcasts 7 months, 3 weeks ago

    I have experienced significant drops in blood pressure for some time. Every day when I take a standing blood pressure after my sitting blood pressure. Neither my family doctor nor the cardiologist have ever referred to Parkinson’s. Instead they suspect the change results from a heart irregularity following a report from the Pacemaker Clinic at…[Read more]

  • Profile picture of Alan Berry

    Alan Berry replied to the topic How long have you known you have Parkinson's? in the forum Living ​With​ ​Parkinson's Disease 7 months, 3 weeks ago

    Known about 5 months. Suspected about 4 yeaars ago when neurologist was more angry at being unable to find proof than anything else. Since confirmed I am told my case is very mild. Despite this I get very fatigued and have to rest by noon every day. Also my memory and concentration are shattered. I am receiving no medications and my next…[Read more]

  • Profile picture of Alan Berry

    Alan Berry posted an update 7 months, 3 weeks ago

    Only diagnosed about 5 months ago. First off was me accepting PD which I have. Memory and concentration messed up, a daily occurrence. Twice in latest 2 weeks = major brain flips and heavy falls. Neurologist says no problem, no meds and see you February 2022. Nice! Will talk to Support Group October 18. Won’t take up space writing more.

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    Alan Berry became a registered member 8 months ago

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