JB

It is available here in Spain yes, but from what we found out being on the Public health system, it’s not discounted so very expensive. Too expensive for us to bother with on top of the inhalation which my husband really doesn’t want to do. The Farmacia here wanted 1200 Euro for 60 tablets.

We have pretty much decided against it because of price and the inhaling…

Thanks Timothy….. Didn’t realise that.

Interesting Jorge, the higher dose 42mg and the mix with Rytary. We can’t use Rytary as it’s not available but good to hear the Inbrija works well for you. Thanks.

Thanks Nancy, interesting to read re the coughing. It’s something my husband was concerned about as well, inhaling powder into the lungs…

Nice post Robert….. ditto in my thnking…. it’s what works for you.

Hi Gerald, It all depends on the person. My husband takes 2.5 x 50/200 4 x daily and 1 x 25/100 4 times daily. He goes between taking these at 4 hour to 6 hour intervals depending on how much energy or “Spoons’ (The Spoon Theory) of energy he has exerted through exercise or meeting up with people during the day.

If he leaves it until a 6 hour…[Read more]

WOW George, that’s amazing, to be able to drop Sinemet altogether. That’s where I feel there is a lack for my husband – decent programming or settings changes on the DBS.

I am so pleased for you that you have been able to do that with the meds. I am not sure how old you are or how long you have had PD but would you share at all please.

I…[Read more]

That’s really interesting Laura…. cutting in half and spreading out more. My husband (61 yrs) has had PD a long time, over 25 years now and Young Onset, he has been on 2 types of Brand Sinemet since 2006 and now he is seemingly getting to the peak of how much he can take. Just over 2000mg per day…. The DBS implant for him in 2012 has not…[Read more]

Hi Joanne, I’m not sure how old your son is, but my husband is Young Onset, had PD for over 25 years now, dx at 38 yrs. Once Young Onset always apparently. You haven’t mentioned how many of the mg your son takes 5 times per day… is it 1 x 25/250 and 1 x 50/200? As you say, we all do so much research and everyone is different to how they…[Read more]

Hi John, very interested in that you have been able to go down in Levadopa. My husband after DBS to GPI area in 2012, was able to at first reduce dosage a little but he is up to 2000mg per day of 200/50 CR (extended release) and 400mg per day of 100/25 Sinemet. It’s high supposedly for dose but apparently many people take A LOT more ‘mg’ than…[Read more]

Hi Linda, My husband is very skinny and tall and he said the implant, he can’t even feel it there, you just get used to it. You can see it on him because of his slimness, but its’ been no problem at all. He opted some years back to go for a rechargeable battery as well as he did not want to keep having anaesthesia to change it…. It’s worked out well.

Hi Paul, you would be all turned on now from what You have said, so I hope it was a great success. i replied below to Norma Jean, so you can probably read there, but on the honeymoon period you mention, my husband also had a period like that also. He didn’t have tremor, but he had a few weeks where he felt ‘extremely normal’ with feeling like…[Read more]

Hi Norma Jean,
My husband has had Parkinsons 25 years plus now, dx at 38 yrs old, now 61 yrs. He had DBS in 2012, both sides, battery pack in chest, but changed it to a rechargeable 6 years ago. He had the implants into GPI like Paul above. My husband never had tremor, but it instantly stopped Dyskinesia which he was suffering quite badly due…[Read more]

I’ve been thinking Robert about what you said about underdose/overdose and how that affects the falls. I can totally agree with the overdosing causes dyskinesias, kicking out and the underdose is all sorts of issues… I’ve been charting for the past 2 years the falls and meds taking. In the past 2 months nothing is clear though as to what makes…[Read more]

Hey there David, being a Kiwi myself, I actually chuckled (in a nice way) when you said your mate was in NZ. It’s interesting what you have said and I’m really glad you have found something that works for you.

We don’t live in NZ at the moment we are in Europe, it has crossed my mind that things have been worse since we have been here for his…[Read more]

Hi Rick,
Yes we actually both do regular medical checks, eyes, ears etc and he had his checked only last year and all fine. Needed it for drivers licence.

BUT on saying that – I will actually get him to get re-checked just in case.. .Thanks for the good advice 🙂

Thanks Carol, they certainly are a bizarre thing. Fairly common it seems.
It does make sense to me that also, the entire system could go down yes. That is what we wonder with the falls.

Interesting again is as you say, the falls happen mainly at night getting to/from bathroom. He gets up quite a bit as well, but never does he fall at night.…[Read more]