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fakhiuddin ahmed replied to the topic Will you continue to get COVID boosters and vaccines? in the forum Coronavirus (COVID-19) and Parkinson’s 1 month ago
It will be my wife’s decision, but I will take the boosters and vaccines and she has followed my example this year. In the past she did not take the flu vaccine but since COVID’s appearance, she has been taking the flu vaccines as well–likely because these vaccines are brought to our door in our senior living place. Neither of us had flu or covid.
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fakhiuddin ahmed replied to the topic Which symptom is most challenging to navigate? in the forum Parkinson's Disease Symptoms 3 months, 1 week ago
Speech problems seem to disappear when my wife is in the “on” period and sometimes, speech symptoms are the most apparent symptom of the “off” period.
I have also noticed that depression and other cognitive problems occur independently in the off periods. With my neurologist’s acquiescence, I will try, levodopa/carbidopa ODT and see if it helps.
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fakhiuddin ahmed replied to the topic Do you rely on outside help? in the forum A Forum for Parkinson's Disease Caregivers 4 months, 1 week ago
My wife, with PD, and I live in a senior care facility that provides meals as well living accommodations. Her major symptoms are fatigue, slurred speech, periodic cognitive problems. We have help coming 3 times a week for 4 hours to help her bathing, getting dressed and taking her to her classes. So far this has worked to some degree. I had…[Read more]
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fakhiuddin ahmed replied to the topic Speech changes with PD in the forum Parkinson's Disease Symptoms 4 months, 1 week ago
My wife was diagnosed 25 yrs ago, when she was 55yrs old, but became symptomatic about 5 yrs ago. DBS took care of tremors and dyskinesia, but her symptoms, of sleepiness, cognition changes, slurred speech, fatigue, depression, kyphosis, remain problematic. Like so many, I have to consider that these are due to disease progression and or drugs…[Read more]
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fakhiuddin ahmed replied to the topic Which symptom is most challenging to navigate? in the forum Parkinson's Disease Symptoms 5 months, 1 week ago
Has he had a CT with contrast or MRI of head done recently? My wife feels very hot, actually sweating when the ambient temps are comfortable for the rest of us. this was ascribed to dialatation of skin vessels under control of sympathetic/para sympathetic nervous system which goes awry in P.D.Could this be happening to the intracranial vessels?…[Read more]
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fakhiuddin ahmed replied to the topic Which symptom is most challenging to navigate? in the forum Parkinson's Disease Symptoms 5 months, 2 weeks ago
My wife’s speech is often difficult and sometimes, impossible for me to understand,, despite speech therapy. This may be due to my hearing aid which improves some sounds and not others.
My wife does not drink enough liquids despite my pleas(her urine is dark) and she is often confused. I wonder if there is evidence that dehydration is the cause…[Read more]
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fakhiuddin ahmed replied to the topic Any experience with Cala Trio wrist device? in the forum Parkinson's Disease Symptoms 6 months, 1 week ago
While I do not have any experience with this device, I cannot see the rationale for it. However, I just read that B12 injections help. I wonder if B12 levels were low in patients who were helped and many other questions.
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fakhiuddin ahmed replied to the topic Anyone else experiencing leg cramps at night? in the forum Parkinson's Disease Symptoms 1 year, 1 month ago
So many people have had successes with so many types of treatments that it is tempting to deny any cause and effect. My wife has had leg cramps at various times of the day,but mostly at night for the last thirty years. She lost her sense of smell decades ago, was diagnosed with PD25 yrs ago, but became disabled 8 yrs ago. She has tried many…[Read more]
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fakhiuddin ahmed replied to the topic Do you struggle with hot or cold flashes? in the forum Parkinson's Disease Symptoms 1 year, 1 month ago
My wife does. She is sweating when the room temp is 65 degrees. Her docs do not think she is crazy since it is well known that the sympathetic nervous system that governs relaxation or constriction of small blood vessels in response to ambient temperatures are also affected by PD. We just adjust our clothing.
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fakhiuddin ahmed replied to the topic Coping with anxiety, depression and stress in the forum Flash Briefings and Podcasts 1 year, 1 month ago
Is there a description of advanced PD? Do they become immobile, incontinent, unable to feed themselves or by meds and other treatments, few if any patients ever reach such a state? Does cocaine or cannabis help?
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fakhiuddin ahmed replied to the topic Has your PWP lost interest in things they once liked? in the forum A Forum for Parkinson's Disease Caregivers 1 year, 2 months ago
My wife used to like singing and hear her own singing recorded on CDs, but now, rarely does she sing or put the CD s on. Often, she just sits not wanting to read or watch TV. She seems to require me to interact with her and not do my work.
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fakhiuddin ahmed replied to the topic Do you struggle with depression? in the forum Parkinson's Disease Symptoms 1 year, 5 months ago
My wife with PD suffers from depression, at times severe. The covid has separated her from friends. She feels weak and spends greater time in bed and it is difficult to determine if her fatigue is from depression or PD or likely both. Her exertion tolerance has progressively decreased, which makes me want to know how close to the end she is. I…[Read more]
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fakhiuddin ahmed replied to the topic Entacapone in the forum Living With Parkinson's Disease 1 year, 9 months ago
My wife has been taking entacapone for a year, starting with half a pill to one whole one. She has many symptoms that are hard to ascribe to a single factor, as happens with most PD patients, but none of the symptoms have persisted even as she continues to take entacapone.
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fakhiuddin ahmed replied to the topic What do you do when your energy is spent? in the forum A Forum for Parkinson's Disease Caregivers 1 year, 9 months ago
not knowing(will look up literature) I cancel whatever activity we were planning and let her rest.don’t know the experience of marijuana use but doubt if she will try that. If my energy is spent, I improvise.
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fakhiuddin ahmed started the topic fulfilling one's desires without feeling guilt in the forum A Forum for Parkinson's Disease Caregivers 2 years, 1 month ago
I have loved traveling all my life and my wife and I did a lot of it until her symptoms worsened. She was diagnosed 25 yrs ago but became symptomatic about 5 years ago. If she agrees she can live with our daughter or her niece for a week to start with. Has anyone any experience in this?
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fakhiuddin ahmed replied to the topic Winter footwear and other concerns in the forum Living With Parkinson's Disease 2 years, 1 month ago
I would not advise snow clearing for elderly folks. One fall resulting in a hip fracture may be extremely dangerous depending upon your age and general fitness. Many places have free services for elderly or disabled people in N.Y. maybe yours does too. sorry for this pessimistic opinion.
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fakhiuddin ahmed replied to the topic Do you have any questions about the forums? in the forum Using our forums 2 years, 6 months ago
Please encourage folks to send follow up research projects they have come across. Curing PD in mouse models is exciting but any follow up data on how long did the response lasted, did any morph into neoplastic lesions?
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fakhiuddin ahmed replied to the topic Exciting PD research news? in the forum Parkinson’s Research News 2 years, 7 months ago
I want to have access to the studies underway, including stem cell transplantation, inducement of patients own stem cells to grow faster, invivo or exvivo, exchange of csf etc.
Thanks
f.ahmed md
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fakhiuddin ahmed replied to the topic Who do you care for? in the forum A Forum for Parkinson's Disease Caregivers 2 years, 9 months ago
My wife.
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fakhiuddin ahmed became a registered member 3 years, 2 months ago
hi fakhiudin
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic:
This article has descriptions with direct links to…[Read more]