Troy

Hi Sandy,

Ideally, you want to get to a point where you are taking your next pill right when the last one is about to wear off. Some patients may be able to accomplish this with 3 or 4 pills a day and some with 5 or 6, etc. (and there are 25/100 mg pills and 25/250 mg pills). I think a lot depends on a person’s symptoms and how he/she responds to…[Read more]

I developed sleep disorder with eopd. The first time we noticed it was on vacation, and I woke my wife up kicking her in the bed. I was dreaming that I was Bruce Lee fighting in some kind of Matrix movie. Which was weird because I am not really interested in either, but I was doing some pretty cool stuff in that dream! We didn’t think anything of…[Read more]

The heat double edged sword for me: On the one hand, it makes me more fatigued than I already am, and I’m already too fatigued as it is! I find it discouraging to be my age (I have eopd) and be fatigued from doing absolutely nothing and then have the heat pile on just for the fun of it 🙂 On the other hand, the heat sometimes provides momentary…[Read more]

Yes. My wife noticed the depression before I did. It’s not severe and my doctor is not overly concerned. He suggested that I take up a new hobby that brings me joy, so I created a bird sanctuary in my backyard. It seems silly, but it has really helped. I’m also taking up bike riding again. I’ve only noticed the anxiety issues recently and the…[Read more]

4, over the course of two years. I initially feared the worst (ALS) and then began to suspect EOPD as doctors ruled out other diseases and tended to other possibilities (pinched nerve, etc.). Without my saying anything with regard to my own suspicions, my pcp began to suspect EOPD one year in (maybe sooner). The problem was that my non-motor…[Read more]

Hello; sleep is currently my biggest issue. We noticed a few things: 1) the “falling” feeling when drifting off to sleep, which usually sets me back about 45 minutes as I try to tall back sleep with all the adrenaline rushing through my body! 2) acting out in my sleep which typically involves running with my legs and thrashing side to side with my…[Read more]