Mary Beth Skylis

My Dad (diagnosed in 2013) has always secretly admired Mohammad Ali for his battle with Parkinsons. The boxing champion reminds him to keep fighting in every way that he can. It seems like remembering Mohammad Ali’s journey with the disease makes my Dad feel less alone. And he, too, can remain steadfast and strong despite the havoc that PD causes.…[Read more]

There’s still a lot of debate about whether or not there is a genetic component that relates to Parkinson’s disease. My Dad (diagnosed in 2013) thinks that his brother may have PD, too. But the rest of our family history (as far as we know) seems free of the disease. This makes me think that the diagnosis could be environmental for both of them.…[Read more]

Some people like to dive into literature and podcasts to navigate Parkinsons. Others prefer to take it as it comes. I tend to gravitate towards the information obsession. And I’ve been wondering if any of you have favorite podcasts or programs that provide insight into Parkinson’s disease?

One obstacle that many Parkie’s experience is trouble with swallowing. I’ve heard my Dad cough excessively because his coffee went down the wrong pipe. And he hasn’t had to make many dietary changes, yet. But I wonder if there are some meals that are easier to consume than others? Do you cook certain meals for your Parkie? Have you found ways to…[Read more]

My Dad (diagnosed in 2013) recently went to his first in-person neurology appointment since Christmas. His doctor was able to adjust his DBS hardware successfully. And the overall experience seemed normal. We’re in Michigan, where Covid levels are declining. And I wonder if everyone is returning to normal? Are any of you returning to the doctor’s…[Read more]

One of the things that I love about moderating the Parkinsons forums is that it allows me to connect with people who are all around the globe. But this simple fact also changes our relationship with Parkinson’s disease. Depending on where we are, we might have different resources or Covid restrictions. I’m curious about how these factors relate to…[Read more]

I recently learned that those who struggle with Parkinsons may also experience hallucinations. According to Parkinsons.org, 20-40% of PD patience experience hallucinations. This may be due to excessive dopamine in the brain.

My Dad (diagnosed in 2013) has yet to experience any such thing. But I’m curious about your experience. Have you…[Read more]

I’ve read that the placebo effect can have a tremendous impact on those who struggle with PD. Even if you know that you’re receiving a placebo, it can have positive effects on the body. For this reason, I’ve often contemplated coming up with placebos for my Dad (diagnosed in 2013). Do you have any experience with the placebo effect? Do you…[Read more]

In the same way that caregiving can be difficult, it can also be extremely rewarding. Since my Dad’s diagnosis, me and my siblings have been more intentional about checking in on him. We’ve had the chance to build our relationship in new ways. And I’m really grateful for this change. What is your favorite part of caregiving?

Covid-19 has caused alot of changes across the globe. But local changes seem to vary. Some communities have entirely closed down their gyms. Others have created a reservation system to limit the number of people who are allowed in the building. How is Covid-19 impacting your day-to-day life? Have things begun to re-open yet? And where in the…[Read more]