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Mary Beth Skylis started the topic Have you taken virtual exercise classes? in the forum Parkinson's Disease and exercise 1 day, 20 hours ago
With COVID-19 still impacting the planet, it can be tough to safely get to a gym. Luckily, plenty of people are using the internet to stay healthy through these trying times. I recently suggested that my Dad (diagnosed in 2013) and I take a virtual boxing class together. Have you taken any virtual exercise classes? If so, which class is your favorite one?
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Mary Beth Skylis replied to the topic What do you do to prevent yourself from falling? in the forum Living With Parkinson's Disease 3 days, 5 hours ago
Marlene, I’ve taken Tai Chi classes before, too. But I’ve never thought about using them to manage PD symptoms. Brilliant! I’d imagine that they increase strength and mobility AND they target balance. Thank you for sharing your thoughts.
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Mary Beth Skylis replied to the topic Never Give Up attitude with Parkinson’s. in the forum Living With Parkinson's Disease 3 days, 6 hours ago
Robert, thank you for sharing your optimism. My Dad encounters this idea alot when he attends Rock Steady Boxing classes. I love getting to see him channel his inner fighter to fight the disease. And I think that you’re right — staying positive helps.
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Mary Beth Skylis replied to the topic Do you cook certain meals for your Parkinsons patient? in the forum A Forum for Parkinson's Disease Caregivers 3 days, 6 hours ago
Kenneth, I’m sorry that you’re going through this. I can imagine the difficulty that’s associated with watching your wife’s abilities change. My Dad was diagnosed in 2013, and he has always had a compromised sense of smell and taste, as far as we can remember. He consulted a holistic doctor to talk about some of his symptoms when he got diagnosed…[Read more]
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Mary Beth Skylis replied to the topic How have your holiday plans been impacted? in the forum Coronavirus (COVID-19) and Parkinson’s 3 days, 6 hours ago
I’m sorry to hear that your plans were cancelled, Jennie. I had to put a travel plans on hold, myself, in 2020. Hopefully 2021 gets a little better.
What are you looking forward to doing in 2021?
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Mary Beth Skylis started the topic Do you have panic attacks? in the forum Parkinson's Disease Symptoms 3 days, 20 hours ago
My Dad (diagnosed in 2013) recently told me that he suffers from a periodic panic attack. When he spoke to a professional about the experience, he learned that the anxiety may be linked to his Parkinson’s diagnosis. Do you have panic attacks or anxiety? Have you learned how to manage them, if so? And do you know why they might occur?
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Mary Beth Skylis started the topic How did the holidays go? in the forum Coronavirus (COVID-19) and Parkinson’s 1 week, 1 day ago
2020 was a strange year for most people across the globe. Events took place that I never would’ve imagined. And even the holidays were strange for me. On Thanksgiving, I found myself eating Nepalese food with my roommate. On Christmas, our family wasn’t whole. But there were beautiful moments too. How did the holidays go for you? Were you able to…[Read more]
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Mary Beth Skylis started the topic Movie Recommendations in the forum Diagnosis Information and General Questions 1 week, 3 days ago
When it starts to get chilly, I tend to watch more movies. It can feel really nice to curl up on the couch with some hot chocolate to learn about historical figures or just to be entertained. Has anyone seen any good movies lately? Are there any Parkinsons-specific movies that you love? Who inspires you?
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Mary Beth Skylis started the topic Managing Fatigue in the forum Parkinson's Disease Symptoms 2 weeks, 1 day ago
On some days, my Dad is a lot more fatigued than on others. I think sometimes it might relate to his inability to sleep. And sometimes it’s just a general sense of tiredness. Have you found any useful ways to manage fatigue? Do you rest when you’re feeling under the weather? Or do you push yourself through the tiredness?
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Mary Beth Skylis started the topic Do you play an instrument? in the forum Diagnosis Information and General Questions 2 weeks, 3 days ago
I’ve heard a lot about the benefits of surrounding ourselves with music. But playing an instrument is also known to positively impact us in noticeable ways. For Parkies, singing can help you to maintain vocal strength. And playing the piano might impact your finger mobility. Do you play an instrument? Do you notice a difference in your…[Read more]
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Mary Beth Skylis replied to the topic How have your holiday plans been impacted? in the forum Coronavirus (COVID-19) and Parkinson’s 2 weeks, 4 days ago
Beth,
Thank you for your thoughts. Hang in there! My sister had COVID, too. And she lost her sense of smell and taste. But it came back in about a week. Hopefully yours will too.
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Mary Beth Skylis started the topic Do you notice that your symptoms worsen at particular times? in the forum Parkinson's Disease Symptoms 3 weeks, 1 day ago
Everyone’s medication cycle seems to be unique to their Parkinson’s experience. But I know that my Dad experiences a lot of waves. Do you notice that your symptoms worsen at particular times? Is stress a significant component? Do you keep a journal to track changes?
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Mary Beth Skylis started the topic Why do you think Parkinsons patients have nightmares? in the forum Parkinson's Disease Symptoms 3 weeks, 3 days ago
My Dad recently told me that he has woken up in the middle of the night punching the air or battling a nemesis of some kind. The nightmares worry him because he doesn’t want to hurt my Mom. Why do you think Parkinsons patients have nightmares? Is this symptom possibly associated with medication? And have you learned how to manage this issue?
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Mary Beth Skylis started the topic Have you seen permanent changes from COVID-19? in the forum Coronavirus (COVID-19) and Parkinson’s 4 weeks, 1 day ago
When COVID-19 hit Michigan, my Dad’s Rock Steady Boxing branch closed down permanently. With the loss of income, the business owner couldn’t afford rent any longer. We remain hopeful that we’ll find a new location to continue RSB locally, but we’re amidst some shocking changes. Have you seen permanent changes from COVID-19? Are any of them having…[Read more]
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Mary Beth Skylis started the topic Have you thought about hiring outside help? in the forum Living With Parkinson's Disease 1 month ago
As Parkinsons progresses, it becomes more and more difficult to manage. My Dad is lucky enough to be surrounded by a team that takes turns helping with basic tasks. But I’ve wondered if outside help could make a difference in his life. Have you ever thought about hiring outside help? What are the pros and cons of relying on outside help?
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Mary Beth Skylis started the topic What gifts might be best for a Parkinsons patient? in the forum Diagnosis Information and General Questions 1 month, 1 week ago
I’ve been brainstorming what to get my Dad for Christmas. One of the things that I’ve been thinking about getting him is an Amazon Echo Dot. This little smart speaker can be linked up with compatible appliances and smart lightbulbs in order to give you a hands-free experience. All my Dad will have to do to operate this speaker is talk to it. As…[Read more]
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Mary Beth Skylis posted a new activity comment 1 month, 1 week ago
Beth,
I’m sorry for your pain. I can’t imagine how difficult it must be to struggle with that particular symptom around the Holidays. Have you talked to your Doctor about your struggles with taste? And did they have any useful advice?
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Mary Beth Skylis posted a new activity comment 1 month, 1 week ago
Jean, I’m really sorry to hear as much. How long have you been noticing these symptoms for?
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Mary Beth Skylis started the topic Caregiver Shoutout in the forum A Forum for Parkinson's Disease Caregivers 1 month, 1 week ago
My Mom works more than 40 hours a week, feeds my Dad and my siblings a few days per week. And she still manages to sneak in some Parkie appointments every once in a while. To me, she seems a little bit like a superhero. And I just wanted to take a few moments to acknowledge how much strength it takes to do what she does.
Are there any…[Read more]
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Mary Beth Skylis started the topic How have your holiday plans been impacted? in the forum Coronavirus (COVID-19) and Parkinson’s 1 month, 1 week ago
This year has been a strange year across the globe. With COVID-19 levels spiking, once again, many people are choosing to celebrate the holidays in new ways. Has anything changed for you this year? Will you be participating in any socially-distant gatherings? And what are you looking forward to doing this season?
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