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Mary Beth Skylis

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@mary-beth-skylis

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    Mary Beth Skylis started the topic Have you reached any milestones lately? in the forum Living ​With​ ​Parkinson's Disease 6 days, 9 hours ago

    In Lori DePorter’s recent column, she wrote about reaching the milestone of becoming a grandparent despite being diagnosed with early-onset Parkinson’s. She expresses gratitude for the experience. But also notes that her Parkinson’s progression continues to change her relationship with milestones. 

    Have you reached any milestones lately? What a…[Read more]

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    Mary Beth Skylis replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 1 week, 6 days ago

    Thanks for sharing, Sharon. I’m always happy to see new communities popping up.

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis started the topic Does it feel like your Parkinson’s journey is becoming more difficult? If so, how do you cope? in the forum Living ​With​ ​Parkinson's Disease 1 week, 6 days ago

    In Jamie Askari’s recent column, she wrote that Parkinson’s gets harder and harder to manage as a caregiver. Her husband was diagnosed at age 38 with early onset Parkinson’s, and she often struggles to watch him change. Yet she still manages to lean into optimism to keep herself from falling into despair. 

    Does it feel like your Parkin…[Read more]

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    Mary Beth Skylis replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 2 days ago

    Sharann, I’m sorry to hear as much. Are you interested in attempting to build or join a community? Or do you value your alone time?

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 2 days ago

    Thank you so much for these recommendations, Jackie.

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 2 days ago

    Joanna, I’m sorry to hear as much. It seems to me that I’ve heard about a group or two that meets later in the evening. Which time zone are you in? I’ll try to keep my eyes peeled for something that might work.

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 2 days ago

    Margaret, I’m someone who benefits from just a small community, too. I don’t have Parkinson’s but I do have PTSD. And sometimes it’s really helpful to talk about it with people who truly get it. I’m glad you’ve been able to find that in the Parkinson’s world!

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 2 days ago

    Woohoo! Go, Barbara! I’d love to hear how it goes. Do you know if you’ll be discussing specific topics or if it’s just a general meet and greet?

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Horew does the heat effects effect you? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 2 days ago

    Hi Jon,

    My dad was diagnosed in 2013, and I haven’t heard him say anything about the heat. But I have a hard time tolerating it. Do you find that it impacts your symptoms?

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Young Onset Parkinson's Disease in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 2 days ago

    I’m sorry to hear about the diagnosis, Matthew. My dad was diagnosed in 2013, and I know how life-changing it can be. But it sounds like you’re managing well? What made you suspect that you might have PD?

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis posted a new activity comment 2 weeks, 2 days ago

    Hi Barbara, thank you for joining our forums. Please let me know if there’s anything I can do to help along the way.

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  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis posted a new activity comment 2 weeks, 2 days ago

    Hi Steve, thank you for joining our forums. Please let me know if there’s anything I can do to help along the way.

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  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis started the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 6 days ago

    One of the greatest challenges of dealing with a chronic illness is getting others to understand what you’re going through. For this reason, finding a community that understands can be really helpful in building trust and camaraderie. Some people find this community at Rocky Steady Boxing. Others look to virtual chats to create f…[Read more]

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Did it feel like Parkinson’s briefly got worse after DBS? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 weeks, 3 days ago

    That sounds like a really difficult turn of events, Lisa. Have you had the chance to talk to your neurologist about your balance?

     

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis posted a new activity comment 3 weeks, 3 days ago

    Hi Mike, thank you for joining our forums. Please let me know if there’s anything I can help you with along the way.

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  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis posted a new activity comment 3 weeks, 3 days ago

    Hi Grace, thank you for joining our forums. Please let me know if there’s anything I can help you with along the way.

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    dolores reiman and Profile picture of Mary Beth SkylisMary Beth Skylis are now friends 3 weeks, 4 days ago

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic What made you smile this week? in the forum Living ​With​ ​Parkinson's Disease 3 weeks, 4 days ago

    Haha! Your grandson sounds like someone who fights for what he wants. Where does he get that from?

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Do you consider yourself to be athletic? in the forum Parkinson's Disease and exercise 3 weeks, 4 days ago

    7 marathons is pretty impressive, Nick! I’m a runner, myself. But I’m beginning to wonder if I should switch to cycling. How does it compare?

  • Profile picture of Mary Beth Skylis

    Mary Beth Skylis replied to the topic Do you consider yourself to be athletic? in the forum Parkinson's Disease and exercise 3 weeks, 4 days ago

    7 marathons is pretty impressive, Nick! I’m a runner, myself. But I’m beginning to wonder if I should switch to cycling. How does it compare?

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