• Susan Schlager

    Member
    January 31, 2024 at 9:56 am

    I too would like to know more about Macuna Pruriens, especially the dosing.

    • Shaun

      Member
      February 16, 2024 at 8:48 am

      Read down through the comments. I posted more there. 😀

      • Viking

        Member
        June 15, 2024 at 8:03 pm

        Will this help coordination?

  • Shaun

    Member
    January 31, 2024 at 12:18 pm

    We have been working with a natural path Dr treating my husbands Parkinsons. We started an amino acid treatment, developed by Dr.Marty Hinz, who treated John Gray, the author of Men are from Venus, Women from Mars and other nutritional type books. Our Dr. is Dr. Chad Oler out of Madison Wisconsin. We started working with Dr. Chad in May of 2023. We did not like the ‘treatment’ options by our neurologist, so we chose this path. It is the best decision we ever made with phenomenal results. To go back, my husband had a left arm/hand uncontrollable tremor that was getting worse as time went on. He had started a lip tremble and even drooling. Was having swallowing issues. He shuffled his left foot. He sometimes had a blank stare like he wasn’t thinking clearly. Jump to today, after working with different dosing, and finally reaching the proper amount of Mucuna, Tyrosine, NeuroReplete, CysReplete, Methyl Support, and vitamin B3, we have nearly come full circle. It has taken about 8 months, so far, and we’re still doing little tweaks, to find the exact best dosing. We have done all this via telephone with Dr. Chad based on our conversations regarding symptoms, changes, and my husbands overall reaction to the therapy. He no longer has the crazy wiggle/tremor in his left hand. We are down to minor twitches he can control at any time. His lip tremble is gone. His drooling is gone. Swallowing is not near the issue it was. No shuffling of the left foot. And he is more cognitive, and back to his usual self before the diagnosis. It is not cheap, however, if you can’t buy your health, what else matters. I figure my husband has worked his entire life, and if this is what we spend our money on, then it is well worth it. We took our annual visit to the Neurologist that we were seeing, and he was in awe of the reverse in symptoms. He had not heard of what we are doing, although I am not surprised, as many Dr.’s have told us that they are only trained in pharmaceuticals, not natural treatments. I watched the Neurologist’s face as he asked my husband to walk, balance exercises, strength tests, etc. He was speechless. I don’t know why this treatment isn’t being suggested to the many Parkinson’s patients out there. I wanted to wait to see how our results were before I posted here. We bought e-bikes last year (since my hubby was riding less of his motorcycles) and we go everywhere. His balance is great. He’s strong. We exercise regularly in our home gym, and eat a good diet. All of those things made him a good candidate to pursue this therapy. He was a light beer drinker, but gave that up to give this therapy his full attention. He’s lost 10 lbs (that he didn’t need to), and has even dropped off one of his blood pressure medicines. All in all, I cannot imagine where he would be if we didn’t do this therapy. He has to take these supplements the rest of his life, but there is no doubt that is it well worth the extra steps each day, to have him back to normal. My only wish is that the insurance companies would recognize this as an acceptable therapy that works, and would help cover the cost of the supplements, instead of the pharmaceutical drugs they push instead.

    • Beth T Browne

      Member
      February 11, 2024 at 5:14 pm

      Shawn. Just read your story. Amazing. I am 87 this month. Diagnosed in June of 2020. I have tremors in right hand that come and go. I live alone. Sleep and not caring about eating have been a big problem. I do not take any of the drugs recommended for Parkinson. My walk is not what it use to be, but I do not use a cane, etc. I have lost short term memory. Most people do not know I have Parkinson, but I know. I take Juice Plus that works for any constipation.

      I have been taking Dopa Mucuna since 2020. Two tablets daily, 920 mg. Is this similar to the Mucuna you take? I have been taking 500mg of B1. I read on one of the sites two guys taking this and they sore it helped a lot. I have not read or heard about B3. How much of that do you take? I have no idea with those other items you are taking. Are they pills?

      Does Dr. Oler take insurance or just cash?

      I appreciate your response, and I am so thrilled for you and thank you so much for posting this information.

      Beth T Browne

    • Anne Boggs

      Member
      February 13, 2024 at 3:17 pm

      Good Afternoon Shaun,

      May I ask how long has your husband been diagnosed with Parkinson? and how long did he try Mucuna Puriens. Thank you

    • RCH

      Member
      February 14, 2024 at 1:24 pm

      Shaun. Great post. I am very interested in this. I am from Georgia as well. I am a 60 year old male, was diagnosed with PD over a year ago and have almost identical symptoms as your husband had. I would like to be able to talk with you if possible. My email address is [email protected] . Thanks Randy

      • Shaun

        Member
        February 16, 2024 at 8:58 am

        I believe my husbands PD came about due to head trauma from a motorcycle accident that happened in 09/2017. Broke both arms. Noticed the shaking in 2019. Kind of knew what it was, but Dr confirmed with an abnormal dopamine test. It progressed slowly, so we weighed our options. Tried a couple prescriptions for about 6 weeks each in 2020 with no noticeable difference and decided that since it was only treating the symptoms, not the disease, what was the point? So we just did nothing until a friend told me to check out John Grey’s journey through the same. That brought me to Dr. Chad Oler. We started this amino acid therapy in May of 2023.

      • Shaun

        Member
        May 21, 2024 at 4:10 pm

        Just a follow up for those following our Amino Acid Therapy. It’s been over a year since we started the amino acid therapy with Dr Chad Oler out of Wisconsin (we live in Atlanta). Couldn’t be happier with the results. My husband is about 90% better, with a few hand wiggles here and there during ‘exciting’ times during the day. Which we were told were normal. My husband rides motorcycles, and last spring of 2023, he was realizing it was time to let them go due to his shaky arm, balance issues, etc. Fast forward today, he is back to riding. He’s been a mechanic most of his life, and tools were getting unsteady, yet as of today, he has rebuilt a 240Z car we’ve had for over 30 years. He works on his motorcycles, we ride e-bikes at the beach, he builds, constructs, does all kinds of yard work, home repairs, and helps our kids with anything they need. No drooling or dazed looks from 3-4 months in to the therapy. His strength has returned in his left arm. He’s more cognitive. I even rode on the back of his motorcycle the other day which I never thought I’d do again. But he’s steady, he’s strong…you wouldn’t know he had Parkinson’s except for the slight wiggle he has here and there. His sense of taste and smell have been gone for awhile. Don’t think that’s ever coming back. But he eats sweet, sour and spicy things throughout the day to enjoy something, and just eats whatever I make him, trying to remember what it’s supposed to taste like. But all in all, it’s been a miracle taking this journey and watch him return to his old self! I’m curious if anyone else has tried it and what your experience has been. It takes about 9 months to get there, but now we are on a regular dosing that keeps him in check, and will continue for life. His supplements consist of Mucuna, NeuroReplete, CysReplete, vitamin B6 and Methyl Support. He used to take Tyrosine, but we’ve been able to eliminate that. I wish more people were aware of this therapy, as it has been nothing short of a miracle for us! If you are the least bit curious, do some research on this. It makes so much sense to replenish your body with nutrients it is missing.

      • Wil

        Member
        June 1, 2024 at 12:45 am

        Hello Randy! I’m from Georgia also. Just inside the perimeter of Atlanta. Also diagnosed one year ago. Currently taking 25/100 combination of CL and supplements including B1, Tyrosine. Hand/arm tremors mostly. Really searching for alternatives.

    • Johnny and Mariana

      Member
      May 23, 2024 at 9:28 am

      Very Interesting. We live in Namibia /Africa. The neurologist that diagnosed my husband told us that he does not believe in Macuna. Well needless to say, we did not drink the medicine that he prescribes but continue with Macuna and did not go back to him. Then he had to get a knee replacement and we had to stop all medicine 2 weeks before the surgery. Why I really do not know. All hell broke loose . His tremor in his left hand and leg was increasing. And we just could not get on the path that we were before. We went to another neurologist that put him back on Parkinson’s medicine and told us that if Macuna was an option why do no one prescribe that. In his words that is nonsense. It’s now 6 months and we are back on Macuna and Vit B1 with some other supplements. I will slowly starts weaning him from his C/L. He is on 3 tablets a day Carbilev. He is drinking 1x 18th of a teaspoon Macuna 3 times a day. I just wish someone will be able to guide us on when to increase or decrease the Macuna. The Pharmacist put the powder into a capsule for us. Mariana Schickerling from Namibia

    • ghmac

      Member
      May 30, 2024 at 1:08 pm

      Shaun I read your testimonial about Dr. Chad Oler. I spend a lot of my time on Health Unlocked – cure parkinson’s page and would really like to share what you wrote there. I don’t know if this will let me copy and paste or you have to re send. In fact, I don’t know this site well at all and I am afraid if you answer I will miss it or won’t be able to find it. can you send you answer by email? Thank you for your consideration. Sincerely, Gail MacDonald, Idaho [email protected] I think you journey has been amazing. We just drove from Boise to Seattle to see Dr. Laurie Mischley, but I liked your story BETTER!

    • Eco

      Member
      June 4, 2024 at 9:58 am

      Hello Shaun. Thanks for sharing. Can you share the dosing for mucuna pruriens.

      • Shaun

        Member
        June 4, 2024 at 5:45 pm

        Dosing is different based on where you are in your progression. Our dosing changed over the course of the year based on our results. We increased Mucuna, decreased Tyrosine, decreased Mucuna, as well as NeuroReplete and CysReplete, Methyl Support and B6. You get to a point where you are basically tweeking and fine tuning the dosages based on your results/reactions. I could not give you a dosing, as it is all very personal and needs to be monitored by someone who understands how this works. In our case, a naturopathic Dr. If you research Amino Acid Therapy for Parkinson’s, the info is out there. It’s not cheap buying the supplements, but it has worked for us, and we will continue to do this for the rest of his life.

      • tara

        Member
        June 13, 2024 at 12:31 pm

        Hey Shaun,

        I read your husband story similar to my husband he is also a mechanic he was diagnosed with pd last year same symptoms ! Is there you could give me the naturopath dr in Wisconsin ! It heart breaking to see my husband in this situation thr medication doesn’t work for him at all

        Tnx

        Tara

  • Doro

    Member
    February 1, 2024 at 2:10 pm

    Thank you for this informative and uplifting msg!

  • Vonda Mullins

    Member
    February 1, 2024 at 3:39 pm

    As well, I do the supplements, exercise and healthy diet, resulting in very mild symptoms. Taking the stress out of my life, was very necessary., as well. After being diagnosed 2 years ago, I feel very mentally and physically strong. It takes work and discipline, but your well-being is very worth it.

  • Tina

    Member
    February 1, 2024 at 3:56 pm

    Shaun,

    We looked into Mucuna Pruriens and said something to my husband’s neurologist about it. He just about lost his mind! They are not there to help cure or relieve, especially if it has anything to do with natural remedies. They are there to push medications and continue to increase the meds. Are you using Mucuna Pruriens alone or with other natural remedies? If using alone, what is the dosage, type, etc. Do you use it with Phamaceuticals, Sinemet particularly? I’m very interested what exactly has helped your husband as far as natural remedies. Does he take any pharmaceuticals with the natural stuff?

    • Shaun

      Member
      February 1, 2024 at 4:25 pm

      I listed all of the things my husband takes in my post. He does not take any other PD meds. He takes one blood pressure med and we do just regular supplements, like zinc, vit E, magnesium, probiotic, turmeric, etc. The best way to get more info is to contact Dr. Chad Oler. We have done all of this over the phone (not even a ZOOM call) and have never even met him in person. We have gotten to know Dr. Chad over the last 8 months and put our full trust in him. If you go to his website, at http://www.naturalpathcenter.com, you will find links with all kinds of information. This is the route I went. You will fill out a questionnaire to see if you are even a good candidate for the treatment. It is called Amino Acid Therapy. The basis of it is, in PD your neurons start dying. They stop transmitting information like they used to. With this therapy, you are basically feeding your remaining neurons the necessary supplements to help boost the existing neurons and the neurotransmitters. We take a specific DBS test every few months to check how his neurotransmitters are receiving information. All this is done under the guidance of Dr. Chad Oler. I’m sure there are other Dr.’s out there that are trained to do this. If they studied under Dr. Marty Hinz, they also know the treatment plan. We live in Georgia, and Dr. Chad is in Wisconsin. I am going to plan a trip soon to go meet him in person to thank him for all his guidance and getting my husband to where he is today. If you have any other questions I can answer, Id be happy to. Do your research. Read all that is involved and/or call them and ask questions. Dr. Chad is a wealth of information.

  • QiDoc10

    Member
    February 16, 2024 at 12:23 pm

    My husband was diagnosed with post viral Parkinsonism after a bout with Covid in February 2022. Although he had suspicious RSD symptoms for about 10 years prior to the Covid infection he was still working as a professional musician with no other symptoms. I am an alternative health care practitioner so I have some background in treating health issues naturally and when the symptoms started to show up I started looking into more natural ways of treating his condition. The neurologist was not happy we decided to go this route but encouraged us to try for 6 months. He has now stopped pushing the medication and allowing us to figure this out on our own. While the symptoms have improved dramatically there still work to be done. More recently we’ve been adding some amino acid therapy with good results in addition to the mucina purines and other supplements he’s been taking. Thank you, Shaun, for the information about Dr Olin, he will be my next step.

  • Shaun

    Member
    February 20, 2024 at 3:50 pm

    I hope you find what works for you. Having Dr Chad explain so much to us was so great! We are so pleased with the results we got. We’re still ‘tweaking’ with minute changes, but overall it has been very effective.

  • Marc Anderson

    Member
    May 31, 2024 at 9:27 am

    Marty Hinz’s protocol has long since been debunked and “Dr.”John Gray is a complete and total fraud, getting his degree from the back of a matchbook university, closed down by the state of CA. His claim he cured his PD with a smoohtie for big $$ is all you need to know. Marty Hinz IMHO is also a fraud.

    John Gray never had PD.

    PWP would do well to ignore both of these clowns

    “Gray received an unaccredited PhD in 1982 from Columbia Pacific University (CPU), a now-defunct correspondence institution.[5][6]”

    “Gray has been marketing dietary supplements through his Web site since at least 2005. In 2019, the U.S. Food and Drug Administration ordered him to stop making illegal claims for several products: 2-AEP Membrane Complex, Ionic Silver Water, L-Glutathione, Liposomal DHA – Ultimate Omega-3 Brain Support, Liposomal Methyl B12/Folate, NAC N-Acetyl-L-Cysteine, and Vectomega.[15]”

    “Gray was quoted as saying with regard to feminism, “The reason why there’s so much divorce is that feminism promotes independence in women. I’m very happy for women to find greater independence, but when you go too far in that direction, then who’s at home?”[18] He also stated that “feminism in America holds back sales of [his] books”,

    en.wikipedia.org/wiki/John_….

    quackwatch.org/cases/fdawar…

    startribune.com/doctor-s-ar…

    Supplement-selling doctor who ran afoul of FDA and state medical board up to 20 retractions

    retractionwatch.com/2021/03…

    Last edited by MBAnderson

    • Shaun

      Member
      June 4, 2024 at 5:59 pm

      As much as you want to knock this down, unless you have tried it and experienced the results, you have no leg to stand on in my book. Whatever your quotes are or whatever you think is ‘debunked,’ I encourage you not to dismiss it without having the benefit of living and experiencing it. We have been faithful to this process for over a year now, and AS A FACT, have personally seen the results. I waited a year before I posted our journey, as I too was skeptical, but we had nothing to lose but worsening symptoms, which was not our case. All I have done was share our experience, in an effort to hopefully help others in this horrible disease. No matter what treatment you choose to try, everyone is different and can and will have different results, just like any other therapy. So as a caregiver, who has monitored this whole process, I hope you would not discourage this or any other therapy that people have found to work for them. Who are you to tell people it doesn’t work, unless you yourself have tried it?? I searched for an answer after my husbands diagnosis, and did the research on Amino Acid Therapy, and it made a lot more sense to me than pushing prescription drugs that did nothing to help (actually made things worse!). This has been the most amazing miracle in our lives, and its a shame that you have nothing more to share than post quotes from whatever source you have. I’m not here to dissect John Grey’s life or his books. I’m here to share our story and encourage others to try other methods that could possible work for them. Good luck in your journey.

      • QiDoc10

        Member
        June 5, 2024 at 8:53 am

        Having been in the alternative health industry for over 35 years, first as a retailer now as a practitioner, my first red flag on this comment was the total trashing of what has worked for many. Secondly, ANY time someone uses quackwatch as a reference, I’m gone. Pot/kettle. I have seen the fads in supplementation come and go. Yes, there are charlatans out there only trying to make a fast dollar. However, I’ve been doing this long enough to know that some people are deeply entrenched in the Western model and no matter how well researched and widely used a supplement is, only big pharma can give you results. Big pharma almost killed me at one point in my life and I deeply believe that my husband’s PD is the results of over prescribing of antidepressants earlier in his life. I will do whatever I can to avoid that path. It is not the path of ‘First do no harm!’ While the alternative system isn’t perfect, neither is theirs. I work with a supplement company that has medical doctors and research scientists formulating and testing the products we use. I have every confidence in their quality and reliability. I treat people going the traditional path and their results just don’t compare to the results we’ve gotten from using the alternative dopa replacement. Thank you, Shaun for continuing to be a voice for a better way.

  • Wil

    Member
    June 1, 2024 at 12:25 am

    Thanks for sharing your journey! I am a 64-year old, diagnosed with PD one year ago. I would like to hear more about your trials/tribulations and ongoing improvements.

    • Shaun

      Member
      June 4, 2024 at 6:16 pm

      We went through a lot to get here. We tried a few different meds for about 6 weeks each, but nothing seemed to work, and just made symptoms worse, so we stopped altogether. A friend of mine told me to look into this, so I did my research and found our natural path Dr. He is a chemical engineer as well, as has had his own issues that he has overcome. If you understand science, and how chemicals work, you can pretty much understand how different things can affect the body. All in all, it made so much sense to me, that I figured we had nothing to lose by trying. My husband was a lite beer drinker, but has given that up and any other alcohol. He already was pretty fit, but we exercise faithfully three times a week, plus do other active things. He’s a motorcycle rider, and was going to give up his motorcycles last year. This year, he is back to riding. We are on a schedule with the Amino Acid therapy, and he takes his supplements three times a day: 8 am, 1 pm and 6 pm. Sometimes, he would get nauseous, which is the only side effect he experienced, but we found different ways to combat that by taking the pills with some food, then doing the mucuna powder a few minutes later. It’s been trial and error, but he found what works for him at this point. It wasn’t easy at first, but the results are so profound that it’s worth whatever he has had to do to have is life back, as he does now. Prior to starting this, he had started drooling, that’s gone. He shuffled his left foot and had balance issues, that’s gone. Sometimes he had the blank stare, that’s gone. His arm shook ALL THE TIME, now we’re just down to a hand wiggle, mostly when he’s excited about something he’s working on. He was an aircraft mechanic by trade, and was having trouble holding tools, and now he has rebuilt an old car, works on his motorcycles, and rides them. I bought us some electric bikes last year, which our neurologist raised his eyebrows at, but he’s as steady as can be. Our neurologist has seen the results and has encouraged us to continue what we are doing. I wrote a lot more in above comments, but all I can tell you is that it’s worth trying, as it has worked for us tremendously.

  • John Wick

    Member
    June 13, 2024 at 2:32 pm

    Did you stop taking C/L or are you using as a combination with Macura?

    Thank you

    • Shaun

      Member
      June 17, 2024 at 8:35 am

      Not taking any prescription drugs at all. Just our amino acid therapy supplements.

  • DrMoonpie

    Member
    July 5, 2024 at 11:59 am

    My husband has PD, diagnosed in December 2023. Early stages of clinical symptoms were as follows: Tremors in both hands but mostly left. Also jaw tremor. Minimal facial masking. Also beginning of kyphosis and upper thoracic and shoulder pain, hand pain. Also cramped handwriting. Minor facial masking. Also severe depression, apathy, orthostatic hypotension, constipation, seborhheic dermatitis preceded the clinical symptoms.

    When the clinical symptoms appeared I put him on Mucuna Pruriens, 1500mg, with 75mg of Ashwaghanda, a balancing herb. This preceded the appointment with the neurologist who diagnosed him by two months. No changes in clinical symptoms.

    Neurologist put him on 25/100 Sinemet. Clinical symptoms began abating rather quickly. I kept Ray on the MP as an adjunct, though, because it can’t hurt him.

    Also I get my husband to the gym four to five times a week. We do a mix of exercises but mostly floor activities in the corner of the gym targeting his cognition, thoracic spine, balance, and flexibility.

    My husband turns 83 in October. He is a Bluewater Navy vet, tactical herbicide exposure.

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