twok
Forum Replies Created
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NOT A FAN!
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i can testify that meds may need upping. as a person with pd, i am amazed how difficult it is to move when meds need adjusting…
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The above replies are really interesting. I experience similar side effects. The main issue for me is the dyskinesias. I will consider issues especially the muscle tightness which I attributed to the disease and see if they might be a result of medication.
Sooo happy this issue was raised. l look forward to reading everyone’s replies. -
‘Comfort care’ service was a hit and miss experience for me. One worker was quite motivated, the other willing, but surprisingly inept, e.g. after asking me many times if she could get lunch for me, could not boil an egg. Both were wonderful human beings, trustworthy, I felt.
I believe I will use this service for episodic shopping help. Both of my workers were excellent drivers, my car or their cars (extra cost for mileage.)
Based on this experience and that of my aged male friend, I have concluded that companion care workers are oriented towards social interaction (a good thing) but do not fill my needs for help around the apartment.
This level of care does not allow for any hands-on-service, even the simplest like combing hair.
During the worst of covid, I would not have a worker in my home who was not fully immunized. The agency did not mandate immunization.
Best of luck in your search for care. -
prefer slip on flats with support in the sole
slip on crucial
relatively snug fit helps with walking
tied shoes a no, no
wear socks only in snow
my feet slip around in sneakers, makes my gait less confident -
I devote a large shallow kitchen drawer to all meds and supplements. I have them segregated and deposited in shallow containers. Large bottles, partially full, are stored nearby.
I find that depositing pills in the used white bottle caps…before I swallow them, provides a visual verification of what I should be taking.
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I use grabbers, a shower bench, a rollator, a cane, a crescent ‘knife’ to cut meat.
I am starting to use vocal ‘typing’, have an enlarged bright keyboard and when the time comes, I have a touch PC…the monitor will allow me to use my finger to scroll, x out a page, etc.
My bed consists of a bunkie board and mattress resting on the bottom steel shelves of
two small scaffolds. The extra metal ‘arms’ on the sides are good for pulling myself out of bed, etc. -
Yes, indeed! People around me have to deal w my obvious pk symptoms, let alone the less obvious ones, like constipation, bladder and sleep issues.
If I were in a relationship, I wd not share sexual problems.
A pk group on FB was the FIRST to allow a question about alcohol use…ff by many candid responses…was refreshing… -
Kevin, I can’t imagine not seeing a neurologist regularly.
Perhaps your pcp knows a lot about parkinson’s? -
Nikos! Wonderful!
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I have heard of adverse side effects after surgery, i.e. speech problems…not to mention stroke, death.I feel that I would consider the surgery if the latest technologies were used, but my hospital uses older techniques and there is only one surgeon who performs all of the dbs.
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As one of those ‘in decline,’ (no sarcasm intended), I offer the observation that cognitive prowess can vary greatly in the same person. Clearly, everything is slower and just as emotion effects tremor, emotion can cloud ideation and the use of common sense. Then there is vitamin d, hydration, wearing off, fatigue etc. There is still a person ‘in there.’ Can you engage your Dad in a discussion re this? My daughter gets intense, my son responds with humor. I am grateful that the topic is out in the open.
Your dad may have forgotten ‘sherpa,’ but he surely knows you love and care about him. He is lucky to have you!
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Does anyone know when the generic version will be available?
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Strong startle reflex both before diagnosis and now…entertains my family.
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you are a courageous w0man!
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yes.Yes.Yes.
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Great writing!
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love your comments
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Wow! That defines spousal devotion; 29 years supporting her husband!
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Osteoarthritis can be very painful, too!
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BRAVO!
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YOU ARE AMAZING!
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Agree with Paul…well written and thoughtful.
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we had a support group member who was immediately put on the patch because he couldn’t tolerate oral carb/lev…if you push for it you might get to try it…it’s very expensive, I hear.
best of luck!