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    • #20581
      Mary Beth Skylis

      It isn’t uncommon for us to keep information to ourselves when we’re going through difficult times. For many, this strategy is a protective coping mechanism. Others just prefer not to talk about the symptoms. I, personally, struggle to talk about taboo topics like the digestive tract and intimacy.

      Do you have a lot of Parkinson’s secrets? And if you prefer to keep them to yourselves, why?

    • #20649

      Yes, indeed! People around me have to deal w my obvious pk symptoms, let alone the less obvious ones, like constipation, bladder and sleep issues.
      If I were in a relationship, I wd not share sexual problems.
      A pk group on FB was the FIRST to allow a question about alcohol use…ff by many candid responses…was refreshing…

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