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Agree with Paul…well written and thoughtful.

Yes, indeed! People around me have to deal w my obvious pk symptoms, let alone the less obvious ones, like constipation, bladder and sleep issues.
If I were in a relationship, I wd not share sexual problems.
A pk group on FB was the FIRST to allow a question about alcohol use…ff by many candid responses…was refreshing…

Kevin, I can’t imagine not seeing a neurologist regularly.
Perhaps your pcp knows a lot about parkinson’s?

Nikos! Wonderful!

I have heard of adverse side effects after surgery, i.e. speech problems…not to mention stroke, death.I feel that I would consider the surgery if the latest technologies were used, but my hospital uses older techniques and there is only one surgeon who performs all of the dbs.

As one of those ‘in decline,’ (no sarcasm intended), I offer the observation that cognitive prowess can vary greatly in the same person.  Clearly, everything is slower and just as emotion effects tremor, emotion can cloud ideation and the use of common sense.  Then there is vitamin d, hydration, wearing off, fatigue etc. There is still a person ‘…[Read more]

Does anyone know when the generic version will be available?

we had a support group member  who was immediately put on the patch because he couldn’t tolerate oral carb/lev…if you push for it you might get to try it…it’s very expensive, I hear.

best of luck!

Ally, I feel as you described…maybe we are part momma bear and need to hibernate.  It will be a challenging covid winter.  It helps me to stay connected to the PK community, there are new interesting webinar opportunities, e.g. Parkinson’s Foundation, and Davis Phinney, as well as MJFOX organizations.

Best of luck!  Soups speak to warmth and co…[Read more]

Roy, I am anxious to know how you like your mattress.  I thought the concept was promising.  PLEASE let me know!

DearSteve,

What a wonderful son you are!  I have tremors on one side only so far…I can’t imagine the frustration your mom feels when she tries to work with two shaking hands. You have had one recommendation for sertraline and I too like this/use this for depression.  Recently my doctor prescribed gabapentin for arthritis and it worked well f…[Read more]

I had tinnitus in one ear, now my PK side, for about 4 or 5 years.