twok

Strong startle reflex both before diagnosis and now…entertains my family.

you are a courageous w0man!

The above replies are really interesting. I experience similar side effects. The main issue for me is the dyskinesias. I will consider issues especially the muscle tightness which I attributed to the disease and see if they might be a result of medication.
Sooo happy this issue was raised. l look forward to reading everyone’s replies.

yes.Yes.Yes.

‘Comfort care’ service was a hit and miss experience for me. One worker was quite motivated, the other willing, but surprisingly inept, e.g. after asking me many times if she could get lunch for me, could not boil an egg. Both were wonderful human beings, trustworthy, I felt.
I believe I will use this service for episodic shopping help. Both of…[Read more]

Great writing!

love your comments

prefer slip on flats with support in the sole
slip on crucial
relatively snug fit helps with walking
tied shoes a no, no
wear socks only in snow
my foot slip around in sneakers, makes my gait less confident

I devote a large shallow kitchen drawer to all meds and supplements. I have them segregated and deposited in shallow containers.  Large bottles, partially full, are stored nearby.

I find that depositing pills in the used white bottle caps…before I swallow them, provides a visual verification of what I should be taking.

Wow!  That defines spousal devotion;  29 years supporting her husband!

Osteoarthritis can be very painful, too!

I use grabbers, a shower bench, a rollator, a cane, a crescent ‘knife’ to cut meat.
I am starting to use vocal ‘typing’, have an enlarged bright keyboard and when the time comes, I have a touch PC…the monitor will allow me to use my finger to scroll, x out a page, etc.
My bed consists of a bunkie board and mattress resting on the bottom steel…[Read more]

BRAVO!

YOU ARE AMAZING!

Agree with Paul…well written and thoughtful.

Yes, indeed! People around me have to deal w my obvious pk symptoms, let alone the less obvious ones, like constipation, bladder and sleep issues.
If I were in a relationship, I wd not share sexual problems.
A pk group on FB was the FIRST to allow a question about alcohol use…ff by many candid responses…was refreshing…

Kevin, I can’t imagine not seeing a neurologist regularly.
Perhaps your pcp knows a lot about parkinson’s?

Nikos! Wonderful!

I have heard of adverse side effects after surgery, i.e. speech problems…not to mention stroke, death.I feel that I would consider the surgery if the latest technologies were used, but my hospital uses older techniques and there is only one surgeon who performs all of the dbs.

As one of those ‘in decline,’ (no sarcasm intended), I offer the observation that cognitive prowess can vary greatly in the same person.  Clearly, everything is slower and just as emotion effects tremor, emotion can cloud ideation and the use of common sense.  Then there is vitamin d, hydration, wearing off, fatigue etc. There is still a person ‘…[Read more]