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twok

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@kathleenl-karafonda

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    twok replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 8 months, 3 weeks ago

    Strong startle reflex both before diagnosis and now…entertains my family.

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    twok replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 8 months, 4 weeks ago

    you are a courageous w0man!

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    twok replied to the topic What side effects do your medications have? in the forum Parkinson's Disease Medications 10 months, 2 weeks ago

    The above replies are really interesting. I experience similar side effects. The main issue for me is the dyskinesias. I will consider issues especially the muscle tightness which I attributed to the disease and see if they might be a result of medication.
    Sooo happy this issue was raised. l look forward to reading everyone’s replies.

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    twok replied to the topic Reflecting back on the last two years in the forum Living ​With​ ​Parkinson's Disease 11 months ago

    yes.Yes.Yes.

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    twok replied to the topic Have you hired outside help? in the forum Living ​With​ ​Parkinson's Disease 11 months ago

    ‘Comfort care’ service was a hit and miss experience for me. One worker was quite motivated, the other willing, but surprisingly inept, e.g. after asking me many times if she could get lunch for me, could not boil an egg. Both were wonderful human beings, trustworthy, I felt.
    I believe I will use this service for episodic shopping help. Both of…[Read more]

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    twok replied to the topic What kind of footwear do you prefer? in the forum Living ​With​ ​Parkinson's Disease 11 months ago

    Great writing!

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    twok replied to the topic Noticing the Silver-Linings of Parkinson's in the forum Living ​With​ ​Parkinson's Disease 11 months, 1 week ago

    love your comments

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    twok replied to the topic What kind of footwear do you prefer? in the forum Living ​With​ ​Parkinson's Disease 11 months, 1 week ago

    prefer slip on flats with support in the sole
    slip on crucial
    relatively snug fit helps with walking
    tied shoes a no, no
    wear socks only in snow
    my foot slip around in sneakers, makes my gait less confident

  • Profile picture of twok

    twok replied to the topic How do you store your medication? in the forum Living ​With​ ​Parkinson's Disease 11 months, 3 weeks ago

    I devote a large shallow kitchen drawer to all meds and supplements. I have them segregated and deposited in shallow containers.  Large bottles, partially full, are stored nearby.

    I find that depositing pills in the used white bottle caps…before I swallow them, provides a visual verification of what I should be taking.

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    twok replied to the topic How do you store your medication? in the forum Living ​With​ ​Parkinson's Disease 11 months, 3 weeks ago

    Wow!  That defines spousal devotion;  29 years supporting her husband!

  • Profile picture of twok

    twok replied to the topic Parkinson's and Rheumatoid Arthritis in the forum Living ​With​ ​Parkinson's Disease 1 year, 3 months ago

    Osteoarthritis can be very painful, too!

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    twok replied to the topic Do you use technology to fight Parkinson's? in the forum Parkinson's Disease alternative treatments 1 year, 3 months ago

    I use grabbers, a shower bench, a rollator, a cane, a crescent ‘knife’ to cut meat.
    I am starting to use vocal ‘typing’, have an enlarged bright keyboard and when the time comes, I have a touch PC…the monitor will allow me to use my finger to scroll, x out a page, etc.
    My bed consists of a bunkie board and mattress resting on the bottom steel…[Read more]

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    twok replied to the topic Anxiety and Parkinson's in the forum Living ​With​ ​Parkinson's Disease 1 year, 7 months ago

    BRAVO!

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    twok replied to the topic What do you wish you'd learned earlier? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 7 months ago

    YOU ARE AMAZING!

  • Profile picture of twok

    twok replied to the topic Do you think there will be a cure for PD in the next 5-10 years? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 9 months ago

    Agree with Paul…well written and thoughtful.

  • Profile picture of twok

    twok replied to the topic Do you have a lot of Parkinson's secrets? in the forum Living ​With​ ​Parkinson's Disease 1 year, 9 months ago

    Yes, indeed! People around me have to deal w my obvious pk symptoms, let alone the less obvious ones, like constipation, bladder and sleep issues.
    If I were in a relationship, I wd not share sexual problems.
    A pk group on FB was the FIRST to allow a question about alcohol use…ff by many candid responses…was refreshing…

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    twok replied to the topic How long does it take to find the right medication balance? in the forum Parkinson's Disease Medications 1 year, 9 months ago

    Kevin, I can’t imagine not seeing a neurologist regularly.
    Perhaps your pcp knows a lot about parkinson’s?

  • Profile picture of twok

    twok replied to the topic What would you tell someone who was recently diagnosed with PD? in the forum Living ​With​ ​Parkinson's Disease 1 year, 9 months ago

    Nikos! Wonderful!

  • Profile picture of twok

    twok replied to the topic What are your thoughts about Deep Brain Stimulation? in the forum Parkinson's Disease alternative treatments 1 year, 9 months ago

    I have heard of adverse side effects after surgery, i.e. speech problems…not to mention stroke, death.I feel that I would consider the surgery if the latest technologies were used, but my hospital uses older techniques and there is only one surgeon who performs all of the dbs.

  • Profile picture of twok

    twok replied to the topic Does it get easier to witness the decline? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 1 year, 11 months ago

    As one of those ‘in decline,’ (no sarcasm intended), I offer the observation that cognitive prowess can vary greatly in the same person.  Clearly, everything is slower and just as emotion effects tremor, emotion can cloud ideation and the use of common sense.  Then there is vitamin d, hydration, wearing off, fatigue etc. There is still a person ‘…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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