September 20, 2021 at 8:03 am #21736Mary Beth SkylisModerator
My Dad has recently been experiencing aggressive moments while he’s asleep. We worry that he might accidentally hit my Mom. Dad’s neurologist recommended taking melatonin to help with these types of disturbances. Do you take melatonin for sleep disturbances? And has it helped with the aggression?
September 21, 2021 at 9:43 am #21871mary parkerParticipant
I take a product called DreamWell Ultra, Melatonin plus GABA. Also I take magnesium at night. The 2 of these together offers a good nights sleep for me.
September 23, 2021 at 10:03 am #21887Clive VarejesParticipant
I occasionally take a half pill of Somnil.
It is an over the counter “sleep aid”.
I find the half tab works better for me that a full one.
September 23, 2021 at 2:21 pm #21889KrukarParticipant
I took Melatonin for a moment. Most of all it made me Pee too much. It also made me a little groggy. Now I try and exercise more and sleep comes easier. I don’t experience aggression
in bed. Getting good sleep is so very important. To me natural sleep is the most restorative.
September 23, 2021 at 3:41 pm #21893Karla BurkhartParticipant
I’ve never heard of melatonin for acting out dreams. I take a slow acting tablet to help me get to sleep. If violent dreams are the problem, that is entirely different.
September 27, 2021 at 6:48 am #21903Orlando JackParticipant
I noticed that no one mentioned the amount of Melatonin they were taking. My Neurologist recommended that I after had a nightmare one evening that I take a 1MG tablet of Melatonin which is an all natural sleep aid. Sometimes I take 2MG’s but not all at once because it can make you too sleep which can be dangerous when walking etc.. (Google it for more info). Remember: ‘less is more’ until you find the right dosage.
September 27, 2021 at 6:49 am #21904Orlando JackParticipant
I noticed that no one mentioned the amount of Melatonin they were taking. My Neurologist recommended that I after had a nightmare one evening that I take a 1MG tablet of Melatonin which is an all natural sleep aid. Sometimes I take 2MG’s but not all at once because it can make you too sleepy which can be dangerous when walking etc.. (Google it for more info). Remember: ‘less is more’ until you find the right dosage.
September 27, 2021 at 12:48 pm #21901The DucksParticipant
Hello Mary Beth et al,
Have you come across any information regarding Rapid Eye Movement sleep Behavioral Disorder RBD? Here is the weblink to the article from Sleep Medicine that I hope you find helpful https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2823283/
Melatonin is recommended by the panel authors.
People with RBD may act out of dreams and may injure himself (or herself) as well as bed partners. Does your father have bed rails to prevent him jumping out of bed during dreams?
October 19, 2021 at 2:50 am #22069Alan MParticipant
Hey there the Ducks. I just became aware of REM-SBD where Melatonin was recommended over Quetiapine as a neuro-nocturnal assist in helping to lessen the violent dream states of PD. It is noted to help prevent the RBD from seriously compromising our quality of life which leads to impaired daily functioning.
I’ve yet to take flight out of my bed yet — pole vaulting was never my thing. But I have been known to frighten the begeebers out of my spouse; by screaming, cursing, punching, kicking and attempting to strangle her! I don’t know wo I’m tangoing with or who / what I feel threatened by, but it seems the “fight mode” is the response of choice?
October 19, 2021 at 5:39 pm #22076Paulette MyersParticipant
I also take Melatonin for REM Sleep Disorder. I take 10mg and try to exercise every day. If I don’t exercise I risk having some breakthrough symptoms. However, melatonin has taken away the violent dreams and serious acting out. My husband says that I sometimes talk in my sleep quietly some nights, but that is much better than violent dreams where I am fighting off attackers. Recent research is indicating that melatonin is good for your brain, so that is good news.
September 28, 2021 at 4:52 pm #21919Debbie LucchesiParticipant
I also act out hitting and punching ( poor husband). My doctor recommended melatonin and I take 2 mg with 1 mg CBD and 5 mg THC and 1 mg CBN tablet . It is helping
September 30, 2021 at 7:56 am #21933Robert LiParticipant
I take 20 mg melatonin. It doesn’t seem to be that much different from 3 mg in effect, but I have read research that melatonin is neuroprotective: https://site-akiajqrf22xmaqzsiz6q.s3.amazonaws.com/DDI+Website/News/html/Melatonin+-+The+Swiss+Army+Knife+Among+Antioxidants.html
At the beginning I was quite groggy in the morning but no more.
For the kicking part (like reacting to a dream), that is reminiscent of severe restless leg syndrome to me. What helped me was vitamin D for a few months (I’m taking 9,000 IU to keep my serum levels around 60 ng/mL, which sounds like a crazy dose but it’s due to genetics). Notably, people with PD are usually more likely to be vitamin D deficient than the normal population, and vitamin D supplementation has been shown to help with RLS and hyperkinetic diseases. Also what helped were vitamin E 400 IU and beta carotene (sweet potatoes, carrots). The vitamin E has a risk factor which I do not understand, but it has been shown to reduce tics in some people.
September 30, 2021 at 5:32 pm #21964Gwendoline JakinsParticipant
From what I’ve read on PD forums, the amount of melatonin taken by members varies incredibly. It’s trial and error. My husband takes Valdoxan for anxiety at bedtime. He was also prescribed 4mg of melatonin. Together, they made him sleepy the following morning. It turned out that Valdoxan is a melatonin agonist. We cut out the melatonin, until now.
Recently his legs have been jerking in the night, so we have introduced 2mg of melatonin. It doesn’t seem to make him sleepy. It’s only been a couple of nights, so it’s too early to know whether it’s helping the problem. Certainly he was much quieter last night.
October 20, 2021 at 5:43 pm #22087JoakimParticipant
I started taking Melatonin as a sleep aid (no violent sleeping) and at first it worked well (12mg). However, I found indica gummies (cannabis) work so much better. I get a near full night rest.
October 21, 2021 at 2:24 pm #22099Mary EvslinsParticipant
I was diagnosed with REM sleep disorder 6+ years ago and am about to get a scan to see about a PD diagnosis. I am very vocal at night. I talk yell, shout and flail and punch. Once I almost bit my husband. I was so humiliated. I tried 20 mg of melatonin for a month. It helps a little but not much. Clonazepam puts me to sleep all night and keeps me pretty quite. I don’t know if induced sleep is of the same quality as natural sleep. Does anyone?
Also my husband has learned to be a defensive sleeper. He used to roll over and try to put his arms around me to soothe me. Problem was that I was dreaming of a bad guy,animal, thing coming toward me and then its arms were holding me down. I was asleep but fought like I was being murdered. Not a good thing. Now he stays on his side of the bed and reach an arm over to my shoulder and taps it saying, “You are all right.” Much safer. Since I am a sleep, I don’t remember anything. I am just glad he is ok. RBD is much worse on a sleeping partner than for the person who has it.
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