Krukar

Hi Ally,

Fraya and I will travel to Tucson Arizona next Friday. It is a 230 miles east of Sedona our home. We have a niece and nephew there. Driving is easer for me to travel. In July we will fly to Alaska for our granddaughters wedding. Flying is more difficult because of mobility struggles. We have really enjoyed traveling in retirement but…[Read more]

Mary Beth

I have also added Qui Gong to my regimen combined with accupuncture. It is a new variation that seems to work pretty well. My new Physical therapist is all for it. For me it helps to have supportive therapists. So we are all ‘rowing’ in the same direction. I try  and stretch every day. Blessings ,Mike

How interesting that you would ask. On Thursday my wife and I received our 2nd vaccine I am 65 with Parkinson’s my wife is older with other health issues. For me there were more consequences from the vaccine than I expected. Friday I was extremely stiff and just stayed on the couch. Saturday I felt better but during the afternoon the stiffness r…[Read more]

Jessie,
<p style=”text-align: left;”>I was diagnosed with Parkinson’s ‘officially’ 8/2020. I am 65.  That Gauri  has early on-set since the age of 41 is very difficult  yet she has hung in there. She has returned to her avocations in a way that are inspirational. For me the initial shock of naming my condition has subsided as I have adapted to ong…[Read more]

Andrew,

I consider my self an athlete as well. At 65 my C/L dose has been going up. Today I am on 6 pills. When I asked the neurologist to up my C/L due to my stiffness her response was why not exercise more and keep the C/L at the same level. I already get massages every 2 weeks. I will also begin accupuncture  every 2 weeks. Follow the…[Read more]

I just made my appointment for  acupuncture this morning. I will let you all know how it goes! Blessings, Mike

Mary Beth,
<p style=”text-align: right;”>Like most things in this struggle I battle hunching with exercise . I find LSVT especially use ful. Also have you guys checked out the free Stanford Parkinson’s Outreach it has a variety of sites that are good sources for Parkinson’s specific routines.
Blessings, Mike</p>
 

What a great discussion on the benefits of C/L. I have been on the medication since 8/2020. It has been beneficial. My dose began at a total of 5.5 pills per day up to 6 pills per day. I do exercise daily and try to eat right. This Tuesday I met with my Neurologist, because of some stiffness I requested that I be bumped up to 7 or 8 pills per day.…[Read more]

Mary Beth,
I use a weekly pill container for my daily meds. For my C/L which I take 4 times per day I have Alexa ping at each time required. Blessings, Mike

Thank you John,

Your assessment of C/L is spot on. I believe that if one does the combo of daily  exercise, diet and medication it can be critical. And can be effective longer than just 5 years.

To me the hope is , like you John , it can have effect for many years. At first when I heard , only 5 years, it worried me, but oh well I’ll be 70 by th…[Read more]

Hi Ron,

I was diagnosed 8/2020. I started C/L 8/2020 per my Doctor, who we really like. I take 2 pills 3 times per day. It seems to really help. I am 65 yo. My physical therapist told me she has worked with others who refuse to take C/L and are jittery messes. That has been my experience. I also take  1 Melatonin for sleep before I go to bed it…[Read more]

Mary Beth,

Because of my week bladder I only sleep in 2-3 hour stretches each night.

But it has become much better since I do Kegels consistently and restrict my water intake after 7 pm.  My exercise is at least 1-2 hours per day so I am tired before I go to bed. Lately I have begun taking 1 10 mg Melatonin 45 minutes before I go to bed. I…[Read more]

Mary Beth,

Like your Dad I try to exercise every morning with various on-line exercises particularly LSVT and other balance routines. I also like to do a little bit of weights. We also like to walk to coffee. Some times I am less inclined but it has become a habit in my life. I think that PwP’s can have days that are harder than others. For me t…[Read more]

Hi Ally,

I began my journey with Parkinson’s 8/2020. Right in the middle of the Pandemic. I use on-line exercise routines that I do on my deck in Sedona, Arizona. Particularly I use an LSVT routine and several other balance and exercise routines. Every 2 weeks I get a 1 hour massage, we also have an exercise bike on our deck that I use when my…[Read more]

Hi Ally,

Mike here, the best way to get a hold of me would be by my email

[email protected]. My wife has given me permission to share my story. I take a positive, proactive approach in my battle with Parkinson’s. I recognize it is a difficult fight. Blessings, Mike

I can share my story. Diagnosed 8/2020 but like most I have probably had Parkinson’s for awhile longer. I take C/L 3 times daily. At 65 and happily retired, married and living in Sedona Arizona, Parkinson’s has shifted my life.

I exercise daily and try to eat right, meet with 2 Parkinson’s buddies weekly. Writing in these columns has been great f…[Read more]

Mary Beth,

I had the Virus in August of 2021. Like your dad I was very tired. It lasted for about 2 weeks and then lingered for another week. It didn’t affect my Parkinson’s much. I hear about people with ‘long Covid’ and mine was not that. In fact I joked that I still have Parkinson’s but my Coronavirus is getting better. Funny. Blessin…[Read more]

Mary Beth,

Alaska is really cold in the winter. We really just got tired of it. My wife and I are both retired from the State of Alaska which gives us both good pensions.

We both named the Cats who are very dear to us. We love Sedona and the climate is much more moderate for us. My approach to Parkinson’s is that I really don’t have a choice. W…[Read more]