Krukar

Hi Ally,

Happy Thanksgiving to all.

Mental Health sure can be an issue for Parkinson’s folks. I think it is partially the result of sitting around. So I am especially grateful for Fraya purposing we walk this morning. We have both had colds so that made it easy to give me an excuse not to exercise which helps so much. I have got to attack my…[Read more]

Hi Ally,

I consider myself extremely lucky. My wife is an absolute Peach as we battle our mutual health issues. Tom and Jeri could not be better cat companions and we love them lots. We have a supportive family. I lost my 90 year old “Aunt Ester” who I loved a lot but she was ready to go.

Recently I purchased the probiotic Neuralli and so far…[Read more]

Hi Mary Beth,

I meet weekly with 2 different guy with Parkinson’s.

I have breakfast with Dan weekly , then lunch with Tom on a different  day. We talk about lots of things besides Parkinson’s. The friendships are good. There has been some discussion about starting a Parkinson’s support group because one does not really exist in Sedona. I will ke…[Read more]

Hi Mary Beth,

As a  person with this condition I can’t help but acquire some knowledge  about Parkinson’s, in fact I am an expert in coping. What I must do to make my situation palatable is exercise like a demon. Rather than think about my misfortune I choose to work it out daily. It also helps the time to pass. My wife and I are walking bud…[Read more]

Hi Ally,

What a great question. I am free to tell people I have Parkinson’s . Beyond that I really let them decide how they will label me. This life is a struggle with or without Parkinson’s. So I try and do the best I can. Blessings, Mike

Hi Mary Beth,

I have been on C/L for close to 2 years. The research  says it’s effect decreases. Recently with the help of my Doctor I have added a bedtime extended release 50/200 dose.  With that I have reduced my Melatonin to 5 mg nightly. It has helped my sleep which is very important. I think it is critical to consult your Doctor for any cha…[Read more]

Hi Ally,

Fraya and I use our  Ipads with the different work-out programs. I use the Blessings Health Care website they have several LSVT programs that are specific for Parkinson’s. Fraya does a program called Grow Young almost daily. We  purchased an exercise bike which I try and use often. We also have several hand weights which are useful. Our…[Read more]

Lori,

My Parkinson’s journey began officially 10/20 but we guessed I have had it for quite awhile longer. Journaling (writing) on these sites has been a great outlet for me. I am retired so just sitting around waiting is not the best course of action for me. I  had a good career so these writings keep my brain percolating still. Thank you for yo…[Read more]

Mary Beth,
Where I live Sedona,Arizona I have 2 pals with Parkinson’s. Dan is a decorated Viet Nam Veteran who shares Parkinson’s with me and also significant

sobriety. We meet for breakfast every week on  Thursdays at 9:00 am. Then my friend Tom and I meet for lunch at 1:00 every Tuesday .What I have found is that it takes too much effort to…[Read more]

Mary Beth,

I have gotten all the shots. I still got the virus but we believe it was more mild than it would have been otherwise.

I will get the next shot the CDC recommends

for sure. I remember that the virus is not political. Very good question because we will all have that choice soon enough.

Blessings,

Mike

Hi Ally,

One of the great things about returning home from Alaska was the greetings we received from our cats Tom and Jeri. Jeri our 3 year old kitten shows her love by biting. Tom the 11 year old Male licks to show his affection.

Both add a dimension to our lives.
When I was first diagnosed Jeri insisted I pick up my feet by lying in front of…

[Read more]

Mary Beth,

The wedding was great. Everyone had lots of fun. We will go up to Big Lake in the Ma Su valley for our last party then Saturday home to Sedona. My big problem is my stiffness which is on going and hard for me to ignore. It will be good to get back to my therapeutic routine.

Here it is colder and movement is more challenging. Blessings, Mike

My wife and I are currently in Anchorage  where we had lived for a very long time. This morning I had breakfast with my retired Judge pal who was my partner in a court program that he created. During breakfast he informed me that his Son had been diagnosed with early on set Parkinson’s at 43. He is now 50. His wife also has Parkinson’s.

We came…[Read more]

Hi Mary Beth,

I try and do hand exercises on a regular basis. I do struggle with my writing some. What I prefer to do is type on my I-pad with a stylus. Most importantly for me is that I continue to write on a couple of Parkinson’s <span style=”text-align: right;”>websites for my brain. No matter how I do it the point is I exercise my mind and…[Read more]

Ally,

Not much to share. These studies seem to be long term. For me the most important thing is to stick with it. Who knows when they will have good results. But I will be waiting with my best self! Blessings, Mike

Hi Alan,

I am not a Medical Professional. I can not over emphasize that. I began Sinemet in 10/20, I started with 5.5 pills per day. Today I take 6 pills per day. My Neurologist has encouraged me not to increase my total pills.  My last dose 2 pills that I took at 4:00 pm she suggested I split them up 1 at 4:00 pm and 1 at 8 pm, so far so good.…[Read more]

Ally,

I have been participating in a Michael J. Fox study for about a year now. Still no results but I like the idea of sharing my experience with Parkinson’s. Blessings, Mike

Mary Beth,

Acupuncture seem to have helped, massage is good also. Qui gong is just a new type of stretching. I have also begun working with a new Physical Therapist. None of it is too crazy just a little different. Blessings, Mike

We were super blessed to be a part of the 30 day campaign. I was featured in day 4 and then my wife Fraya and I had an on-line interview with Ally.

When I spoke with my old pal Tim yesterday about my condition he said that it can give us renewed focus….and it has.

My life must be more than just my illness.

Also as a result of all these s…[Read more]

Mary Beth,

I started 8/2020 taking 5.5 C/L pills per day. Currently I take 6 pills per day. There are ways to adjust the pills rather than increasing them. Also once you increase your dose it is difficult to reduce them. My Doctors encourage me to exercise more and try different strategies….IE Accupuncture, Qui Gong, LSVT to name just a few. I h…[Read more]