Alan Tobey

My “favorite” all-time reaction was just a month ago, when an inadvertent double dose of Aricept (aka “poisoning by neurologist”) caused me to experience eleven hours of multimedia hallucinations and a  jump in my MDR of dopamine drugs.  No extra [email protected]!

Here’s an unusual case: an endotoxin may have triggered my PD. For the ten + years before I became a PD warrior in 2009, I suffered from undiagnosed non-Celiac gluten intolerance, during which I produced large quantities of gliadin antibodies (reacting to one of the components of wheat) that as a side effect caused digestive upsets. When the i…[Read more]

Here’s the VERY BEST article on how to achieve and maintain a permanently unhunched back:

https://www.physio-pedia.com/Gait_Re-education_in_Parkinson%27s

The background is this:  it’s not your feet, it’s your toes and the direction in which they apply force (forward or backward).

We all start out with normal posture, supported by a normal and…[Read more]

Just as another possibility to throw in here, the good Dr. Gregor of nutrition facts.org discovered that the food densest In melatonin is the pistachio nut,  which seems like worth exploring. I’ve taken 6-1o of the brand  called Wonderful , common in California supermarkets, both at bedtime and occasionally when wide awake at night, and both see…[Read more]

In 2009 I was. just ending an unfortunate decade with undiagnosed non-celiac gluten intolerance — actually an intolerance to the gliadin peptide which, together with the celiac intolerance to the glutenine peptide, covers the whole gluten molecule. People with gliadin intolerance(more common on average among people descended from people living in…[Read more]

I’m surprised that the article and the responses so far make no mention of exercise, except to note that PD affects all muscles.

But it’s important to note that the muscles that are called to duty when needed at the end of a BM are mainly multiple core muscles used for multiple things.  And fit core muscles respond to the same exercises that are…[Read more]

In the fringe of this discussion is a discovery by Dr. Gregor of NutritionFacts fame, who had wondered if there are any natural foods high in melatonin. The top of the list is — pistchio nuts, with enough to be clinically interesting to the curious. I’m one, and have found roughly 5-10 kernels (Wonderful is a widely available supermart brand)…[Read more]

You’ll find this post both more coherent and easier to follow up on if you use the correct spelling: melanopsin. cells.

If there’s any chance for humor in our part of the universe, we should embrace it.

Almost  nobody from the “outside”  knows enough about PD to use it as a pejorative. Any attention probably helps.

We can assist by showing we have a sense of humor. Two of my own contributions:

Name for a PD theater group: The ShakesPeers

Short joke. Q: How do…[Read more]

12 years into PD and managing pretty well, one thing I’ve learned/decided is to avoid “special” proprietary extracts, derivatives, “Breakthroughs,” etc.  The innovations usually are a product of marketing rathervthan medicine. But in an age when a single-molecule “pure” extract is thought to be better than the “crude”craw material, producti…[Read more]

In my 12th PD year I’ve learned to be minimalist and patient and to avoid running after the miracle molecule of the month. So with cannabis the first learning step I took was to start with a pure CBD tincture at a low initial dosage of 10 mg.  The experience was positive in two respects:  Subjectively,  the CBD makes me mellower and more re…[Read more]