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Alan Tobey

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@atobey

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    Alan Tobey replied to the topic Urinary Problems in the forum Parkinson's Disease Medications 6 months, 3 weeks ago

    There are some unconventional ways to approach this concern, which may affect most of us males from time to time.  I have no insight for women, alas, but maybe male experience could help.

    The common pharmaceutical approach is prescription Flomax (Tamulosin generically).. It does seem to regularize urine flow somewhat  in both the urgency and h…[Read more]

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    Alan Tobey replied to the topic Do you use any transportation services? in the forum Living ​With​ ​Parkinson's Disease 7 months ago

    We people living in grater Parkinsonia — patients and caregivers and families alike — tend to look only at our card when it comes to our transportation. Can I still drive? Or if not well, should I still risk it? And if not at all, what else is there?  But to succeed, we need to look at transportation as a SYSTEM with multiple pieces.  I hope s…[Read more]

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    Alan Tobey replied to the topic What side effects do your medications have? in the forum Parkinson's Disease Medications 9 months, 3 weeks ago

    My “favorite” all-time reaction was just a month ago, when an inadvertent double dose of Aricept (aka “poisoning by neurologist”) caused me to experience eleven hours of multimedia hallucinations and a  jump in my MDR of dopamine drugs.  No extra [email protected]!

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    Alan Tobey replied to the topic Were you exposed to toxins during your life? in the forum Living ​With​ ​Parkinson's Disease 9 months, 3 weeks ago

    Here’s an unusual case: an endotoxin may have triggered my PD. For the ten + years before I became a PD warrior in 2009, I suffered from undiagnosed non-Celiac gluten intolerance, during which I produced large quantities of gliadin antibodies (reacting to one of the components of wheat) that as a side effect caused digestive upsets. When the i…[Read more]

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    Alan Tobey replied to the topic How do you fight the Parkinson's back hunch? in the forum Living ​With​ ​Parkinson's Disease 10 months ago

    Here’s the VERY BEST article on how to achieve and maintain a permanently unhunched back:

    https://www.physio-pedia.com/Gait_Re-education_in_Parkinson%27s

    The background is this:  it’s not your feet, it’s your toes and the direction in which they apply force (forward or backward).

    We all start out with normal posture, supported by a normal and…[Read more]

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    Alan Tobey replied to the topic Melotonin for stopping hand tremors in the forum Parkinson's Disease alternative treatments 11 months, 3 weeks ago

    Just as another possibility to throw in here, the good Dr. Gregor of nutrition facts.org discovered that the food densest In melatonin is the pistachio nut,  which seems like worth exploring. I’ve taken 6-1o of the brand  called Wonderful , common in California supermarkets, both at bedtime and occasionally when wide awake at night, and both see…[Read more]

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    Alan Tobey replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    In 2009 I was. just ending an unfortunate decade with undiagnosed non-celiac gluten intolerance — actually an intolerance to the gliadin peptide which, together with the celiac intolerance to the glutenine peptide, covers the whole gluten molecule. People with gliadin intolerance(more common on average among people descended from people living in…[Read more]

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    Alan Tobey replied to the topic Constipation Treatments in the forum Living ​With​ ​Parkinson's Disease 1 year, 1 month ago

    I’m surprised that the article and the responses so far make no mention of exercise, except to note that PD affects all muscles.

    But it’s important to note that the muscles that are called to duty when needed at the end of a BM are mainly multiple core muscles used for multiple things.  And fit core muscles respond to the same exercises that are…[Read more]

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    Alan Tobey replied to the topic Do you take melatonin for sleep disturbances? in the forum Parkinson's Disease Medications 1 year, 1 month ago

    In the fringe of this discussion is a discovery by Dr. Gregor of NutritionFacts fame, who had wondered if there are any natural foods high in melatonin. The top of the list is — pistchio nuts, with enough to be clinically interesting to the curious. I’m one, and have found roughly 5-10 kernels (Wonderful is a widely available supermart brand)…[Read more]

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    Alan Tobey replied to the topic Light therapy in the forum Parkinson's Disease alternative treatments 1 year, 1 month ago

    You’ll find this post both more coherent and easier to follow up on if you use the correct spelling: melanopsin. cells.

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    Alan Tobey replied to the topic What do you think of the term 'Parkie'? in the forum Parkinson’s Disease Awareness and Advocacy 1 year, 5 months ago

    If there’s any chance for humor in our part of the universe, we should embrace it.

    Almost  nobody from the “outside”  knows enough about PD to use it as a pejorative. Any attention probably helps.

    We can assist by showing we have a sense of humor. Two of my own contributions:

    Name for a PD theater group: The ShakesPeers

    Short joke. Q: How do…[Read more]

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    Alan Tobey replied to the topic Turmeric in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 5 months ago

    12 years into PD and managing pretty well, one thing I’ve learned/decided is to avoid “special” proprietary extracts, derivatives, “Breakthroughs,” etc.  The innovations usually are a product of marketing rathervthan medicine. But in an age when a single-molecule “pure” extract is thought to be better than the “crude”craw material, producti…[Read more]

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    Alan Tobey replied to the topic Medical cannabis, have you tried it? in the forum Parkinson's Disease alternative treatments 2 years, 10 months ago

    In my 12th PD year I’ve learned to be minimalist and patient and to avoid running after the miracle molecule of the month. So with cannabis the first learning step I took was to start with a pure CBD tincture at a low initial dosage of 10 mg.  The experience was positive in two respects:  Subjectively,  the CBD makes me mellower and more re…[Read more]

  • Profile picture of Alan Tobey

    Alan Tobey became a registered member 3 years, 9 months ago

    • Profile picture
      replied 3 years, 9 months ago

      Hi Alan
      Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. Is there anything specific you would like to see discussed on the forum? Please feel free to post a new topic in any of our forums or jump in on an existing topic:

      – Alan Tobey (@atobey) April 23, 2019

      You seem to have a wonderful perspective on how to…[Read more]

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