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Joakim

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@jbackstrom

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    Joakim replied to the topic Indico supplements in the forum Parkinson's Disease alternative treatments 5 months, 3 weeks ago

    I have the same experience as Marlyne Wilder, e.g. 10mg gummies, and I live in Illinois as well. Melatonin (12mg) didn’t work as well for me as the gummies do.

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    Joakim replied to the topic Do you cramp up alot? in the forum Parkinson's Disease Symptoms 6 months, 2 weeks ago

    I do since about a year ago (diagnosed 6 yrs ago). Dystonia. For me, my left foot cramps up, usually 30 minutes after taking levdopa dose. I started botox shots in my calf and shin to combat it, but this last round hasn’t been as successful in abetting the cramps. I’m told DBS would help this condition. Cramping otherwise is exasperated by…[Read more]

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    Joakim replied to the topic Do you still drive? in the forum Living ​With​ ​Parkinson's Disease 6 months, 3 weeks ago

    Gregg, I’m in conversation with my doctor about DBS and would love to connect to discuss your experience. My issue seems to be dystonia with my left foot cramping/flexing.

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    Joakim replied to the topic Do you still drive? in the forum Living ​With​ ​Parkinson's Disease 7 months ago

    I was diagnosed 6 years ago, and I stopped riding motorcycles about 2 years ago, but still drive. We bought a new car 3 years ago and with all the new whistles and bells offered, such as adjustable cruise control, traffic alerts, auto-stopping etc I don’t feel any concern about being on the road.

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    Joakim replied to the topic Do you take melatonin for sleep disturbances? in the forum Parkinson's Disease Medications 7 months ago

    I started taking Melatonin as a sleep aid (no violent sleeping) and at first it worked well (12mg). However, I found indica gummies (cannabis) work so much better. I get a near full night rest.

    Axel

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    Joakim replied to the topic skiing in the forum Parkinson's Disease and exercise 1 year, 3 months ago

    Hi Susie,

    Like Bonnie I was diagnosed 5+ years ago at 49, and love to ski. I live in Chicago so I don’t get to ski that often but my wife and I try and get up to 5 days/year downhill and nordic (classic) as often as we can. I have recently developed dystonia in my left foot and just got a botox shot. That seems to have helped. I can’t ski as hard…[Read more]

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    Joakim became a registered member 3 years, 2 months ago

    • Profile picture of Jean Mellano
      Jean Mellano replied 3 years, 2 months ago

      hi Joakim
      Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. Is there anything specific you would like to see discussed on the forum? Please feel free to post a topic.

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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