Joakim

I do since about a year ago (diagnosed 6 yrs ago). Dystonia. For me, my left foot cramps up, usually 30 minutes after taking levdopa dose. I started botox shots in my calf and shin to combat it, but this last round hasn’t been as successful in abetting the cramps. I’m told DBS would help this condition. Cramping otherwise is exasperated by…[Read more]

Gregg, I’m in conversation with my doctor about DBS and would love to connect to discuss your experience. My issue seems to be dystonia with my left foot cramping/flexing.

I was diagnosed 6 years ago, and I stopped riding motorcycles about 2 years ago, but still drive. We bought a new car 3 years ago and with all the new whistles and bells offered, such as adjustable cruise control, traffic alerts, auto-stopping etc I don’t feel any concern about being on the road.

I started taking Melatonin as a sleep aid (no violent sleeping) and at first it worked well (12mg). However, I found indica gummies (cannabis) work so much better. I get a near full night rest.

Axel

Hi Susie,

Like Bonnie I was diagnosed 5+ years ago at 49, and love to ski. I live in Chicago so I don’t get to ski that often but my wife and I try and get up to 5 days/year downhill and nordic (classic) as often as we can. I have recently developed dystonia in my left foot and just got a botox shot. That seems to have helped. I can’t ski as hard…[Read more]