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  • My husband has been on Xadago since  May.   And yes, my husband, who has severe apathy, was much improved.   He’d been on the Neupro Patch for 6 years and that was amazing as far as his apathy was concerned.. Like flicking a switch.  He was initially diagnosed withLBD (Lewy Body Dementia).  He was lying on the bed looking at the wall.  Lev…[Read more]

  • Gwendoline Jakins posted a new activity comment 12 months ago

    Yes, you’re right, Xadago is available here as well. But they are doing a phase 4 trial to get feed back on its effects. I guess where the 10 patients comes in. Our neurologist will report back on its effects. He is very involved in research and very open minded. I will watch the B6. Thanks. Gwendoline

    • that is great you have a neuro who stays on top of things. plz do keep us informed as to xadago effects,

  • Gwendoline Jakins posted a new activity comment 12 months ago

    My husband was on 8mg patch. Started on 4mg. Xadago is not readily available here. It’s being trialed (4th trial) in the US and elsewhere. Our neuro could give it to 10 patients. This trial is to get feedback that is not from a control group. My husband did improve on the Xadago, but still has some apathy, but at least he’d reading a…[Read more]

    • xadago was approved by FDA in 2017. B1 didnt work for me, i do take b12 and magnesium, beware too much b6 as it may effect efficacy of carbidopa/levodopa if your husband is taking that. i read john pepper’s book, he seemed to relate walking and selegeline as the thing that helped him most.

      • Yes, you’re right, Xadago is available here as well. But they are doing a phase 4 trial to get feed back on its effects. I guess where the 10 patients comes in. Our neurologist will report back on its effects. He is very involved in research and very open minded. I will watch the B6. Thanks. Gwendoline

        • that is great you have a neuro who stays on top of things. plz do keep us informed as to xadago effects,

  • Gwendoline Jakins became a registered member 12 months ago

    • hi gwendoline
      it seems as though australia is light years ahead of USA in terms of treating PD. i am on neupro, doesnt seem to be doing much for me..interesting you have access to xadago as it is not covered by medicare here and many insurance companies do not cover it. if they do, it is still cost prohibitive.

      we all react very differently to…[Read more]

      • My husband was on 8mg patch. Started on 4mg. Xadago is not readily available here. It’s being trialed (4th trial) in the US and elsewhere. Our neuro could give it to 10 patients. This trial is to get feedback that is not from a control group. My husband did improve on the Xadago, but still has some apathy, but at least he’d reading a…[Read more]

        • xadago was approved by FDA in 2017. B1 didnt work for me, i do take b12 and magnesium, beware too much b6 as it may effect efficacy of carbidopa/levodopa if your husband is taking that. i read john pepper’s book, he seemed to relate walking and selegeline as the thing that helped him most.

          • Yes, you’re right, Xadago is available here as well. But they are doing a phase 4 trial to get feed back on its effects. I guess where the 10 patients comes in. Our neurologist will report back on its effects. He is very involved in research and very open minded. I will watch the B6. Thanks. Gwendoline

            • that is great you have a neuro who stays on top of things. plz do keep us informed as to xadago effects,

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