Clive Varejes

I occasionally take a half pill of Somnil.

It is an over the counter “sleep aid”.

I find the half tab works better for me that a full one.

Go figure.

Wow, sounds amazing.

Are the trials open to all, or is it still a closed group?

My reactions are totally different to R Bonanno.

When someone asks me how I am, I actually smile/try to smile depending on the day, and say ” not too badly thanks, how are you feeling?”

I realize that when someone says ‘how are you’ it is just a way of saying hello.                                  They actually may be concerned but it is not th…[Read more]

I have no doubt that within the next year or so, AI could well predict the progression of Parkinsons, however I’d be a lot more excited if AI could tell me that it has predicted that a cure will be here in a year or so.

Oh, well it’s a lot easier to laugh than to cry.

Hi, no, no problems with that thus far.

Toni, I think your comment, is brilliant, makes absolute sense.

B-)

It honestly makes no difference to me whatsoever.

I’m very relaxed with who I am and the fact that I have PD.

If someone feels that, in order to give their lives meaning that must use the term parkie, so be it.

Absolutely no symptoms out of the ordinary.  I have had the 2 Pfizer shots.

The only symptom is that I now feel a lot safer.

B-)

Sorry.

Nothing from my end.

Hi Ally,

I found out afterwards.

I had spoken to a number of people and organizations involved, specifically the University of Jerusalem and they after some investigation informed me of the link.

And after reviewing their systems, I found he was spot on.

Hi,

Yes, I do have bouts of depression but knowing that it is brought on by the PD, and no other reason, helps me get through it faster.

And no I am not prepared to take anti depression medication, as that will perhaps mitigate the immediate symptoms but is not a long term solution . I would rather fight through it myself.

I do find though,…[Read more]

Hi,

No my immediate family does not and as far as I know no one in my extended family has PD.

However I have subsequently found out that because of my “heritage” I do have a higher than normal predilection to PD

Not a clue.

However I do have complex seizures of the left temporal lobe, which was diagnosed about 12 years ago, so perhaps that added to it.

That app really does not work, not matter what they tell you. It can basically tell you when you are sleeping, or not and basic details about your movement however it really is not capable of telling you are having rem sleep or not.

Thus far, I have not experienced symptoms like that, however I have noted that I seem to be needing more sleep and waking up later.

I, as a result of my work, had to be up by 06:00 every morning, which I did without a problem, usually getting to bed at about 23:00.

However, I now tend to awake at about 07:30 and feel I could sleep more.

I am in Cape Town, South Africa.

Apparently a blind/placebo test found that about 1000mg of Vit E daily may help, but like everything else it is all supposition.