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Clive Varejes replied to the topic Recruiting Participants for PD Research in the forum Parkinson’s Research News 1 week, 1 day ago
Good day Ezekiel,
I will participate with pleasure however I definitely have not noticed any signs of an increase in speech rate.
I was diagnosed about two and a half years ago now.
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Clive Varejes replied to the topic Do you struggle with urinary control? in the forum Parkinson's Disease Symptoms 1 month, 1 week ago
Yea, I find that occasionally I do have the same problem, however I’m not sure it is related to PD.
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Clive Varejes replied to the topic How can we make improvements to the forums? in the forum Using our forums 6 months, 1 week ago
Hi Ally,
I really do find the forum interesting and the feedback from people in various stages of PD, be they PD sufferers themselves, or care givers is really amazing. The way people open up stating their fears, problems, difficulties, & highlights as well as suggestions for others to follow is wonderful.
My problem is that I have had a few…[Read more]
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Patricia,
I have no doubt that your gastro has recommended the life style changes necessary as well as H2 blockers and Proton pump inhibitors, but a new study that has come out is Acupuncture.
“In one study, treatment with acupuncture stopped reflux in the test group better than PPIs, with results that lasted longer. We need more large…[Read more]
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Patricia,
Botox into the forehead would be totally useless for Migraines, although it will help with wrinkles. 🙂
One of the primary causations of migraines is muscle tension in the jaw, when you clench your teeth, perhaps while you are sleeping, I normally get hammered at about 03:00, and the muscle tension into the muscles…[Read more]
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Cynthia,
I have a similar situation, however I do know it is related to my migraines.
What I suggest, and it has worked for me, is to have your doctor/neuro give you botox into your jaw muscles.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Patricia,
I’m so sorry that is horrible, and usually chronic. Is there no medicatioon that your gastro can prescribe?
As far as I know it has nothing to do with PD, however as we know it affects different people in differing ways.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Sorry Troy, how I typed ‘today’ instead of ‘the’, is a mystery.
I can only put it down to old age. That’s my story and I’m sticking to it.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Bob,
Yes, the keystroke situation I can identify with.
I feel it is simply as a result of my slight tremors and either hit the wrong key, hit the same key twice, or simply miss one letter totally which I thought I had touched.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Gauri,
Yea, that is very weird, are you sure this is a symptom of PD?
I’ve never heard of it before, but perhaps someone on the group who has experienced something similar can help.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Troy,
Please don’t keep today ballet to yourself.
Love to hear the wailing and gnashing of teeth.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Troy,
That heightened creativity really is a plus.
Being able to sketch, or paint or create someting must give you an enormous sense of pleasure and achievement.
Unfortunately I have always had a problem even drawing a straight line with a ruler so that is a no go for me, but it does cause an inordinate sense of amusement to my so called…[Read more]
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Troy,
Sorry I missed your loss of weight syndrome.
No I haven’t had that problem at all.
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Troy,
Thank you for your reply, it fits with my coffee dislike perfectly.
However what annoys me even more is the fact that I have started disliking the taste of chocolate like Lindt, Toblerone, Ferrero Rocher, Lindt & Sprüngli, Toblerone, Cadbury .
At times I cry myself to sleep…………..
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Ally,
Thanks for the info, the article was interesting. The loss of taste, smell etc symptoms seems very like the symptoms experienced by those who contracted covid badly. I wonder if one or two of the receptors are affected the same way.
However my senses of taste and smell are still good, it’s simply that I just do not enjoy the taste of…[Read more]
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Mary Beth, I have a very weird symptom, which is in all probability not related to PD, and everyone is going to think I’m nuts however as you will not be the first ones to totally believe so, I’m going to mention it anyway.
Ever since I was in my late teens, I used to enjoy coffee, which I drink black and with no sugar, usually espresso. I always…[Read more]
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Clive Varejes replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Kim,
I’m not sure if ours is the same, but I get that sort of feeling as well, but mine is almost as if a hot “wind” was blowing through my head, and sounds became muffled and everything became blurred. I initially thought it was a symptom of migraines.
It was finally found to be a symptom of seizures. I have “complex partial seizures of the…[Read more]
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Clive Varejes replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 1 year, 1 month ago
Hi Mary Beth,
Although, as I stated, my musical ability was severely limited, I did enjoy the sax, however bowing to pressure from my neighbours who started a crowd sourcing division to raise enough money to buy the sax from me, and facing life ending threats I decided to sell. Ok, perhaps that’s not exactly how it happened.
It was simp…[Read more]
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Clive Varejes replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 1 year, 1 month ago
Thank you Richard, it certainly seems as if she is really one of the unfortunately too few genuine doctors who actually do their research and act in the best interests of the patients.
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Clive Varejes replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 1 year, 1 month ago
Hi guys,
Yea, I also find music relaxes me, and when I’m relaxed I find my tremors ease a lot as well.
I enjoy a myriad music from Classical to Jazz, Rock, the Rat Pack, the music of the mainly 60’s, 70’s and bands, diva’s and individuals to many to mention.
I used to play the guitar and saxophone, however unfortunately my voice leaves a lot…[Read more]
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