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Robert Li

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@robertl

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  • Profile picture of Robert Li

    Robert Li replied to the topic Did your symptoms change when you had Covid? in the forum Coronavirus (COVID-19) and Parkinson’s 11 months, 3 weeks ago

    There is a significant amount of research pointing to mitochondrial damage as a root cause of long-term post COVID symptoms (long COVID).  Three years ago I didn’t know what mitochondria were, and my brain would have shut off if someone told me.  But mitochondria are really important in all long-term illness.

    Mitochondria are a part of every c…[Read more]

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    Robert Li replied to the topic Lower limb dystonia (foot inversion) and Parkinson's in the forum Parkinson's Disease Symptoms 11 months, 4 weeks ago

    Thank you Fred for the kind comment, it helps motivate me to work on the website, which is a bit daunting.  I will let you know if I find more information about foot inversion!

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you like puzzles? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 12 months ago

    There are a wide variety of printable visual puzzles, like Sudoku, at krazydad.com for free.  Watch out though – for some of the puzzles labeled “easy”, sometimes they take a bit of practice before they are easy.   They are a lot of fun.  I personally like the Cow and Cactus puzzles, when printed in color.

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    Impulse control disorders or behavioral addiction reported in Parkinson’s disease include pathological gambling, hypersexuality, compulsive buying and binge eating.

    https://pubmed.ncbi.nlm.nih.gov/22921247/

    Hello Krit Singh Chand, I wanted to share this, which may help you reframe your conclusions and perhaps feel a little more positive, looking…[Read more]

  • Profile picture of Linn Starr

    Linn Starr and Profile picture of Robert LiRobert Li are now friends 1 year ago

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    John, someday people will solve it, but not if they’re financed by the pharmaceutical industry.  I’ve been working with some of the top metals toxicity researchers in the world but it’s going to take a grassroots effort of people like you and me and many others.

    After I found out that I had high manganese, I was shocked to discover that every…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Lower limb dystonia (foot inversion) and Parkinson's in the forum Parkinson's Disease Symptoms 1 year ago

    Hi Fred, I am writing a website just about this subject.  I don’t know much about foot inversion.  However, I have seen it mentioned in passing with respect to too much manganese deposited in the basal ganglia (we’re talking micrograms).  Manganese can come from surgical implants, liver issues, or industrial air pollution exposure years ago, es…[Read more]

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    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    Since you were exposed to pesticides, have you been checked for dysbiosis (imbalance of gut bacteria)?  Dysbiosis is a common driver for neurologic disease, and also has to do with immune system and genetics (such as natural vitamin D production rate).

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    Elizabeth, I’m so sorry to hear how you were treated by the original neurologist!

    It does seem you’ve tracked down many of your likely risk factors for PD, which is hard to do.  They definitely tend to be interrelated and none alone is likely to cause PD or severe systemic disease.  In terms of Factor 4: metabolic, have you found a doctor who c…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    Paulette, there’s definitely multiple genetic factors and I see disabling dystonias on one side of my family line.  However, I got over my disabling dystonia by changing my lifestyle habits including diet, sleep, reducing stress etc.  For example, I take Melatonin both to help me sleep and because it is an antioxidant against manganese-induced d…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    John, I think you’re right about several things – the higher risk factors in the high tech industry up to around 2010 include lead in solder and many of the chemicals used for making PC boards.  Lead and mercury not only cause various kinds of damage, they also disrupt the homeostasis of essential metals like manganese.

    In terms of genetic…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    John, if you’re taking vitamin D, you might want to consider asking for your iron levels/stores to be checked as well.  Vitamin D tends to increase the number of metal transporters we produce (by allowing RNA transcription), which is good.  However, if iron is low then absorption of manganese may increase because they share the same transporter u…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    John,

    You have my deepest respect for following the evidence and working so hard to find what you need. Thanks for sharing your journey, it is helpful for me and I’m sure others to find solutions.

    With respect to heavy metals, they mostly deposit in the bones and tissues after a few months so they are not readily measurable in the blood.  I…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    Hi Christine, the slept little, high stress, brain always going lifestyle sounds familiar.  I don’t have PD, I have dystonia, finger twitching, balance issues, reduced sense of smell, etc.  I got over my constipation with the help of a doctor fixing my gut.  Fixing the constipation has potential to help dopamine production because you need to be…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year ago

    Kevin, since you worked in a steel mill, have you ever had your Red Blood Cell manganese (not magnesium) levels checked?  Manganese is a component of most steels, and inhalation of airborne manganese can cause accumulation in 2-4% of individuals.  The RBC manganese test is not perfect for detecting if you have a deposit in the basal ganglia, but i…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 2 months ago

    Alan, if taking levadopa helps, then that’s a good sign that at least some of your dopamine-producing cells are working. Levadopa, or L-dopa is normally produced by the body from tyrosine:

    <b>Tyrosine hydroxylase</b> or <b>tyrosine 3-monooxygenase</b> is the enzyme responsible for catalyzing the conversion of the amino acid<…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Anyone have comments on We Have Parkinsons.com in the forum Parkinson's Disease alternative treatments 1 year, 3 months ago

    I looked at the ingredients of Restore Gold and it makes a lot of sense for neuroprotection, gut health, and mercury removal.  So the dystonia or other improvement is not likely to be just placebo effect.  By the way, tyrosine is the natural precursor to L-dopa.

    Thanks for sharing the info.

  • Profile picture of Robert Li

    Robert Li replied to the topic Do you take melatonin for sleep disturbances? in the forum Parkinson's Disease Medications 1 year, 3 months ago

    Hi Mary,

    Clonazepam enhances the action of GABA neurotransmitters, which we think of as “calming” neurotransmitters.  If Clonazepam is effective for you, you might ask to get your vitamin D levels checked.  Vitamin D deficiency, which is significantly more common in Parkinson’s Disease, can mess up how GABA is released in the brain: h…[Read more]

  • Profile picture of Robert Li

    Robert Li replied to the topic Have you been detoxed of heavy metals? in the forum Parkinson's Disease alternative treatments 1 year, 3 months ago

    Mary Beth,

    I have had around 12 rounds of IV calcium EDTA and a round of DMSA.  These are pretty heavy duty chelators and cause risk to the kidneys if there is a lot of redeposit.  So I would not recommend unless there is a sure history of lead, mercury or other exposure.

    My NDs’ much preferred method is to go the slower route – cilantro, c…[Read more]

  • Profile picture of Robert Li

    Robert Li started the topic There is always hope! (PD as a systemic disease) in the forum Parkinson's Disease alternative treatments 1 year, 3 months ago

    Hello everyone,

    I will share my story that has been difficult for me to write clearly and in its entirety. It is deeply personal and connected to many difficult events in my life.  But I will share so at least some of you with PD, early prodromal symptoms of PD, and caregivers will see hope, and thereby take more action.

    In December 2019, I…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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