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I appreciate knowing there are others out there who know what I am talking about with this tinnitus thing and this PD thing.
Ah, the ol Tinnitus question, Ally.
For those of you who don’t know my writing yet, I sometimes think I can write humorously. So just read on and bear with me. I do have spinal stenosis, you know!
This topic of tinnitus, unlike PD, where they are still a bit shy of looking bored when it discussed, is when my usually very nice and symp…[Read more]
I was thinking about your topic and it dawned on me that it is in the 90’s today where I live and we had one of the coldest winters in years last year. But you know, I didn’t really notice the cold last winter or give a thought to the current hot days. I don’t go outside any more than I have to since my Parkinson’s showed up. I st…[Read more]
I have a motivation story that was brought to mind recently.
I recently had to make a phone call to a client who is holed up with his family in their home in Idaho. That call and seeing on the news that Idaho is now a semi-hot spot for this COVID virus triggered a memory that the great novelist Ernest Hemingway resided in Idaho for much…[Read more]
Hi Robert H
Thanks for the kind and wise comments on my comments.
Wells said and well received.
I too received this PD thing as a very interesting retirement gift. Though it seems to have found me a bit earlier than you at age 65. I call my “new normal” Plan B. I had a Plan A but now I am on Plan B. I totally agree that warm baths are a secret weapon against this PD thing many days. I will say from my reading and research tha…[Read more]
And good topic Ally.
I have had what most would consider a very rapid progression too. My doctor’s were surprised at this and it took a year and a half to get the meds to where they seem to be working. They finally realized that starting slow and adding things slowly was not working for me. Enough of the baby doses! This guys got…[Read more]
Good topic Mary Beth
Hello Mark. You are a quick study. You already have the hang of it.
I am just starting my third year after diagnosis and am 67 years old.. I think (believe, hope!) I have finally got my meds to where I want them about 6 months ago. Boy, that took a while. But even with that, I have good days and bad days.…[Read more]
You illustrate the need for this forum.
Because this PD is so different for everyone, we each, eventually, must decide on a course of treatment or accommodation or whatever word we use to get on with our lives. We all have different treatments that we try until we settle on one for a while and then make changes as needed along the…[Read more]
Anybody have trouble with dog and freezing?
My subconscious PD body is allergic to dogs. Talk about freezing. This is totally embarrassing because I live in a town where people treat their dogs better than they treat their children! They like to walk around town showing off their latest canine. If someone approaches me with a dog…[Read more]
I reread my goofy post and had a further thought.
I have to put conscious effort into walking now. It is no longer automatic. When I put any effort into something else, like being fully dutifully and respectfully attentive to my wife, I am no longer able to also put the full conscious effort into my walking. The result is the fr…[Read more]
Hi Mary Beth
Good question about freezing.
Here’s my short tale.
When my magic meds (Sinemet) are wearing off or haven’t kicked in yet I certainly can not walk and talk or, get this, LISTEN AND WALK, without freezing!
We all know the humorous observation that a person is so “slow” they can’t walk and talk at the same time or they can’t walk…[Read more]
Good topic Robert,
My Parkinson’s started as just a hint here and there. The first Neuro said it is early, no meds and come back in a year, earlier if you think you need to. And then a couple months later, my Parkinson’s pushed me off the side of the road and watched me rolling down the hill and the second Neuro said possible MSA! My re…[Read more]
What a word picture. concrete ….asphalt rubble.
I can identify.
Thank you Robert! Well said.
I have stiff and slow Parkinson’s. I have the problem you describe. For me, every visit to the bathroom is a project.
Here is a story for you.
I have had bladder problems for 4 years and have had to wear pads. All doctors presumed I had the garden variety of old man prostate problems (I am now 66 yrs old). I was…[Read more]
Good question Mary Beth
Hello to Robert Harris from another member of the “Robert” clan. My son is the sixth Robert in our family tree (we do change the middle names, so no Roman Numerals after our names.).
We seem to share a lot on this PD journey. I too take pills 5 or six times a day and seem to have been issued the same “plumbing” sy…[Read more]
Or hemorrhoids!! Don’t want to talk about that either!!
Why can’t they just send us the pamphlet with the not so nice things about PD, and, while they are at it, about this getting older thing too, and just get it over with!!
Oh, and the easy solutions to all of them too, of course.
I admit to daily Miralax. Otherwise, don’t want to talk about it!!
Does anyone else care about this flu thing interupting the supply of our meds?
I seem to be one the those Parkinsonism people who could not really get by without my pills! I would be so stiff and slow as to not be able to go to work or drive myself or actually be able to walk properly. So, I recently convinced my pharmacist to provide me with a…[Read more]
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