Robert

Hi Ally and you other PD folks.  (This indeed meant to be humorous. But sadly, it is entirely true)

YIKES!!

First snow of the season here near Chicago.

Uh oh!

I thought I could sorta hide my PD.

Last year was no big deal.

But his year —  BIG   PROBLEM walking on slippery sidewalks and parking lot!

I am afraid I look like an old man wit…

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Hi Jo S

I did not see your post before I posted my info and did not mean to seem to ignore it.

I sorta agree with you.  A lot of this labeling doesn’t solve any problems.

But for me, it is important for planning purposes to have some feel for the prognosis.  We each have to figure out who might care for us  and who might care for those we are…[Read more]

Hi Ally

I’ll start off.

H & Y Stage II and 1/2.

Thanks,

Robert

Julian

Good question and book recommendation

I was diagnosed a year ago and immediately started Sinemet last November.  So coming up on one year.I started at 1 and 1/2 Sinemet 25/100 3 times a day.   Over the past year I have raised and lowered and then significantly raised the sinemet dosage and timing to get to the level that seems works fo…[Read more]

Howdy Folks,

I am in my first year and 11th month of taking meds.  I will be having my 6th visit with my MDS neurologist in a few weeks.  We adjusted meds by email twice too.  Have not yet found the dosage and timing that works for me.  I am now familiar with what off times means.  Was it like this for others in their first year?

Thanks,

Robert

Howdy folks.

I am detail oriented, so bear with all the details.  And I ask for forgiveness up front for my lame attempts at humor.  If you can’t have a sense of humor with PD I don’t know how you can cope with this “very interesting disease, this PD”.

I would be interested if anyone else has had similar experiences in getting to either the r…[Read more]

I have lived here for 42 years.   My father was career military so I lived in many places as a youth.  I attended 7 different schools during 12 years of public schooling.  Thanks for asking.

Prescribed by my PD Doctor:

1  Carbidopa/Levodopa,  Started on 1 1/2 pills (450mg) spread throughout the day.

Now taking 1600mg spread through the day and night.

2 & 3.  Two different pills for PD related bladder problems.

4  Flornef to deal with low blood pressure from all those levodopa and bladder pills.

5  Flobic, a B vitamins comp…[Read more]

North Suburb of Chicago, Illinois on Lake Michigan.

I have been on pills only since last November and I am now afraid not to so I haven’t missed a dose yet.  I use an apple phone with an apple watch with alarms to remind me to take the pills for the three times a day I am away from home.  I have a slim aluminum pill holder that I attach to my key ring.  Holds the 6 round yellow pills with room fo…[Read more]

Thanks Jean.  I cannot even begin to imagine what it was like before the miracle drug carbidopa/levodopa.

Howdy again.

FYI for you wise old timers who probably have quick questions about my story.  One of the my two second opinions did mention that three word phrase, which will not be spoken aloud, that begins with the letter M, as something to consider. But that did not seem obvious to the other two Drs and an MRI did not show that as obvious for…[Read more]

Howdy folks.

I appreciate you letting me join your forum.  I was diagnosed with Parkinsonism a year ago May.  That movement disorders doctor said I am certainly stiff and slow but it’s early so come back in a year or so.  Second opinion three months later said something about about HY Stage 3!  Third opinion said nontremor likely PD, HY Stage 2.5…[Read more]