Robert

Folks,

I promise this post does have at least a little bit of bizzare symptom meme to it.  It is a really long post.  I have finally given up editing it so that I can go to sleep.  Forgive any repetitions, syntax errors, or typos.  I do have spinal stenosis, you know!

Also, I am pretty sure I warned everyone when I joined this forum a while bac…[Read more]

Thomas and Robert Li.

You both make a very important point. We always have to be careful to not automatically attribute all of our ailments to our Parkinson’s.  And eventhough I consider the carbidopa/levodopa pills to be “magic pills” for my Parkinson’s,  that doesn’t mean they are the correct treatment for all of our ailments.  I have been ta…[Read more]

Hi John.

Good question.

I was getting leg cramps often in the night.  I am now on carbidopa/levodopa every three hours during the day, along with one extended release pill added to every other dose,  and I take two extended carbidopa/levodopa at bedtime.  I sometimes have to take the regular carbidopa/levodopa during the night if the leg cr…[Read more]

Good evening all.

Regarding PD books.

If there is a book out there that is available to us consumers about Parkinsonism, Parkinson’s Disease, MSA, Lewy Body Dementia, or Parkinson’s Disease with Dementia that I have not read it is only because I don’t know about it.

This list may indeed be a clue that at not quite three years years in, I have…[Read more]

You see! If I had just spent more time, I would have caught the two signatures!!

If us PD people can’t laugh at ourselves, we are gonna have a tough life. Right?

Robert C

Very good topic Mary Beth,

I suspect it is hard for some to share personal situations on this topic. You can’t undo what you might type if you have second thoughts on what you have sent. And we are all in a “let’s see how it goes” mode and not a “presume the worst” mode as a way of coping with this Parkinson’s visitor in our lives. This topic…[Read more]

Phil

My wife’s 93 year old Danish grandmother had the greatest phrase.

“I have a very good memory.  It just isn’t very long.”

Best regards.

Robert C.

Beth and Garrett

Thanks for your stories.

I am an allergy person too Beth.

Garrett.  So the COVID caught one of us PDers. You seem to be of the type to have decided to not be a victim of the PD visitor who decided to never leave.  So you know you can get through a visit by a tourist like the COVID.   Good example for the rest of us.  I hope…[Read more]

Thanks Cemal and John for your thoughts.

I agree that thoughtful carefulness is a good plan for these times.

It does seem from the sparse response to this topic that us PD people do not seem to be COVID magnets at least.

That’s a good thing.

PS.  Is it just me, or is anybody else as tired as I am of 2020?

I am looking forward to a fresh new…[Read more]

Thanks Jacque,

I appreciate knowing there are others out there who know what I am talking about with this tinnitus thing and this PD thing.

Robert C.

Ah,  the ol Tinnitus question, Ally.

For those of you who don’t know my writing yet, I sometimes think I can write humorously.  So just read on and bear with me.   I do have spinal stenosis, you know!

This topic of tinnitus, unlike PD, where they are still a bit shy of looking bored when it discussed,  is when my usually very nice and symp…[Read more]

Hi Ally

I was thinking about your topic and it dawned on me that it is in the 90’s today where I live and we had one of the coldest winters in years last year.  But you know, I didn’t really notice the cold last winter or give a thought to the current hot days.  I don’t go outside any more than I have to since my Parkinson’s showed up.  I st…[Read more]

Hi Folks

I have a motivation story that was brought to mind recently.

I recently had to make a phone call to a client who is holed up with his family in their home in Idaho. That call and seeing on the news that Idaho is now a semi-hot spot for this COVID virus triggered a memory that the great novelist Ernest Hemingway resided in Idaho for much…[Read more]

Hi Robert H

Thanks for the kind and wise comments on my comments.

Wells said and well received.

Robert C

Hi Sharon

I too received this PD thing as a very interesting retirement gift.  Though it seems to have found me a bit earlier than you at age 65.  I call my “new normal” Plan B.  I had a Plan A but now I am on Plan B. I totally agree that warm baths are a secret weapon against this PD thing many days.  I will say from my reading and research tha…[Read more]

Hi Toni

And good topic Ally.

I have had what most would consider a very rapid progression too.  My doctor’s were surprised at this and it took a year and a half to get the meds to where they seem to be working.  They finally realized that starting slow and adding things slowly was not working for me.  Enough of the baby doses!  This guys got…[Read more]

Good topic Mary Beth

Hello Mark.  You are a quick study.  You already have the hang of it.

Mary Beth

I am just starting my third year after diagnosis and am 67 years old..  I think (believe, hope!) I have finally got my meds to where I want them about 6 months ago.  Boy, that took a while.   But even with that, I have good days and bad days.…[Read more]

Hi Michel

You illustrate the need for this forum.

Because this PD is so different for everyone, we each, eventually, must decide on a course of treatment or accommodation or whatever word we use to get on with our lives.  We all have different treatments that we try until we settle on one for a while and then make changes as needed along the…[Read more]

Hi again

Anybody have trouble with dog and freezing?

My subconscious PD body is allergic to dogs.  Talk about freezing.  This is totally embarrassing because I live in a town where people treat their dogs better than they treat their children!  They like to walk around town showing off their latest canine.   If someone approaches me with a dog…[Read more]