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I recently attended a symposium titled “Shaping the Future” at the University of Delaware. The event, organized by the Johns Hopkins Udall Center, was patient-oriented, so rather than their peers, the expert speakers were addressing people with Parkinson’s. Looking around the room, I noticed that the audience included people…

Boom! A cannon shot shakes the windows of the house. No, it’s not terrorists showing up in rural New England. It’s just winter. We have a steel roof. When the temperature is just right, the snow slides off the roof with the force of a cannonball and hits the ground…

Dad used to tell us that he has two sets of clothes: a normal set and a set of “skinny clothes” that emerge when he gets sick. Dad was diagnosed with ulcerative colitis in his 30s, and the illness caused him to lose a startling amount of weight. He was…

Have you ever heard someone say that Parkinson’s can be blamed for much and many a thing? I have. And why not blame our woes on this disease? It’s taken much and many a thing from us. Things that we, at one time in our lives, had full…

I was playing a nice, calm game of Hearts with my kids and grandkids when I started laughing. Again. My outburst was not out of the ordinary, unless somewhat irrepressible mirth counts as abnormal. I’ve experienced several bouts of uncontrollable laughter in the last few months. I have noticed that…

The progression of Parkinson’s disease (PD) is unique to every person, with different early, middle, and late-stage symptoms. However, this view of PD progression may be an artifact of limited data rather than an accurate description. We need new ways of measuring PD symptoms as they change over time.

Every year, I compile a list of holiday gift ideas for people with Parkinson’s disease. This year, I’ve taken my favorites from previous lists and added some new ideas. I’m offering them here for those who need assistance with finding the right gift for their loved one. A few…

We’ve all been alone. We’ve all felt alone. And we all know there is a difference between the two. Being alone is having no one around to laugh with, to cry with, or to be with us when we need them. Feeling alone can happen in a coliseum, surrounded by…

Every day following the ruin of stagnation, it seems that I have progressed from early Parkinson’s to a moderate stage of the disease. But I can’t be sure. Many other factors, including stress, injuries, medication changes, and aging, could be making it look and feel worse. To appease my…

We all have a fundamental desire to help our loved ones, and this is particularly true of those of us with early-onset Parkinson’s disease. Life moves along, and we try to advance with it. We are used to taking care of our responsibilities. But when we have Parkinson’s, the rules…