We all are surrounded by people who mean well, people who don’t mean to come across as ignorant, but who are, nonetheless, ignorant. Especially when they are representing health agencies. There is a European agency that runs similarly to the Social Security Administration and assesses individuals needing…
Columns
Some people keep journals, some keep diaries, some record life’s events on their calendars. I have done all three. I kept a diary as a young girl, and then moved onto journals (although I tend to think they are more one in the same). I keep a…
Parkinson’s and the ‘D’ word
Many people refuse to talk about it. Fewer want to admit they struggle with it. Many are embarrassed by it. All would choose to live without it. It’s the “D” word:Â Depression. On my first visit to see my neurologist several years ago, much to my surprise, I…
The Journey is a Great Adventure
It wasn’t irreverent. At least, I didn’t think so. He was just a middle-aged dad who appeared to be confined to a wheelchair. He was coming down the aisle of the church at a faster than “normal” speed for a Sunday morning worship service, and it was…
People from all walks of life are being encouraged to join a support group. You know, like a support group for recently divorced couples, those with an alcohol addiction, or people who have chocolate meltdowns, anger management issues, depression, illnesses, an addiction to chocolate chip milkshakes, and…
Mirapex (pramipexole), a common treatment for Parkinson’s disease, is believed to work by boosting the action of whatever dopamine is available, which is low in people with Parkinson’s. It is a dopamine agonist that directly stimulates nerves in the brain that are not naturally being stimulated by…
My first few years after being diagnosed with Parkinson’s were crazy — trying to get the timing of the drugs right, the dosages, the amounts, dealing with side effects. Looking back, I think one of the most frustrating aspects of the drugs was how sleepy they made…
This evening I sat with my neighbor for a while. She is almost 87. I asked her how her son and daughter were doing. She is caring for her daughter who just had a hip replaced. She is praying for her son who just found out he…
If you asked me what is the hardest part of having Parkinson’s disease, I might have to say the pain — today, at least. PD is so unpredictable. As it changes from day to day, moment by moment, second by second, sometimes you don’t know what to…
Not so many years ago, I was taking 27 pills a day to curb my Parkinson’s symptoms. That number didn’t include the supplements I was advised to take along with my medication. I took some of the pills to mask the symptoms and the others to combat…
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- New $2M MJFF grant backs Parkinson’s walking study at Boston University