Some days when I look at our bathroom closet, it resembles a miniature pharmacy. While my husband, Arman, takes significantly fewer oral medications since his deep brain stimulation surgery in 2017, he still averages about 30 pills a day. We have three large plastic bins containing medications, vitamins,…
The Bright Side — Jamie Askari

Jamie Askari is from Cleveland, Ohio, and serves as the managing director of Premier Health Advocates, LLC, a small medical advocacy organization. Her husband, Arman, was diagnosed with early-onset Parkinson’s disease in 2009, at age 38. Jamie and Arman have three grown children. She has named her column “The Bright Side” (actually, her husband named it!) because of their positive attitude regarding Parkinson’s and all aspects of their lives.
Some exciting changes have happened in terms of Parkinson’s medications since my husband, Arman, was diagnosed with the disease in 2009. At that time, options for long-acting or extended-release levodopa and carbidopa were limited. Over the past decade, however, the U.S. Food and Drug Administration has approved several extended-release…

Some of life’s greatest blessings are the ones we don’t even notice. For instance, I’m typically unaware of how natural it is for me to walk, talk, and get myself dressed and fed. Or how about the little conveniences, such as taking my cellphone out of my pocket? How…
“As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others.” — humorist and poet Sam Levenson, though often quoted by (and misattributed to) Audrey Hepburn, actress and UNICEF goodwill ambassador I began volunteering in my children’s classrooms…
Having been born and raised in Cleveland, I’m accustomed to living in a city with top-notch healthcare. This didn’t mean much to me as a child and as a young adult, because I was extremely fortunate that none of my close family members or I had any major medical issues…
Early-onset Parkinson’s disease entered my life almost 15 years ago. My husband, Arman, who was in his late 30s at the time, had been showing some strange warning signs that his body was fighting something — we just didn’t know what it was. He began experiencing impaired…
Hello, November! With the Thanksgiving holiday nearly upon us, I’ve been thinking a lot about what I’m most thankful for. As the leaves change colors and the air gets cooler, it feels like the perfect time to reflect on the past year and all of the reasons I have to…
My husband, Arman, has been dealing with a number of symptoms in his head, neck, and back due to his battle with Parkinson’s disease. These have included a stooped posture, a bent spine (called camptocormia), a drooped head, and a bend in his trunk (called…
When my husband was diagnosed with early-onset Parkinson’s disease at age 38, I worried about the effects it would have on him and my children, but I didn’t think about the ways it would alter my own life. As a mother and wife, my priorities were…
I’m casually strolling through the grocery store, a simple pleasure we all took for granted before the COVID-19 lockdowns. How exciting it is to be able to be in a store again, instead of ordering groceries online and having them tossed on our doorstep. Although I love the convenience…
Note: This column describes the author’s own experiences with vitamin B1, as well as other supplements and treatments. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Wouldn’t it be great if there were a magic pill that combated the…
Here is a riddle for you: “How do people with Parkinson’s disease shave?” “Very carefully!” Not long after my husband Arman’s diagnosis of early-onset Parkinson’s disease in 2009, it was clear that shaving had become a complicated process. In the years before he had deep brain…
My husband, Arman, and I spent almost 20 years of our married life in one house. Before that, we moved several times during his medical training, but the majority of our family memories were created in that house. It was the place our three children considered home. We moved into…
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