So what exactly happens when a full-time caregiver gets sick? Needs to take a well-needed day off? Can’t perform the necessary tasks of caregiving? As full-time caregivers, some crazy questions run through our minds. For example, how will my husband, Arman, who was diagnosed in 2009 with…
The Bright Side — Jamie Askari
Jamie Askari is from Cleveland, Ohio, and serves as the managing director of Premier Health Advocates, LLC, a small medical advocacy organization. Her husband, Arman, was diagnosed with early-onset Parkinson’s disease in 2009, at age 38. Jamie and Arman have three grown children. She has named her column “The Bright Side” (actually, her husband named it!) because of their positive attitude regarding Parkinson’s and all aspects of their lives.
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Some exciting changes have happened in terms of Parkinson’s medications since my husband, Arman, was diagnosed with the disease in 2009. At that time, options for long-acting or extended-release levodopa and carbidopa were limited. Over the past decade, however, the U.S. Food and Drug Administration has approved several extended-release…
One of the most challenging nonmotor symptoms of Parkinson’s disease is fatigue. When I think about the word, a poor night’s sleep comes to mind, resulting in a day of being tired afterward. Or fatigue might result from a long week at work or a stressful life event.
“Everything can be taken from a man but one thing: the last of the human freedoms — to choose one’s attitude in any given set of circumstances, to choose one’s own way.” — Victor Frankl This quotation was shared with me by a dear friend, a therapist with over 20…
The name Alexa is of Greek origin and means “helper” or “defender of humankind.” Back in 1996, when my husband, Arman, and I were deciding on a name for our first child, we had no idea that this would perfectly describe the woman she’d grow up to be. We really…
When my husband, Arman, was diagnosed in 2009 with early-onset Parkinson’s disease at the age of 38, I learned everything I could about it. I purchased every book I could get my hands on and searched the internet several times a day. I educated myself about the…
Have you ever witnessed someone falling? One minute they’re walking by your side, and the next, they’re on the ground. Usually this involves slipping on the ice on a cold winter day or drinking too much beer at a college tailgate. But for those of us who have a friend…
I recently began attending a support group for Parkinson’s disease caregivers. Although I may have been one of the group’s youngest members, I’ve been a caregiver for longer than most, as my husband, Arman, was diagnosed with young-onset Parkinson’s in 2009. It was nice to…
“When the bones are good, the rest don’t matter/ Yeah, the paint could peel, the glass could shatter/ Let it rain ’cause you and I remain the same.” — Maren Morris, “The Bones” I just love this song! Whenever it comes on the radio in my car, I…
“I guess it comes down to a simple choice, really. Get busy living, or get busy dying.” This famous quote is from one of the all-time greatest movies, “The Shawshank Redemption.” Andy (the main character, played by Tim Robbins) lives by this mantra to keep him going after…
I’m always in awe when I think about how my husband, Arman, has handled his diagnosis of early-onset Parkinson’s disease. He was young at the time, just starting his independent medical career after years of supervised training. Arman’s post-undergraduate path included four years of medical school, three years as…
It started with a dry throat, which isn’t unusual for us in winter. After a lifetime of living in chilly Cleveland, we’re used to the dryness from forced-air heat. But the minute my husband, Arman, and I both woke up to this dry throat, we immediately tested ourselves for…
While I have talked a lot in my columns about staying positive and looking for the good in all situations, I want to reflect on this. When you live with a loved one who has Parkinson’s disease (PD), there is never a break from the illness, for the patient,…
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