If someone says the words “Parkinson’s disease,” what’s the first thought that comes to your mind? How do you visualize this disease? I can’t help but think about how I used to visualize Parkinson’s disease. I probably learned about it at some point during my childhood, and the image…
The Bright Side — Jamie Askari
Jamie Askari is from Cleveland, Ohio, and serves as the managing director of Premier Health Advocates, LLC, a small medical advocacy organization. Her husband, Arman, was diagnosed with early-onset Parkinson’s disease in 2009, at age 38. Jamie and Arman have three grown children. She has named her column “The Bright Side” (actually, her husband named it!) because of their positive attitude regarding Parkinson’s and all aspects of their lives.
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Parkinson’s disease is an illness that slowly progresses every day. Symptoms change, medication side effects vary, falls happen, and there is always an element of the unknown. Because of this, caring for a person with Parkinson’s also changes every day. As soon as I think I have…
Traveling can be so stressful that it often feels like we need a vacation after the vacation. For my husband, Arman, who has early-onset Parkinson’s disease, and me, all of the relaxation we enjoy during much-needed trips melts away as soon as we return to the airport. A…
Whenever anyone asks my husband, Arman, how he is doing, his standard reply has become, “Living the dream.” He usually gets a good laugh from this response, and they quickly move on to other topics. This has become his tagline, which seems to work well for him. Living with a…
I love doing one kind act for a stranger each day. I have done this for as long as I can remember. It was quite a challenge during the COVID-19 pandemic, though, since I didn’t often encounter strangers in my living room. These small acts of kindness usually take…
I never thought I’d be interested in a support group for Parkinson’s caregivers. When my husband, Arman, was diagnosed, we were both in our late 30s, and I certainly didn’t think I could relate to anyone caring for someone in my parent’s generation. I was also so busy…
I was in line behind a young mother at the grocery store last week. She was probably in her early 40s and had three beautiful children in tow. The line moved slowly, so I was stuck listening to her lengthy cellphone conversation. She was loudly discussing her problems and focusing…
One of my most vivid parenting memories involves my oldest daughter, Alexa, who’s now 27. We lived in Boston then, and I had enrolled her in a preschool program for 3-year-olds. She would be at school twice weekly from 10 a.m. until noon, which worked perfectly with her strict…
There’s a small white church near the entrance to my old neighborhood. I used to drive by it daily. Outside the church was a large sign where meaningful quotes were posted. Over the 20 years I lived in that home, I noted a few that resonated with me. “Worry is…
Until recently, my husband, Arman, and I have been very private about his Parkinson’s diagnosis and our life dealing with the disease. He was diagnosed in 2009 with early-onset Parkinson’s at age 38. Before I started writing this column, titled “The Bright Side,” only our closest friends…
Have you ever pondered the question “Who am I?” Personally, I never have. This won’t surprise anyone who knows me, as I’m not the type of person who self-reflects. But I recently started thinking about it as I began researching how identity can change after a Parkinson’s diagnosis.
I truly love writing my column, “The Bright Side.” It has been a great way to chronicle my experiences as a mother, as well as a wife and caregiver to my husband, who has early-onset Parkinson’s disease. When I was hired by Bionews, the parent company…
If I had a time machine, I would travel back to 2009. Like Michael J. Fox in “Back To The Future,” I would jump into that silver DeLorean and go! I would go back to when my husband, Arman, was diagnosed with early-onset Parkinson’s…
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