We all want something in life. We want to win the lottery or find our perfect mate. For those of us with a chronic illness, we’d be more than satisfied with a cure for our disease. Until we find a cure for Parkinsons’s disease, I’ve compiled a list…
Columns
It has been rough going recently, after I acquired a “legally blind” diagnosis on top of Parkinson’s disease. It has been a month, and part of the reason I am back to column writing so soon is because of the compassionate support I received, which was freely…
Harnessing the Power of Music
A proud, black piano stands in my parents’ living room. It’s the foundation of our home. From behind the sleek mahogany panels, fury, sadness, and happiness express themselves without judgment. My operatic brother sings his troubles away. My mom, a lifelong piano teacher, often alludes to the power of music…
I attend my boxing class twice a week. Regardless of whether she is having a good or not-so-good day, Kathy, another woman in my class, will be smiling. Not only will she be smiling, but she will be giving away words of encouragement. I often hear her thanking one…
Sinemet Has Left the Building
A recent Merck product status report shows that Sinemet 25-100 is on backorder, with no current availability date. I have been on Sinemet 25-100 for almost a year now. When my pharmacy called me to say there was no more Sinemet for my refill, I was devastated. Generic carbidopa/levodopa…
I can’t believe that it’s been almost 39 years since I got married. July 4, 1980, was the day I obtained my independence. Sort of. When the pastor was preparing for our wedding ceremony with my soon-to-be husband and me, he asked if we would like to include a particular…
“Freezing” is when an individual suddenly feels like they’re glued to the ground. Parkinson’s disease patients often experience freezing during the late stages of the disease. It can occur while the person is in motion or after they’ve been stationary and then attempt to move. It’s associated with complicated…
A warrior is not a worrier. A worrier has no peace, is filled with anxiety, and frets over the smallest things. Worriers tend to be lacking in courage and a calm spirit. Warriors exude courage. They are brave in the midst of the battle. They are fighters determined to…
“The music and movement started, I was filled with great joy. I was able to take the whole class and walked out feeling accomplished, encouraged with that passion for dance rekindled. Seeing the class participants enjoy music and movement and benefit from it was so thrilling. I saw…
Sometimes we need to be encouraged in our journey with Parkinson’s disease. We become weary and find ourselves at the edge of despair. We feel like we’ve nothing left to give and life is losing its luster. What better way to dispel the gloom than to read an inspiring book?…
Recent Posts
- Energy shortage in cells may drive toxic dopamine buildup in Parkinson’s
- Addressing a misconception that levodopa loses effectiveness over time
- New Silvi Foundation funds research into Parkinson’s and related diseases
- New national strategy urges patient-centered Parkinson’s care in US
- When love can’t put things back on track, it finds a new way to keep going