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Respect for oneself can often be hard to come by. We can see our mistakes and failures. We recognize the missed opportunities to become who we wanted to be, and the times we fell short of our goals. Couple the inadequacies we carry with us alongside having a chronic illness…

I’ve always liked attending different events, such as movies or concerts, or having lunch or coffee with friends. But I don’t get out to socialize much anymore. It’s not that I can’t or don’t want to. I merely am hesitant and for one reason or another usually talk myself…

I was out gathering flowers, peach tulips, and blue orchids. It was a beautiful sun-kissed day. I wondered where I would discover new blooms in the garden. Out of nowhere, a chasm opened beneath my feet, and I plummeted into unknown depths. Jagged rocks and outcrops tore at me and…

My sister, Dad, and I waited in the doctor’s office before Christmas for his deep brain stimulation (DBS) appointment. Dad underwent DBS last fall, and it’s time for a “tuneup,” as he likes to call them. I imagine his doctor with a wrench in her hand, manipulating Dad’s brain…

I’m unsure about how I feel today, but I am certain it’s not me. I am not at my best. Tired and weary, I am running this race against time. I hope I am running it well. We all believed, at one point or another, that we had a limitless…

“Your mission, should you choose to accept it … This tape will self-destruct in 10 seconds.” — Mission: Impossible (TV series). What is my problem? At times, putting on my clothes in the morning can be an impossible mission. This is one of the unseen symptoms that some people…

A huge part of bringing in the new year is buying a new calendar, a new journal, a copy of the book you have vowed to read, or a working scale — one that tips in your favor and not against it when counting those unwanted pounds. The first days…

I recently attended a symposium titled “Shaping the Future” at the University of Delaware. The event, organized by the Johns Hopkins Udall Center, was patient-oriented, so rather than their peers, the expert speakers were addressing people with Parkinson’s. Looking around the room, I noticed that the audience included people…

Boom! A cannon shot shakes the windows of the house. No, it’s not terrorists showing up in rural New England. It’s just winter. We have a steel roof. When the temperature is just right, the snow slides off the roof with the force of a cannonball and hits the ground…

Dad used to tell us that he has two sets of clothes: a normal set and a set of “skinny clothes” that emerge when he gets sick. Dad was diagnosed with ulcerative colitis in his 30s, and the illness caused him to lose a startling amount of weight. He was…