Guest Voice: When the caregiver becomes the one in need of care

Rosalba Mancuso is a bilingual freelance journalist based in Sicily. Writing in English and Italian, she has contributed to national magazines and newspapers for over 30 years, as well as international publications. She also dedicates her writing to spreading awareness about living with Parkinson’s disease. Getting Parkinson’s is not…

The value of in-person Parkinson’s caregiver support

Having been born and raised in Cleveland, I’m accustomed to living in a city with top-notch healthcare. This didn’t mean much to me as a child and as a young adult, because I was extremely fortunate that none of my close family members or I had any major medical issues…

Report: Addressing swallowing issues requires carer-clinician effort

Swallowing problems can cause deadly complications for people with Parkinson’s disease, if not handled appropriately, making it critical that hospital clinicians partner with caregivers to help address the needs of patients. That’s the argument made by Annie Brooks, director of strategic initiatives at the Parkinson’s Foundation, in “Dysphagia…

Group singing helps people with Parkinson’s and their spouses

Participating in a group singing program can help with speaking ability and emotional well-being for people with Parkinson’s disease, as well as foster better relationships between patients and their spouses, a new study highlights. “Our findings extend previous research on group singing in PD [Parkinson’s disease] by looking in…

What happens when the caregiver needs care?

So what exactly happens when a full-time caregiver gets sick? Needs to take a well-needed day off? Can’t perform the necessary tasks of caregiving? As full-time caregivers, some crazy questions run through our minds. For example, how will my husband, Arman, who was diagnosed in 2009 with…

Aggression Aimed at Caregivers in Parkinson’s Linked to Patients’ Grief

Aggression aimed at caregivers in Parkinson’s disease and related disorders is associated with patients’ grief in coping with disease progression and related losses, a new study suggests. Fluctuations in cognition also play a role, researchers say. But these behavioral disturbances have serious consequences for caregivers, according to investigators, who…

Former Parkinson’s Caregivers Could Help Those Now in That Role

Former caregivers could serve as a helpful resource in supporting current caregivers of people with Parkinson’s disease, a study reported. The intent is to “provide guidance for developing peer-to-peer support programs, incorporating former carers,” its researchers wrote. The study, “Using former carers’ expertise in peer support for…