Forum Replies Created

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  • Ally

    Moderator
    December 30, 2018 at 7:55 pm in reply to: When family becomes bitter that I’m not who I was

    Hi Ruthie,

    Wow, that sounds like a really difficult situation and I’m really sorry your husband isn’t handling things well/is taking out his negative feelings on you. Have you thought about seeing a counsellor, either together or on your own?

     

  • Ally

    Moderator
    December 19, 2018 at 1:24 pm in reply to: Have you tried Smovey Rings?

    This is very interesting. Jean, I hope you’ll check back with an update after you’ve had a chance to try them out!

  • Ally

    Moderator
    November 16, 2018 at 11:55 am in reply to: Apomorphine Infusion

    Thanks for posting, Abhishek, I’m not familiar with this topic at all but eager to learn more. Is this a therapy you are considering for yourself?

  • Ally

    Moderator
    October 31, 2018 at 12:05 pm in reply to: Dedicated Parkinson's App – Beta Test

    Thank you for sharing. Could you provide a little more context about this app to our forum members here?

  • Ally

    Moderator
    October 23, 2018 at 9:29 am in reply to: I’m Afraid of the Parkinson’s “Disease Thief”

    Thanks for sharing, Jean. What does focusing on the present moment look like for you? Do you practice mindfulness? I would love some tips to help me do the same!

  • Ally

    Moderator
    December 30, 2018 at 7:57 pm in reply to: Opening up about your journey

    Thanks for responding, Ruthie. I agree – God is good! I love your outlook and I’m glad to hear you have some support around you, even if  it’s not found in your spouse. Thanks for being a member of this community. We’re looking forward to hearing more from you!

  • Ally

    Moderator
    December 18, 2018 at 10:16 am in reply to: Parkinson’s Progression May Be Slowed by Vitamin B12, Study Says

    I love that you get your eggs from ‘happy chickens’. 🙂 I think in general the more ‘real’ food we can eat (vs. processed crap that we can’t even pronounce) the better of we will be long-term, regardless of whether it’s meat or produce. Have you read Eating Animals by Jonathan Safran Foer?

  • Ally

    Moderator
    December 18, 2018 at 10:13 am in reply to: How Parkinson’s affects friendships

    That’s such a neat idea!

  • Ally

    Moderator
    December 17, 2018 at 3:09 pm in reply to: Massage Therapy Can Help Ease Parkinson’s Symptoms

    Couldn’t agree more! I have insurance that covers a limited # of massages per year. I used up all my benefits due to some unforeseen circumstances earlier in the spring, and my body has been really feeling the loss of that wellness practice. January 1st my benefits re-set and I can’t wait!

  • Ally

    Moderator
    December 17, 2018 at 3:07 pm in reply to: How Parkinson’s affects friendships

    That makes sense, Jean. I’m sure having the Rock Steady folks in your life helps fight against the loneliness that accompanies being chronically ill. Are you folks doing anything fun together this holiday season?

  • Ally

    Moderator
    December 17, 2018 at 3:06 pm in reply to: Parkinson’s Progression May Be Slowed by Vitamin B12, Study Says

    Jean, how long have you been vegetarian? I was vegetarian in high school and again between 2012 – 2016. Unlike most people, I did not notice a real difference in my overall health/wellness without meat protein in my diet, but do you think (or have people tried to tell you?) that this contributed to you being diagnosed with PD? I know there is a link between gut health + risk of PD … just wondering if this factors too.

  • Ally

    Moderator
    November 16, 2018 at 11:57 am in reply to: Yoga and Parkinson’s

    I couldn’t agree more, Jean. I really struggle to make it to yoga sometimes — I often feel like it isn’t enough of a workout but I’m always glad when I go. Even if my body doesn’t feel as “worked out” as after a typical strength training session, my mind always feels 100% clearer and calmer. Sometimes I’ve even fallen asleep at the end of a class because I’m so relaxed!

  • Ally

    Moderator
    November 15, 2018 at 9:17 pm in reply to: World’s first iPS cell transplant for Parkinson’s

    Thank you for sharing all of this information, keihanna. Are you a researcher/physician working on PD research?

  • Ally

    Moderator
    November 15, 2018 at 9:15 pm in reply to: Caregiver Qualities

    Thanks for responding, Robert. Do you have a caregiver or do you provide care to someone else?

  • Ally

    Moderator
    November 15, 2018 at 9:14 pm in reply to: Do you feel SAD in the winter?

    Hi Jean, I try to do the same in snowy and cold Toronto. I am contemplating adding vitamin D tablets to my diet. I wake up early to work out before work and it’s a bummer to leave the house and come home in the dark. Maybe a vacation somewhere sunny is in order in the New Year….

  • Ally

    Moderator
    November 6, 2018 at 8:09 pm in reply to: Do you experience pain as a PD symptom?

    Hi Crystal, I just wanted to check in and see how you’re doing and if you’re liking the forums. It’s been a little while since we chatted. 🙂

    By the way, there’s a new topic I thought you might be interested in jumping in on. It’s called “What inspires you?” Check it out here: https://parkinsonsnewstoday.com/forums/forums/topic/who-inspires-you/#post-12821

    Who inspires you?

  • Ally

    Moderator
    November 6, 2018 at 7:59 pm in reply to: Who inspires you?

    Wow, those are incredible stories, Jean! How did you meet these women?

  • Ally

    Moderator
    November 2, 2018 at 9:02 am in reply to: Cannabis and Parkinson’s

    LOL I can totally relate to your high school experience, Jean! That stuff is dangerous if you’re trying to watch your weight, which as I get older I need to do more.

    I have read that alcohol is more harmful than marijuana to the body/brain/society, which I totally believe, but I agree — a lot needs to be done to raise awareness about the risks of driving while impaired by marijuana. I think, though, that as long as you know your limits and don’t do anything dumb that can put your safety or others at risk, it’s fine for recreational use. (Just like with alcohol.)

    In terms of its medicinal properties, I know cannabis has helped a lot of my friends who have PF, MS and even lupus. I think there is a lot of potential, we just need to do more research to fully understand how it can be used.

  • Ally

    Moderator
    November 1, 2018 at 11:53 am in reply to: Opening up about your journey

    Thanks for sharing, Jean. I think that you sharing your experience online is also a huge source of support for many people with PD. I really enjoy your columns, too. 🙂

  • Ally

    Moderator
    November 1, 2018 at 10:15 am in reply to: Dedicated Parkinson's App – Beta Test

    Thanks, Inès!

  • Ally

    Moderator
    November 1, 2018 at 9:47 am in reply to: Opening up about your journey

    Thank you for sharing, Franko. Sharing with close family and friends is great. I’m glad your mother is a source of support to you. Are you able to access any formal mental health supports as well?

  • Ally

    Moderator
    October 31, 2018 at 12:06 pm in reply to: Cold weather and slippery surfaces

    Thanks for sharing your recommendations, Jean!

  • Ally

    Moderator
    October 23, 2018 at 9:28 am in reply to: Faith in the face of chronic illness

    Natalie, thank you for sharing. My faith has also been a source of comfort to me in challenging times. Is there a particular prayer or scripture verse that you would like to share with others as an encouragement? Thank you again for being a member of our community.

  • Ally

    Moderator
    October 17, 2018 at 9:46 am in reply to: Motor and Non-Motor Features of Parkinson's Disease

    Hmm I wonder if there is a test that can help you tell the difference?

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