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Hi Moe, did you end up buy either of these massagers? Can you share a review for anyone else who may be looking for one?

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Hi KL0528, exosomes are getting a lot of attention, and it makes sense to be curious about whether they could help. The research is still in early stages and mostly in lab or animal studies, not people. From what I understand, there just isn’t strong clinical evidence yet to show they’re safe or effective for Parkinson’s in real-world use, so it’s something to approach with caution for now.

Have you come across this through a clinic or recommendation, or are you exploring it as one of several possible options?

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Hi Bug, constipation is such a common and frustrating part of living with Parkinson’s. It sounds like you’ve already tried several of the go-to approaches, and needing to rely on laxatives every few days can be tough to manage. Have you noticed if things like hydration, timing of meals, physical activity, or medication changes make any difference for you, or has it felt fairly consistent regardless of what you try?

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Hi Alan, thank you for sharing. It sounds incredibly heavy to carry the loss of a career that meant so much to your identity, while also navigating the ongoing demands and love of being there for your children. The way you’re reflecting on purpose and this “new normal” shows a lot of courage, even in the midst of not coping well at times. As you think about what lies ahead, are there any small moments, roles, or parts of your day that still give you a sense of meaning or connection, even if they look very different than before?

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Hi Ken, welcome to the forums and thank you for sharing your story. I know it will resonate with others in this community, and may even be a beacon of light for someone else who is in the early stages of navigating life with Parkinson’s. I hope that this virtual corner of the world will continue to provide you with connection and validation, like the physician you mentioned did early in your own PD journey.

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Thank you, russ-w. A classic symptom for diagnosis. Were you expecting a Parkinson’s diagnosis before you saw your doctor or were you surprised?

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Thanks for sharing, john-citron. It sounds like have a really good primary care physician – and good medical instincts.

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This is a really great perspective to be a reminded of. Thanks, SK0000000.

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John, the situation you described is awful! There are many people with invisible disabilities or chronic illnesses that don’t look the way they do on in pop culture. It’s so frustrating and harmful when people choose assumptions and stereotypes over another person’s lived experience. I’m sorry this has happened to you. How do you even respond to such ignorance?

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These are great tips. Thanks for sharing, Micahh38. Do you travel frequently, or have you in the past?

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Hi Alfred, replying to hopefully bump this question onto others’ radar. Thanks for sharing your experience – hopefully it will help others.

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Cheryllynn, I’m so sorry – that sounds really awful. How do you cope? Are your friends and loved ones able to visit you to spend time at home?

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Hi Jls – do you find this to be a good thing or a challenging thing?

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What does this look like for you, Christina? What helps you with sleep?

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Thank you for sharing, geffino. Your experience resonates. How do you respond when people tell you things that don’t track with your lived experience?

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Thank you for sharing these resources!

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Hi Christina, thanks for sharing. What are some of your favourite ways to stay active? Have you had to modify your activities since your diagnosis?

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Hi SubVet, have you recovered and made it back to RSB yet? How do you stay active in the winter (or perhaps you live somewhere where you can be outside year ’round?)?

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Sherman-paskett, this is such a great list of recommendations. Thank you for sharing!

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Hi DonFiresmith, have you found some relief for your sleep challenges with this medication?

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That sounds really lovely, Austin!

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This is a great reminder, Kenneth. Thank you!

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Thank you for sharing, Bill. Your experience will be helpful to others, I’m sure.

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Hi Mike, can you share more about how you’re using blue light therapy to help with your sleep? Have you noticed a changes to any other symptoms because of it?